Question:
Just a few more suggestions to this well written post: Warflower, Have you gone and purchased books on asthma and read up on this disease that you seem to have? This is a simple and basic first step. Read up on your illness.
Judging from what you are going through – money is probably tight. Try the library first. Also, there are some very good web pages devoted to asthma. Do a search on Yahoo or one of the other search engines. Secondly, ask your doctor firmly any questions you have and demand an answer. Doctors sometimes do brush aside questions, as if they don’t have time. Don’t let them brush it aside.
Just continue to sit in his/her office when they stand up to usher you out. And keep asking questions and do not get up until you are satisfied or the Dr. leaves you talking in his office and you feel like they have closed the office on you. Yes, albuterol can make you shaky, nauseous and headachey. I get all those if I use my puffer a lot. I hate it, too. And yes, your voice can change with inhaled steroids….I’m not too keen on that side effect, either. Rinse your mouth out well after using inhalers. You don’t want
thrush! Especially rinse when taking inhaled steroids. You _definitely_ do not want to get thrush. It can be very unpleasant – like having a constant itch (like a mosquito bite) down in your throat and you can’t scratch it. Asthma is a tricky thing…some kids seem to lose it. Some people get it in old age. I’ve had it since infancey and am now 36. My brother is 50 and has it bad still. Think in terms of the long haul–if it goes away, consider it a gift from God. If it’s allergy related, and you can get desensitized to the allergens,you may just get rid of most of it…if not all.
Desensitization doesn’t work for everyone. But you should definitely get tested for allergies. First have your physician run a IGE blood test which will indicate if allergies are present. If they are, then you can get tested a variety of ways by allergen injections under your skin (subcutaneous), blood testing (RAST), allergens under your tongue, etc. But 1) read 2) ask 3) don’t take it for granted. Thousands die from asthma attacks yearly. My best friend’s mother died of asphyxiation from a very bad attack. : < It does and can happen. So follow your medical regimen and if you have a worsening, rush to the MD. Mir in Miami Love can heal when truth is found.
Hopefully, once you find your triggers – it could even be cold air – and you asthma is under control, it should go easier for you. PS: with the machine medicines – they taste so awful I usually brush my teeth after each treatment to get rid of the taste. Hope this helps, MP in NJ
Response:
So many people posted or emailed (or both) I appreciate the responses, I know I had a lot of questions. I did see my Dr. She explained a bit more to me. I will be going on some nasal spray stuff that should work as preventative medicine. I do feel a tremendous sense of relief knowing there is a group on the net like this– Just knowing I am not alone, that helps, too. I cannot thank you all enough for your assistance. God bless, WARflower
Response:
Thanks to everyone posting on this place. It is so great to know that I am not alone. I could have used this last summer when I thought I was going crazy being afraid to go to sleep because I always woke up with an attack. (MY fault totally, treating it cavalier-ly with Primatene.) I have since found a great doctor and am on better meds. Was on Prednisone for 7 months and am getting myself back together, after carefully weaning myself off.) Good breathing to all. Sarah E.
Response:
When I came down with asthma at 35 I was on very heavey amounts of 6 meds. ( I had been in the ER 3 times in 30 days). after about 4 mos of this I could not walk across the floor. So I kept a log. when I got up, when I ate, when I took the meds., and when I felt bad and how I felt. Took it to my next appointment. Dr. chnaged my meds. and the times I took them. Did much better afterwards. But like the person posted before READ. Get the books from library, go to the bookstores and find local asthma talk groups through your local chapter of American Lung Assoc. or hosptials and ask your Dr. questions. Over and over if needed. – Hide quoted text — Show quoted text -Warflower, Have you gone and purchased books on asthma and read up on this disease that you seem to have? This is a simple and basic first step. Read up on your illness. Secondly, ask your doctor firmly any questions you have and demand an answer. Doctors sometimes do brush aside questions, as if they don’t have time. Don’t let them brush it aside. Yes, albuterol can make you shaky, nauseous and headachey. I get all those if I use my puffer a lot. I hate it, too. And yes, your voice can change with inhaled steroids….I’m not too keen on that side effect, either. Rinse your mouth out well after using inhalers. You don’t want thrush! Asthma is a tricky thing…some kids seem to lose it. Some people get it in old age. I’ve had it since infancey and am now 36. My brother is 50 and has it bad still. Think in terms of the long haul–if it goes away, consider it a gift from God. If it’s allergy related, and you can get desensitized to the allergens,you may just get rid of most of it…if not all. But 1) read 2) ask 3) don’t take it for granted. Thousands die from asthma attacks yearly. My best friend’s mother died of asphyxiation from a very bad attack. : < It does and can happen. So follow your medical regimen and if you have a worsening, rush to the MD. Mir in Miami Love can heal when truth is found.
Response:
Read your post. I’ve had asthma all my life. My asthma was mainly allergy and exercise induced (but was probably connected to my many bouts of bronchitis as a child), so I lived with it, I was lucky I could. This winter I had a bad case of some lung trouble which I thought was an infection of some kind. Bottom line was I couldn’t breathe. A doctor prescribed inhalers. I would have preferred to have had an infection so it could be cured, I didn’t want to know (or be reminded) that I had asthma. I didn’t want to be dependent on inhalers and didn’t understand how the disease worked. I’ve since read, asked questions and done web searches to find out all I can. I also experience a bit of shakiness from the albuterol. I don’t use it much, Serevent and Beclovent twice a day keep me breathing for most of my routines. I don’t notice side effects with them. Colds and viruses act as ‘triggers’ for my asthma. If I’m having lung trouble (and not exercising or experiencing allergic syptoms) chances are I’m fighting a bug. The meds have helped keep it from becoming a full blown case of bronchitis. I’d follow the prescribed routine and go back to the doctor with concerns/complaints. I’d insist on trying different available meds. If the doctor doesn’t accommodate, I’d find another one. Good luck. Deb
Response:
Hello,..
Hi. Read your post…and I thought I was having a bad day. what we have here is faailure to communicate,.. you have Asthma!!"
This seems to be the crux of your problems. You’re not getting the answers you want/need. Whether it’s because they aren’t telling you when you ask (this happens) or because you’re not asking the right questions (could be) or the people you ask don’t think you’ll understand, or they don’t know themselves (both possible but scary), you’re not around the knowledge corner yet. Lurking in this group can help…it did for me. However, a few specific concerns: Ohhhhh,… so THAT explains why I can hardley ever breath,… why, my MD was just SURE I was over-stating my case!
Asthma is a tricky diagnosis. However, if your doctor never bothered to check (listening to your lungs, doing a peak-flow check; I’ve seen nurses who could do these), see if you can get a better M.D. Bronchitus seems to be involved,.. so,.. I went on prednisone, asthacort,.. lots of yucky icky tasting Which, in turn, effected my voice for s short while,..
Prednisonde and Azmacort are steroids, designed for long-term buildup. You’re not supposed to take them in an emergency. Bronchitis can be very serious for asthmatics (although my wife and I both got it last year, got treatment, and lived through it in part because of prompt treatment ("It was the Antibiotics that Saved Christmas"). I had a few minor problems,.. I seemed to have some relieve in the last few months,.. so,.. I slacked on the inhaler,.. like,.. totally.
You can feel fine and still need to take Azmacort (or other steroids). Until your doctor says not to. Again,.. I have bronchitus,.. so,.. since I am allergic to ampicillin, I go on CIPRO,.. She told me to NOT use the asthmacort for a few days, (I saw her on a friday and will return on a Tuesday) and instead, to take Albuterol liquid 3X day, and the albuterol inhaler when needed…
Some steroids are contraindicated for other things. I’m no doctor, so I don’t know what "other things" are. Fine,.. now– WILL SOMEONE PLEASE TELL ME WHAT THE HELL IS WRONG WITH ME??
1. Maybe you went to the same nurse that once told me my fever, asthma attack, and vomiting were because I was just trying to get out of a final. (I was back in the hospital 12 hours later, with a severe attack and an ulcer.) In all the fevor of getting the meds,.. No One in almost a year, has explained Why I need to take this, that or the other,.. and I DO ask…
It helps to write down your questions…and keep asking until you get the answers (about side effects, "contraindications", which is a fancy word for drugs you should avoid mixing, and the order to take them.) Ask specifically about aspirin, because some doctors won’t tell you if you should stay away from it until you ask. BUT,.. I still am in the dark,.. I have no idea what I am supposed to know,.. Am I stuck with asthma forever?
No one could tell you this. Some people go into remission (get better), others have it their whole lives. Avoiding an attack seems to help you get better. this stuff? Why do I shake? SOmeone told me albuterol is Like speed,.. Why do I feel like I’ll puke?
Again, tell your doctor how you feel. Shaking seems to be a common side effect, some people have luck with potassium (do bananas seem to help?) Abuterol definitely has a stimulant side effect, as does ephinephrine (I heard on the news where they use ephniephrine to make some forms of speed.) If you feel like you need more than the perscribed dose, call a doctor. I hate this feeling of SHAKING all the time,.. does albuterol give you heasdaches?
I used to get headaches when my astma was really bad–from the abuterol, the pregnisone, or the lack of oxegen I don’t know. My doctor suggested Tylenol (but don’t mix it with alcohol. Any excuse not to drink is worth taking.) Also ask about HEPA filters. They aren’t cheap, but it’s kind of fun to scare your friends with what they’d be breathing if they didn’t have one. Good luck. Scott-T.
Response:
Warflower, Have you gone and purchased books on asthma and read up on this disease that you seem to have? This is a simple and basic first step. Read up on your illness. Secondly, ask your doctor firmly any questions you have and demand an answer. Doctors sometimes do brush aside questions, as if they don’t have time. Don’t let them brush it aside. Yes, albuterol can make you shaky, nauseous and headachey. I get all those if I use my puffer a lot. I hate it, too. And yes, your voice can change with inhaled steroids….I’m not too keen on that side effect, either. Rinse your mouth out well after using inhalers. You don’t want thrush! Asthma is a tricky thing…some kids seem to lose it. Some people get it in old age. I’ve had it since infancey and am now 36. My brother is 50 and has it bad still. Think in terms of the long haul–if it goes away, consider it a gift from God. If it’s allergy related, and you can get desensitized to the allergens,you may just get rid of most of it…if not all. But 1) read 2) ask 3) don’t take it for granted. Thousands die from asthma attacks yearly. My best friend’s mother died of asphyxiation from a very bad attack. : < It does and can happen. So follow your medical regimen and if you have a worsening, rush to the MD. Mir in Miami Love can heal when truth is found.
Response:
Hello,.. I guess I am looking for feed back-support,.. not real sure… Last year, I got very sick,.. sinusitus, ity seemed, which then became a (sp???) perforated ear drum,.. lo and behold, the ENT said, "Girl,.. what we have here is faailure to communicate,.. you have Asthma!!" Ohhhhh,… so THAT explains why I can hardley ever breath,… why, my MD was just SURE I was over-stating my case! Bronchitus seems to be involved,.. so,.. I went on prednisone, asthacort,.. lots of yucky icky tasting crap. Which, in turn, effected my voice for s short while,.. So,.. I figured (cuz,.. I dunno, it just SEEMED like the thing to do) that I’d go about my life,.. I had a few minor problems,.. I seemed to have some relieve in the last few months,.. so,.. I slacked on the inhaler,.. like,.. totally. So,.. GUESS WHAT?~ I had a real real bad morning- my sinuses were horrid, heachaches galor… I FINALL call the NEW MD,.. she says,.. Oh,.. here ya go,.. So, I get to use that cute little machine in the office (sounds like a Darth Vador effect) I get a shot of some steroid in my arm, a very stern lecture, and 3 new RX,.. Again,.. I have bronchitus,.. so,.. since I am allergic to ampicillin, I go on CIPRO,.. She told me to NOT use the asthmacort for a few days, (I saw her on a friday and will return on a Tuesday) and instead, to take Albuterol liquid 3X day, and the albuterol inhaler when needed… Fine,.. now– WILL SOMEONE PLEASE TELL ME WHAT THE HELL IS WRONG WITH ME?? In all the fevor of getting the meds,.. No One in almost a year, has explained Why I need to take this, that or the other,.. and I DO ask… but,.. it is like,.. I am not heard,.. or I guess I am stupid because I do not uderstand,.. All I hear is: "well, if we stay on top of this, it is manageable" Or "It has to do with allergies" ok– Great– fine,.. BUT,.. I still am in the dark,.. I have no idea what I am supposed to know,.. Am I stuck with asthma forever? WHY do I feel so sick from this stuff? Why do I shake? SOmeone told me albuterol is Like speed,.. Why do I feel like I’ll puke? can I still do what I want to do? (I want to scuba dive – but have to wait for ear problems to clear up) If ANYONE feels moved to talk to me about this- my gratitude would be very vast. I hate this feeling of SHAKING all the time,.. does albuterol give you heasdaches? I kow this is a wierd post– but,.. thanks in advance! WARflower
Response:
Stretch marks can occur for lots of reasons, why do you think they’re from the Azmacort? You would probably have to take mega-doses for it to effect your system like that. You can get them from years of steroid intake because you gain weight and your skin stretches. Inhaled steroids don’t make you gain weight. Marcy Tanter
This is not completely true. Long periods of steroid use cause this as well. These are not typical "stretch marks" as you may get from gaining weight. One side effect of prednisone (or steroids) is thin shiny skin which is what this is. Bobbi Jo Rosol
Response:
Stretch marks can occur for lots of reasons, why do you think they’re from the Azmacort? You would probably have to take mega-doses for it to effect your system like that. You can get them from years of steroid intake because you gain weight and your skin stretches. Inhaled steroids don’t make you gain weight. Marcy Tanter
Response:
Inhaled steroids don’t make you gain weight. Marcy Tanter
Hello Everyone I strongly disagree with the above statement. One cannot generalize like that. I have severe stretchmarks from Flixotide. I gained some 10 kg (20 ponds) in a month’s time. So although it may be unusual for inhaled steroids to let you gain weight, some persons do get disfigured by stretch marks. Yet one must be careful not to overindulge in food and then point to your inhalers. Regards Japie Scholtz Disclaimer : The above is solely my own opinion, and I am not a qualified medical practitioner.
Response: