Posts belonging to Category 'severe asthma attack treatment'

Peachbud 10k Race Report

Question:

David, I have followed your progress over the last couple years and have always been amazed at your accomplishments. Your courage and tenacity have been an inspiration to me and I know that you will get through this somehow. For quite some time I had the picture of you helping that other runner across the finish line in your second marathon as my compuetr background. I took great joy in explaining just what it was and why I used it to my co-workers. For me it embodied the true spirit of running and I will never forget it. Thank you for that and know that my prayers are added to the others in the group. -Todd Davison (Transplanted Canuck)

Response:

Sorry to hear about the asthma, David. I hope this turns out to be something you can control well enough to minimize the impact on your running. It must be very frustrating to feel held hostage by something like that. Good luck, Mark

Response:

I’m so sorry David – hang in there – I’ll be thinking of you. charlie —

– Hide quoted text — Show quoted text – Well, during the race tonight I collapsed with a severe asthma attack. I thought I was going to die. I have never been more scared in my life. I was choking at the side of the road, completely unable to breathe, and my whole body was aching for oxygen. I had to get emergency medical attention;  the whole deal. I don’t talk about my asthma because I hate it. I was diagnosed only a short while ago, after hiding the symptoms for months because I thought I had cancer or something. It turns out I have one of the worst types. It’s not the ‘exercise induced" kind, as running usually doesn’t affect it any more than sitting around (although it does happen, as I clearly showed tonight). It’s usually worse at night. I’ll be sitting around watching tv and I’ll realize I am aware of my breathing and how it seems I’m not getting enough oxygen. That’s how it starts. Then it seems like my lungs become half their size, and I find it super hard to breathe enough to satisfy me. The puffer I have to use gives me horrible side effects and my lungs ache all the time. I’m seeing a specialist in a few days to try and fix this. My life is miserable at the moment because of this. I just want it to end. Anyway, I guess that’s my "report". I’m really tired and am going to bed. — David (in Hamilton, Ont) "It is necessary to run as many miles or kilometers as you possibly can at economic or aerobic speeds to lift your oxygen uptake to your highest possible level as the foundation upon which to base your anaerobic or speed training."                                                            Arthur Lydiard http://www.angelfire.com/nc/swstudio/home.html –

Response:

Sorry to hear about your collapse during the race David, Hope you manage to come to terms with the asthma and find proper medication. I’m sure you’ll bounce right back mate! Phil

Response:

Well, during the race tonight I collapsed with a severe asthma attack. I thought I was going to die. I have never been more scared in my life.

David, I’m so sorry to hear this.  It’s seems worse somehow that you’re an ex-smoker (do something good for your lungs but they foul up some other way instead).  Please keep us posted on what the doctor says, how things progress, etc. All the best, Karen

Response:

David, I’m really sorry to hear about your collapse in the race. And even sorrier to hear that your asthma is this serious. Yeah, it’ll be hard to look on the bright side of things at the moment, but at least you are taking positive steps to cope with this. Hang in there, and perhaps things can be done to help get you back to breathing more comfortably, and if you can get back to running, even better. We’re all glad that you were at least able to write us this report. That’s something. Take care there, Cam – Hide quoted text — Show quoted text – Well, during the race tonight I collapsed with a severe asthma attack. I thought I was going to die. I have never been more scared in my life. I was choking at the side of the road, completely unable to breathe, and my whole body was aching for oxygen. I had to get emergency medical attention;  the whole deal. I don’t talk about my asthma because I hate it. I was diagnosed only a short while ago, after hiding the symptoms for months because I thought I had cancer or something. It turns out I have one of the worst types. It’s not the ‘exercise induced" kind, as running usually doesn’t affect it any more than sitting around (although it does happen, as I clearly showed tonight). It’s usually worse at night. I’ll be sitting around watching tv and I’ll realize I am aware of my breathing and how it seems I’m not getting enough oxygen. That’s how it starts. Then it seems like my lungs become half their size, and I find it super hard to breathe enough to satisfy me. The puffer I have to use gives me horrible side effects and my lungs ache all the time. I’m seeing a specialist in a few days to try and fix this. My life is miserable at the moment because of this. I just want it to end. Anyway, I guess that’s my "report". I’m really tired and am going to bed.

Response:

Our thoughts and prayers are with you. Just don’t give up. Maybe you won’t be able to do everything you want, but you WILL be able to do something. Focus on, and accept what you can do within your limitations. Don’t be bitter about what you can’t do.

I’ll second this, as I couldn’t have said it better. Hang in there, David. nina

Response:

Well, during the race tonight I collapsed with a severe asthma attack. I thought I was going to die. I have never been more scared in my life. I was choking at the side of the road, completely unable to breathe, and my whole body was aching for oxygen. I had to get emergency medical attention;  the whole deal. David (in Hamilton, Ont)

BUMMER!!!! Sorry to hear abut the asthma, that sucks, no pun intended. Hope the doc can find something to make it more manageable!! Teresa in AZ

Response:

Hi David, I’m sure that’s very hard news for you to take, and I can’t quite imagine how difficult it is for you to "take that in stride". Very sorry to hear that – I hope your recovery is speedy, and that a specialist can recommend something very valuable for your health and running. Take it easy, Richard

Response:

Our thoughts and prayers are with you. Just don’t give up. Maybe you won’t be able to do everything you want, but you WILL be able to do something. Focus on, and accept what you can do within your limitations. Don’t be bitter about what you can’t do. Mike Tennent "IronPenguin"

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Well, during the race tonight I collapsed with a severe asthma attack.

Rotten stuff.  Best wishes and hope that the medical attention you’re seeking pays off. — Lorne Sundby

Response:

I wish you the best David. Roger – Can’t think of anything else to say right now –

Response:

My life is miserable at the moment because of this. I just want it to end.

The guy with the guillotine and myself volunteer our services. Bill   "Make no mistake about it! Without humor, freedom would drive you insane." I am so cool, that sheep count ME before they go to sleep. http://hometown.aol.com/mrrobottow/

Response:

and my lungs ache all the time.

That symptom is in your mind, your lungs have no nerve endings, therefore it is impossible for them to ache unless you believe they do. Bill   "Make no mistake about it! Without humor, freedom would drive you insane." I am so cool, that sheep count ME before they go to sleep. http://hometown.aol.com/mrrobottow/

Response:

David – really sorry to hear about the asthma and the attack during the race. I’m sure that you’ll be able to beat it and come back strong. Good luck.   Anthony.

Response:

David, As Rob said, you are in my prayers too. I hope that you will get the best treatment that will fix this problem forever.  Hang in there.  You will do good. Wish you all the best, – Satish

– Hide quoted text — Show quoted text – Well, during the race tonight I collapsed with a severe asthma attack. I thought I was going to die. I have never been more scared in my life. I was choking at the side of the road, completely unable to breathe, and my whole body was aching for oxygen. I had to get emergency medical attention;  the whole deal. I don’t talk about my asthma because I hate it. I was diagnosed only a short while ago, after hiding the symptoms for months because I thought I had cancer or something. It turns out I have one of the worst types. It’s not the ‘exercise induced" kind, as running usually doesn’t affect it any more than sitting around (although it does happen, as I clearly showed tonight). It’s usually worse at night. I’ll be sitting around watching tv and I’ll realize I am aware of my breathing and how it seems I’m not getting enough oxygen. That’s how it starts. Then it seems like my lungs become half their size, and I find it super hard to breathe enough to satisfy me. The puffer I have to use gives me horrible side effects and my lungs ache all the time. I’m seeing a specialist in a few days to try and fix this. My life is miserable at the moment because of this. I just want it to end. Anyway, I guess that’s my "report". I’m really tired and am going to bed. — David (in Hamilton, Ont) "It is necessary to run as many miles or kilometers as you possibly can at economic or aerobic speeds to lift your oxygen uptake to your highest possible level as the foundation upon which to base your anaerobic or speed training."                                                            Arthur Lydiard http://www.angelfire.com/nc/swstudio/home.html –

Response:

wote: Well, during the race tonight I collapsed with a severe asthma attack. I thought I was going to die. I have never been more scared in my life. I was choking at the side of the road, completely unable to breathe, and my whole body was aching for oxygen. I had to get emergency medical attention; the whole deal. I don’t talk about my asthma because I hate it. I was diagnosed only a short while ago, after hiding the symptoms for months because I

I’m sorry to hear this too.  I hope you can find a better inhaler that works for you.  I was recently diagnosed with OAS.  My esophagus closes up from eating certain raw vegetables and fruits.  I thought I had asthma, but I was fortunate. Troy

Response:

Well, during the race tonight I collapsed with a severe asthma attack. I thought I was going to die. I have never been more scared in my life. I was choking at the side of the road, completely unable to breathe, and my whole body was aching for oxygen. I had to get emergency medical attention;  the whole deal.

As they say, if you weren’t scared, it’s because you weren’t paying attention. Clearly you were – not that there’s much of anything else you can do in the middle of an asthma attack. Sorry this happened to you. This must be a disappointment on several levels. Maybe call the specialist tomorrow and say that this happened and see if you can get the appointment moved up. You’ll be in my prayers. I’m sure you’ll find some way to beat this thing. Rob

Response:

david really sorry to hear about that. that must suck big time. just hang in there. hopefully your doc can fix you up. regards jobs – Hide quoted text — Show quoted text – Well, during the race tonight I collapsed with a severe asthma attack. I thought I was going to die. I have never been more scared in my life. I was choking at the side of the road, completely unable to breathe, and my whole body was aching for oxygen. I had to get emergency medical attention;  the whole deal.

Response:

Well, during the race tonight I collapsed with a severe asthma attack. I thought I was going to die. I have never been more scared in my life. I was choking at the side of the road, completely unable to breathe, and my whole body was aching for oxygen. I had to get emergency medical attention;  the whole deal. I don’t talk about my asthma because I hate it. I was diagnosed only a short while ago, after hiding the symptoms for months because I thought I had cancer or something. It turns out I have one of the worst types. It’s not the ‘exercise induced" kind, as running usually doesn’t affect it any more than sitting around (although it does happen, as I clearly showed tonight). It’s usually worse at night. I’ll be sitting around watching tv and I’ll realize I am aware of my breathing and how it seems I’m not getting enough oxygen. That’s how it starts. Then it seems like my lungs become half their size, and I find it super hard to breathe enough to satisfy me. The puffer I have to use gives me horrible side effects and my lungs ache all the time. I’m seeing a specialist in a few days to try and fix this. My life is miserable at the moment because of this. I just want it to end. Anyway, I guess that’s my "report". I’m really tired and am going to bed. — David (in Hamilton, Ont) "It is necessary to run as many miles or kilometers as you possibly can at economic or aerobic speeds to lift your oxygen uptake to your highest possible level as the foundation upon which to base your anaerobic or speed training."                                                            Arthur Lydiard http://www.angelfire.com/nc/swstudio/home.html –

Response:

That SUCKS!  Sorry to hear about it.  Hang in there! Joe

– Hide quoted text — Show quoted text – Well, during the race tonight I collapsed with a severe asthma attack. I thought I was going to die. I have never been more scared in my life. I was choking at the side of the road, completely unable to breathe, and my whole body was aching for oxygen. I had to get emergency medical attention;  the whole deal. I don’t talk about my asthma because I hate it. I was diagnosed only a short while ago, after hiding the symptoms for months because I thought I had cancer or something. It turns out I have one of the worst types. It’s not the ‘exercise induced" kind, as running usually doesn’t affect it any more than sitting around (although it does happen, as I clearly showed tonight). It’s usually worse at night. I’ll be sitting around watching tv and I’ll realize I am aware of my breathing and how it seems I’m not getting enough oxygen. That’s how it starts. Then it seems like my lungs become half their size, and I find it super hard to breathe enough to satisfy me. The puffer I have to use gives me horrible side effects and my lungs ache all the time. I’m seeing a specialist in a few days to try and fix this. My life is miserable at the moment because of this. I just want it to end. Anyway, I guess that’s my "report". I’m really tired and am going to bed. — David (in Hamilton, Ont) "It is necessary to run as many miles or kilometers as you possibly can at economic or aerobic speeds to lift your oxygen uptake to your highest possible level as the foundation upon which to base your anaerobic or speed training."                                                            Arthur Lydiard http://www.angelfire.com/nc/swstudio/home.html –

Response:

Purchasing emergency inhalers

Question:

Speaking of emergency inhalers, would it work to keep an extra inhaler in the dashboard compartment of the car, or in a suitcase?  How long does albuterol retain its potency, and how susceptible is it to high temperatures?

I keep the spare inhaler under one of the front seats.  Don’t know about how long they last, but I always discard my ‘in use’ inhaler after 6 months so the car inhaler is never there for more than that time. "They laughed at Galileo. They laughed at Newton But they also laughed at Bozo the Clown." Carl Sagan

Response:

<<<Grammatical ignorance sometimes masquerades as poetic license. Check out the superb alliterative "ferret out a pharmacy". This person is definitely not your run-of-the-mill ignoramus. He most certainly is not.

symptoms vs FSH?

Question:

I’ve noticed relatively mild symptoms which I’ve self-diagnosed as peri-menopausal (irregular periods and a spontaneous random flushed face are the two main ones).  I have an appointment later this month with my GYN to get the usual tests and discuss menopause, but have found good info on this NG, and would appreciate your input on whether early minor symptoms such as mine are necessarily tied to a particular range of FSH.       In preparation for the GYN visit, my "regular doctor" did an FSH for me and reported the results showed that I am still well within pre-menopause range.  It didn’t occur to me to ask about this at the time, but is it feasible that the symptoms I’m having could still signal early peri-menopause even though the FSH is still "normal"?  Can anyone tell me more about or recommend a good site or two for me to learn more about the FSH test and what its results actually mean?  Thanks.

Response:

FSH/LH tests are notoriously "off".  They only measure what is going on right then, at the moment the blood is drawn, & since things are not stable, but fluctuating all of the time, this particular bloodwork isn’t reliable. But for some reason the doctors keep acting as if the FSH/LH tests are a standard against which one can measure your menopausal status.  I have no idea why. My FSH/LH results said I was post-menopausal, for example – when in fact I still had another 2

Very emotional

Question:

Asthma can be very emotional in other ways, too, and even funny now and then.  One day at work (in a very tall building) I was riding on the elevator next to a handsome engineer I’d seen from afar and just "luckily" got to stand beside him (we were all packed in there like cattle, and I couldn’t move awy), when suddenly I realized he was a smoker, and my chest suddenly thumped == with asthma, not love — and I looked up at him rather desperately breathless, and I was going to say, I’m sorry, but please cover your mouth — I don’t mean to be offensive, but your smoky breath is about to make me wheeze, but I couldn’t get any words out, and he apparently thought I was overcome with desire for him, and actually bent over and was going to kiss me there in the back of the elevator.  And I knew I’d pass out, because just getting within three feet of someone who has just smoke a cigarette can trigger a flare.  But I couldn’t help starting to laugh  (and laughing and an asthma flare do not mix ) which made me start coughing, so I grabbed my inhaler and waved it, instead of inhaling it, to signal I couldn’t breathe for a quite different reason, and he caught on and began to laugh, too.  This account sounds like it went on forever, but actually it all happened suddenly.  In another few moments I escaped at the lobby and went outside and recovered in a half-hour.  From my journal of Embarrasing Asthmatic Encounters.

Response:

That is a funny story.  It’s amazing, isn’t it. I too can be affected by someone’s breath after they smoke a cigarette.  Yet people keep smoking. Astounding.  I’ll tell you though, one of the great things about living in California is that it is entirely smoke free. Not only offices and restaurants, but bars and nightclubs and every public place. It is amazing how much of a difference that makes in your life.  Of course, the air in Los Angeles is itself, sometimes, a whole other story. – Hide quoted text — Show quoted text – Organization: WebTV Subscriber Newsgroups: alt.support.asthma Asthma can be very emotional in other ways, too, and even funny now and then.  One day at work (in a very tall building) I was riding on the elevator next to a handsome engineer I’d seen from afar and just "luckily" got to stand beside him (we were all packed in there like cattle, and I couldn’t move awy), when suddenly I realized he was a smoker, and my chest suddenly thumped == with asthma, not love — and I looked up at him rather desperately breathless, and I was going to say, I’m sorry, but please cover your mouth — I don’t mean to be offensive, but your smoky breath is about to make me wheeze, but I couldn’t get any words out, and he apparently thought I was overcome with desire for him, and actually bent over and was going to kiss me there in the back of the elevator.  And I knew I’d pass out, because just getting within three feet of someone who has just smoke a cigarette can trigger a flare.  But I couldn’t help starting to laugh  (and laughing and an asthma flare do not mix ) which made me start coughing, so I grabbed my inhaler and waved it, instead of inhaling it, to signal I couldn’t breathe for a quite different reason, and he caught on and began to laugh, too.  This account sounds like it went on forever, but actually it all happened suddenly.  In another few moments I escaped at the lobby and went outside and recovered in a half-hour.  From my journal of Embarrasing Asthmatic Encounters.

Response:

Well, D.C.’s traffic is about as bad as LA’s now, so hopefully we will follow suit and make all public places smoke free.  Virginia is moving along, most shopping centers are smoke free now, and some restaurants, but the bars don’t even have smoke-free sections — although the lawmakers keep pressing for smoke-free bars on behalf of the bar employees.  Bygones. If you can find a quote about a carnation, you will be a sensation!

Response:

Carol – I love that elevator story. And I know what you mean about smoking. My boss smokes and I have problems just smelling papers that he has had in his briefcase overnight or in his home. Sometimes I have to put those papers in another room to "cool off" before I can handle them. I can smell things from miles away when its something I react to. * Sent from RemarQ http://www.remarq.com The Internet’s Discussion Network * The fastest and easiest way to search and participate in Usenet – Free!

Response:

Hello Daniel. I understand what you mean when people just dont understand about asthma. My son has asthma. Sure he looks helthy, but at any minute he have an attack. About your emotional distress, you should consult your doctor about the side effects of your medication. It may be making you feel the way you do. My son acts wildly when he takes his.

Response:

You will make it through it. You don’s say how log you were on them and how much you were taling and how fast you taperaed off but you can expect some rough days but you bounce back pretty fast. If you don;t get the doc on hte pone and work out a plan. My plan to come down from 40 mg for 5 months was to cut the dose in half and stay with that until I go over being sick and waite a couple of days and cut it in half again. When it was time to cut the 19 mg dosage started takeing 10 ever otehr day than 5 every other day and then quit. I spent 4 weeks feelining bad 10 days feeling suicidal and it rapidly lifted. Now we I start on it I get all the good stuff right off. Good luck — Gordon    W5RED www.couger.com/gcouger "You miss 100 percent of the shots you never take."   – Wayne Gretzky

: Thank you so much for your responses.  I have just finished my : prednisone a couple  of days ago so  hopefully I will start to feel back : to normal soon.  It also helps just knowing that other people have : experienced some of the same reactions from non-asthmatics.   I  was : very un-informed myself before this happened, so I guess I can’t blame : others for not understanding.  Hopefully I will remember this experience : in other areas of my life when faced with things that I don’t : understand.  I said before that this has changed my life.  I’m beginning : to think that it has been a change for the better. : Thanks again! : Not so alone … Laura :

Response:

Hey I know what you are going through and it is tough when people do not understand that what you have is not your fault.  I have asthma to and I have co workers that would rather see me suffer than see me well.  I have allergic asthma, which is caused by allergies.  So find someone who understands, and do not feel shy to talk to someone about it.  Do not suffer in silence because what are you going to do when the big quake hits you and no one is there to help you and get you to the hospital to get the treatment that you so despirately need?  I told a friend of mine who really understands to be prepared when I need her to take me to the hospital on a short notice, even if it is like at midnight or early in the morning and she said no problem — Free audio & video emails, greeting cards and forums Talkway – http://www.talkway.com – Talk more ways (sm)

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Thank you so much for your responses.  I have just finished my prednisone a couple  of days ago so  hopefully I will start to feel back to normal soon.  It also helps just knowing that other people have experienced some of the same reactions from non-asthmatics.   I  was very un-informed myself before this happened, so I guess I can’t blame others for not understanding.  Hopefully I will remember this experience in other areas of my life when faced with things that I don’t understand.  I said before that this has changed my life.  I’m beginning to think that it has been a change for the better. Thanks again! Not so alone … Laura

Response:

I started wheezing when I was 13-years-old.  It was not a lot of fun to have the coach yell at you in gym class because you have to stop what you’re doing to sit down and breath. I got allergy shots in high school (for allergy related asthma) and actually lost a place on the baseball team because the coach could not comprehend that I had to miss half a practice (to get the shots) once every two weeks for my health. I’m 32 now and things have improved a bit.  I’ve found that once a friend sees me go through an asthma attack, the attitude changes.  I just don’t think most people really understand what it feels like because on the outside you don’t really look sick.  But I think part of it may be our fault as well. I know for most of my life, I tended to hide it. I didn’t want to tell anyone about it as I grew up because I didn’t want to be left out.  I also had a friend with asthma who would suffer in silence rather that use her inhaler in front of other people.  Fortunately, I found a few friends with asthma as I was growing up, so we kind of had a mini support group.  It helped a lot.  The one feeling that’s still tough to get over when you are wheezing, and wheezing badly, is that you’re the only one in the world.  You’re not and it looks like you never will be.  Good luck. RJ Thomas – Hide quoted text — Show quoted text – Organization: WebTV Subscriber Newsgroups: alt.support.asthma Thank you so much for your responses.  I have just finished my prednisone a couple  of days ago so  hopefully I will start to feel back to normal soon.  It also helps just knowing that other people have experienced some of the same reactions from non-asthmatics.   I  was very un-informed myself before this happened, so I guess I can’t blame others for not understanding.  Hopefully I will remember this experience in other areas of my life when faced with things that I don’t understand.  I said before that this has changed my life.  I’m beginning to think that it has been a change for the better. Thanks again! Not so alone … Laura

Response:

My son, Patrick’s, stepmother told me she read an article about asthma becoming the epidemic of the 21st century.  Then she went on to say that "asthma is a buzzword just like Attention Deficit Disorder was several years ago".  The really scary part is she has had three years of nursing school! I, of course, pointed out that is was easy for her to say that, but if she was an asthmatic and had ever struggled for a breath she would be gasping a different tune. Patrice

Yes, sadly I have found that non-asthmatics tend to act rather superior, and many openly (or covertly insinuate) comment that "it’s all in my mind,"  just emotional reactions.

Response:

 Has anyone else experienced these kind of emotions or should I seek professional help? alone

Dear Daniel Even though i was never on prednisone, last summer I had such problems with asthma and every breath was painful and wheezy. It pushed me into depression… partly because i did not sleep well at the same time, and I was dealing with major crises at work as well. I let the emotional stuff go on too long without seeking help and ended up with a major depressive episode that stayed with  me even when the asthma left. The asthma had been very traumatic for me.I would come in to work in the morning- not having slept and taking albuterol every few hours to stay out of emergency wards at night and in the day.  Nobody understood!!! I cried on my way to work, when my chest ached.. I cried at work because of the constant coughing etc.. So get help for the emotional stuff too- whether it is caused by the prednisone – or the trauma- or the realization that you have asthma and it won’t go away. Because depression can be triggered by somthing in particular and then can take on a life of its own. I would not want anyone to go through the experience that I went through with depression (the worst illness of my life). But now I’m fine and the asthma is actually under control it would seem. So get some real emotional  help if this continues- so you won’t feel so alone. Chilla

Response:

  Perhaps some of the reason people question the validity of asthma attacks is because of those who do fake them.  Having been diagnosed with asthma at one year old (I’m 23 now), I have known living with asthma for pretty much my whole life.  Through this time I have seen asthmatics use their asthma as an excuse for things (and quite honestly it pees me off!).  Some even admit they’re just using it to get out of things.  Me I only ever got out of things when asthma genuinely made doing tasks difficult.  I played baritone for years in high school and played more than one ‘playing test’ in class with a wheeze.  Someone else I knew (who I never saw have the slightest difficulty breathing — it’s a thing I tend to notice as an asthmatic) hardly ever did tests with the excuse of asthma, and even was exempted from ever taking a gym class.  She practically admitted to me that her asthma wasn’t that bad.  I think it’s some of these people who make things worse for the rest of us.   Anyways to the first poster whose name I missed, having a severe asthma attack can change your life.  After years of progressively better asthma, I had a very bad attack last August.  No warnings, nothing, I just woke up with incredible breathing problems.  As my asthma had got better over the years, my concern for asthma lessened and lessened.  I went many places without inhalers, without concern. After having such a bad attack (and being on prednisone for a week, and many inhalers), my life has changed.  I just finished my last year of university.  Our university has a drug plan for students which I put to good use.  I made sure I had Ventolin inhalers in my jacket, backpack, around the room, etc.  I also keep checks on my inhalers so the low ones are the ones that kick around my bedroom and the good ones travel with me (such that if one of my ‘home’ inhalers dies on me, I know there’s a good one in my jacket).  I have a couple new inhalers still in the boxes (Atrovent and Flovent) for when things get worse again. Just cracked the new Ventolin open a few days ago.  (Actually right now I can see three Ventolin inhalers from where I sit, but only because I just moved and I’ve dug them out).   Anyways I value life more now I think, and I take more precautions to make sure I will keep it.  That one incident has changed my life, but hasn’t really slowed me down. Many people understand my asthma, many do not.  The thing to remember is that the people at the hospital know how severe it is.  They wouldn’t go to such troubles to help you if it was not such a problem. So in my opinion, you must look beyond what others think about asthma, and know yourself that it is a real problem.  Don’t let others get you down because they do not understand asthma.  Perhaps try to ‘enlighten’ them to how severe asthma is, and can be.   Anyways I don’t know if this helps or not but I hope it does.  Always look on the bright side of life! Cheers Joel – Hide quoted text — Show quoted text – changed my life.  I  have been extremely emotional since this happened. I cry almost every day.  I don’t know if it is the medication I’m on or If you are on prednisone, it could be the meds.  You have also been through a scary event.  It could be both.  it could be neither. just the reality of what could of happened.  The other problem is that I don’t look sick, so I feel like people think I’m faking.  One woman Oh, I have run into this one.  A lot.  I missed two days of work this week because of asthma; on the day I came back, I swear most of the people acted like they think I was faking and not actually sick.  Then of course I was still ocughing a fair bit [until the meds kicked in ;) ], so others though I was contagious :)  *grumble* I have also run into this with professors, sometimes at great cost to my grades :( SW.

Before you buy.

Response:

– Hide quoted text — Show quoted text – Hi everyone, I’ve never wrote before but hoping to find someone who can relate. About three weeks ago, I was hospitalized with a severe asthma attack. Three different doctors told me that if I hadn’t gotten to the hospital when I did, that it could have been fatal.  I feel as though my doctors did not give me enough information when they diagnosed me with asthma and that is why this attack got so bad.  I was embarrassed to seek help because I thought,"Oh it’s just asthma."  I am 31 years old and this has changed my life.  I  have been extremely emotional since this happened. I cry almost every day.  I don’t know if it is the medication I’m on or just the reality of what could of happened.  The other problem is that I don’t look sick, so I feel like people think I’m faking.  One woman commented to me after I returned to work  "You didn’t lose any weight." I didn’t know what to say.  I wasn’t at a fat farm.  I could breath!  It was very scary.   I know other people can’t understand what that feels like, so I’m looking for help from people who have been through it themselves.  I just want to get on with my life as normal, but it has been harder emotionally for me than I thought it would be.     Has anyone else experienced these kind of emotions or should I seek professional help?

First of all, if you are on prednisone the emotionalism may be a side effect of the medication. Next, if you feel that your doctors have not been giving you the information you need, find new doctors.  And tell the new doctors that the reason you dumped the old ones is because they failed to teach you what you needed to know.   Current medical doctrine is that anybody who requires emergency treatment of the asthma should be referred to a specialist. Asthma is an ‘invisible illness’ and most people are absolutely clueless about it.  I am frequently not a nice person and will often give people an, "I think you are an idiot, but am too polite to say it look," when people make the ‘faking it’ type comments. If you want to learn about asthma and its treatment, I recommend the following book: ‘The Asthma Sourcebook’ by Francis V. Adams MD There is no place for the hyphen in our citizenship… We are a nation, not a hodge-podge of foreign nationalities. We are a people, and not a polyglot boarding house.  - Theodore Roosevelt

Response:

Yes, sadly I have found that non-asthmatics tend to act rather superior, and many openly (or covertly insinuate) comment that "it’s all in my mind,"  just emotional reactions.  The only people I’ve found to be tolerant are other asthmatics and medical professionals;  people with asthmatic family members; and those who become asthmatic.  In my office over the past 10 years, more people are becoming asthmatic because we work in a windowless, polluted building, and only then do they comprehend what asthma is.  One woman who has been especially insulting to me recently moved to a new residence, and is now commuting through a notoriously gridlocked highway corridor (I-395), which for her has added a new assault to the building’s slow and insidious assault.  Two weeks ago she came to me and described a breathing attack she had driving to work that was so paintful and frightening she had to rip off her bra to breathe and feared she wouldn’t make it to an exit "in time."  She asked me with implied new awareness, Is THAT asthma!?  I replied, I’d go to a pulmonologist and find out if I were you.  This woman gradually over the 10 years also has become reactive to the inks in the brochures we publish and all the newspapers we read, because there’s no ventilation. I have watched her become slowly more sensitive to the inks, and now with the polluted commute (and probably living in her newly constructed condo) her symptoms are  becoming acute.  People take breathing so for granted; it seems to me there’s not enough public education and press coverage about how to avoid getting asthma in these polluted times. Good luck to you  in learning  to forgive the intolerant people you meet, for  "they know not what they do" until it happens to them. If you can find a quote about a carnation, you will be a sensation!

Response:

changed my life.  I  have been extremely emotional since this happened. I cry almost every day.  I don’t know if it is the medication I’m on or

If you are on prednisone, it could be the meds.  You have also been through a scary event.  It could be both.  it could be neither. just the reality of what could of happened.  The other problem is that I don’t look sick, so I feel like people think I’m faking.  One woman

Oh, I have run into this one.  A lot.  I missed two days of work this week because of asthma; on the day I came back, I swear most of the people acted like they think I was faking and not actually sick.  Then of course I was still ocughing a fair bit [until the meds kicked in ;) ], so others though I was contagious :)  *grumble* I have also run into this with professors, sometimes at great cost to my grades :( SW.

Response:

Have you been on cortisone? That will cause emotional changes like you are having.

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- Hide quoted text — Show quoted text – Hi everyone, I’ve never wrote before but hoping to find someone who can relate. About three weeks ago, I was hospitalized with a severe asthma attack. Three different doctors told me that if I hadn’t gotten to the hospital when I did, that it could have been fatal.  I feel as though my doctors did not give me enough information when they diagnosed me with asthma and that is why this attack got so bad.  I was embarrassed to seek help because I thought,"Oh it’s just asthma."  I am 31 years old and this has changed my life.  I  have been extremely emotional since this happened. I cry almost every day.  I don’t know if it is the medication I’m on or just the reality of what could of happened.  The other problem is that I don’t look sick, so I feel like people think I’m faking.  One woman commented to me after I returned to work  "You didn’t lose any weight." I didn’t know what to say.  I wasn’t at a fat farm.  I could breath!  It was very scary.   I know other people can’t understand what that feels like, so I’m looking for help from people who have been through it themselves.  I just want to get on with my life as normal, but it has been harder emotionally for me than I thought it would be.     Has anyone else experienced these kind of emotions or should I seek professional help? alone

sounds fairly familiar to me one of the most useful thing about this group is that it reminds us just how prevalent asthma is…and we can share the information that one can only learn by being an asthmatic glad you made it through this one…having a near fatal attack did me the world of good in the long run…it’s made me savour every second of every day because I feel like I’m getting a bonus, and extra few years of life (20 so far) I understand what you mean about attitudes…I also have problems with my back…both that and the asthma can physically near disable me…so if I do things like sit on a crowded train I get all sort of dirty looks (why is that young man sitting when old people are left standing)…I explain my asthma at job interviews…if a potential employer doesn’t understand what it means then I just don’t take the job…that did used to hurt my employment prospects immensely, but I’m a sucker for trying to live up to people’s expectations so it would have been very dangerous…my last employer but one was also asthmatic, that helped no end I just stopped worrying too much about what people think…I am who I am…there’s no point agonising about it, or trying to appear to be somebody else…there are things that can help…I try to stay on top of my workload so that taking time off when I have trouble with my asthma doesn’t make me miss deadlines or cause other people extra work the emotional side of it is different for me…I was diagnosed aged 4…so for me this is normal life…but there are days when I really wish it wasn’t…fortunately they are few and far between — eric "save energy, save the environment, telecommute from bed"

Response:

Hi everyone, I’ve never wrote before but hoping to find someone who can relate. About three weeks ago, I was hospitalized with a severe asthma attack. Three different doctors told me that if I hadn’t gotten to the hospital when I did, that it could have been fatal.  I feel as though my doctors did not give me enough information when they diagnosed me with asthma and that is why this attack got so bad.  I was embarrassed to seek help because I thought,"Oh it’s just asthma."  I am 31 years old and this has changed my life.  I  have been extremely emotional since this happened. I cry almost every day.  I don’t know if it is the medication I’m on or just the reality of what could of happened.  The other problem is that I don’t look sick, so I feel like people think I’m faking.  One woman commented to me after I returned to work  "You didn’t lose any weight." I didn’t know what to say.  I wasn’t at a fat farm.  I could breath!  It was very scary.   I know other people can’t understand what that feels like, so I’m looking for help from people who have been through it themselves.  I just want to get on with my life as normal, but it has been harder emotionally for me than I thought it would be.     Has anyone else experienced these kind of emotions or should I seek professional help? alone

Response:

Pursed mouth breathing.

Question:

I was released from the hospital last Saturday, after a bout with two types of pneumonia, which put me into ARDS and onto a ventilator. Once my breathing muscles recovered enough for me to breathe on my own, they took me to a regular room.  Getting up agains was very, very hard.  My nurse took me for very, very short walks with a portable oxygen tank, and was teaching me pursed lip breathing.  Inhale one, two three, purse lips as though to whistle, breathe out one, two, three, four, five, six.  Rest.  Repeat. Walked just three steps with each cycle of breathing. The pursed lip breathing does seem to help get the stale air out. Luckily for me, I came home under my own steam, without an oxygen tank. Carolyn in Maryland – Hide quoted text — Show quoted text – It is strange but I have had asthma for fifty years and never thought about pursed lip breathing until recently when I saw it on my emphysema mailing list.  Now my asthma does not bother me much because I use serevent or albuterol inhalers.  The medicine is mainly for the emphysema.  My peak flow yesterday was 300 so that is not too bad. Here is a website, and mailing list, for more severe lung problems.  EFFORTS   at     www.emphysema.net. pursed lip breathing has several functions: first and foremost it provides some back-pressure in the airway system which keeps the damaged alveoli open a little longer allowing better gas exchange to occur.  Unfortunately in many folks the damaged area tend to not participate well in gas exchange, while the undamaged areas tend to become overdistended……both of these problems can interfere with gas exchange at the alvelar capillary level. another benefit is the fact that you are consciously giving a little rest to the acccessory muscles used in the effort of getting your next breath. Scooby RCP, EMT-P Perinatal-Pediatric Respiratory Specialist This mail is a natural product.  The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

Response:

I am asking a question here.  Does anyone have any experience with pursed mouth breathing?  That is breathing with the emphasis being on breathing out, instead of breathing in.  Pursed mouth breathing is used by people with severe emphysema, but I am wondering if it is used by anyone with asthma.

It sounds like what I do and have done almost since I was diagnosed with asthma. For me, an asthma attack means that I cannot breath OUT very well. And as long as I can’t breath out, I have no room to take in more air. So, I actively slow my breathing and intentionally breath out. I don’t know why the pursed lips, but that is what worked for me, without any suggestions. It just came naturally. I do it when I am walking, need to keep walking, and my breathing is getting hard. I also use it during asthma attacks. It just seems to help me regain control of my breathing, slow down the breathing, and return to normal. Meghan Friesians in the Northwest http://www.zoocrewphoto.com/friesian.htm

Response:

pursed lip breathing has several functions: first and foremost it provides some back-pressure in the airway system which keeps the damaged alveoli open a little longer allowing better gas exchange to occur.  Unfortunately in many folks the damaged area tend to not participate well in gas exchange, while the undamaged areas tend to become overdistended……both of these problems can interfere with gas exchange at the alvelar capillary level. another benefit is the fact that you are consciously giving a little rest to the acccessory muscles used in the effort of getting your next breath.   Scooby RCP, EMT-P Perinatal-Pediatric Respiratory Specialist This mail is a natural product.  The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

Response:

It is strange but I have had asthma for fifty years and never thought about pursed lip breathing until recently when I saw it on my emphysema mailing list.  Now my asthma does not bother me much because I use serevent or albuterol inhalers.  The medicine is mainly for the emphysema.  My peak flow yesterday was 300 so that is not too bad. Here is a website, and mailing list, for more severe lung problems.  EFFORTS   at     www.emphysema.net. – Hide quoted text — Show quoted text -pursed lip breathing has several functions: first and foremost it provides some back-pressure in the airway system which keeps the damaged alveoli open a little longer allowing better gas exchange to occur.  Unfortunately in many folks the damaged area tend to not participate well in gas exchange, while the undamaged areas tend to become overdistended……both of these problems can interfere with gas exchange at the alvelar capillary level. another benefit is the fact that you are consciously giving a little rest to the acccessory muscles used in the effort of getting your next breath.   Scooby RCP, EMT-P Perinatal-Pediatric Respiratory Specialist This mail is a natural product.  The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

Response:

I am asking a question here.  Does anyone have any experience with pursed mouth breathing?  That is breathing with the emphasis being on breathing out, instead of breathing in.  Pursed mouth breathing is used by people with severe emphysema, but I am wondering if it is used by anyone with asthma. This is not the Russian technique spoken of here occaisionally. This is not a system, but they write about it once in a while on the emphysema mailing list I am on, EFFORTS.  EFFORTS has a website at www.emphysema.net Anyone can subscribe to the mailing list if they want.  Usually people have emphysema, COPD (which includes asthma), or other lung problems when they subscribe to EFFORTS.  It is all free. There is a lot of information that you can see on the website that you can see without joining. The theory, I think, about pursed mouth breathing is that you are blowing stale air out of your lungs.  Don’t worry, the lungs seem to fill up automatically when air is blown out of your lungs.  At the very least that gives  you a respite from breathing in with a severe asthma attack.  Breathing out uses different muscles.  But I hope that there is someone at this news group that knows a little about pursed  mouth breathing.  I have only tried it once or twice.  My asthma is under control enough that it does not bother me.  I take asthma medicine for the emphysema, which is the only treatment there is.  My peak flow got up to 300 today when I began taking a little more medicine, but I could take even more medicine and still be below my medicine limits.  God Bless. Lester Tinnin

Response:

Chest pain in asthma

Question:

Kathy, I have had exactly the same thing happen to me & it put me in the emergency room. The heart turns out to be fine.  Like with you the Albuterol helps for a little while.  Actually  according to my peak flow, I was breathing ok, but the chest pain was certainly there. My doc & I found that since one of the things that brings on asthma is stress and when you are having an asthma "attack," you are certainly under stress, it can become a very viscous cycle.  He gave me some Ativan that I can put under my tongue when the Albuertol doesn’t seem to be doing the job. And guess what–when I took the Ativan (lorazepam) sublingually, within three minutes, the chest pain had stopped and I could breath–although rather exhausted, again.    You might ask your doctor about something to act as an emergency medicine to relieve the stress if the albuterol isn’t working.  After one or two pills under the tongue, you’ll know if it helps. But be sure to get an EKG to check out the heart too. Good Luck, Bob T.

– Hide quoted text — Show quoted text – Hi All – Is a chest that aches virtually constantly ‘normal’ for asthma ? Albuterol will relieve it, but only for a couple of hours.  During a flare, the chest pain intensifies to a burning sensation and feels like I’m being squeezed in half.  Breathing is extremly difficult and a trip to the Dr/ER is required. My GP (specialist initial visit isn’t until next month) brushes off my questions – tells me I’m fine.  Of course I’m fine – I’m still breathing, but maybe the asthma diagnosis isn’t correct ? TiA Kathy R.

Response:

"Non-cardiac  chest pain can be from the muscles, connective tissue , chest wall /pleura and through messages sent to various neuro receptors within the lungs" The ribs are part of the chest wall.  As many ppl suggested they may cause the pain at their articulations ( connective tissue for the most part). I do know of patients who have broken ribs coughing, however. Arthritic related disorders affecting the pulmonary system is beyond the scope of asthma but you do have my sincere sympathy as I have seen such patients really suffer. regards Deol says… – Hide quoted text — Show quoted text -You left out joint pain from your ribs. I have a problem with my arthritis causing inflammation in the lung sack. I  also learned about the joints in your throat and asthma and as usual THE HARD WAY. I am always amazed at the variety of sensations patients experience during exacerbation of asthma and other conditions such as COPD. Hopefully your doctor examined your chest with IPPA and other diagonostic tests such as a chest x-ray. ( IPPA = Inspection,percussion,palpation and auscultation) Chest x-ray was normal.  Don’t know about the rest of that. Non-cardiac  chest pain can be from the muscles, connective tissue , chest wall /pleura and through messages sent to various neuro receptors within the lungs. Do you cough a lot and have you strained connective tissue or respiratory accessory muscles in the past? I do cough – a dry hack, sometimes a lot.  The tightness does make me use every muscle available to pull air in and force it out. A widely accepted phenomenon in COPD medicine is the concept of dynamic hyperinflation. That is during an exacerbation the patient increases their respiratory frequency and this reduces the time per breath cycle for them patient to exhale. As you know asthma and COPD are obstructive respiratory disorders and reduced expiratory time may lead to air trapping and hyperinflation of the chest cavity. A hyperinflated chest is very inefficient and the normally rounded diaphragm is flattened and the rib box bows outwards and the combined effect is a very inefficient respiratory pump.  This leads to shortness of breath as the "pump" cannot keep up with the demands sent to it from the brain. In COPD medicine, our goal in therapy is to bronchodilate the patient. and often ( in some centers) to slow their breathing down and thus increases the potential expiratory time to allow the chest to "deflate"  The methods used to slow their respirations down are variable, controversial and beyond the scope of this discussion. When patients are hyperinflated, they often describe sensations such as you mentioned and I am unsure of the exact physiology, although theories are plentiful. I find that when my chest gets tight and I’m not paying attention to my breathing (ie: working, sleeping), my breathing does get shallow and probably quicker – although not panting.  When I notice this happening, I cannot take a deep breath – probably because of the trapped air from not exhaling completly.  So I take the time to force a complete exhale – using as many accessory muscles as necessary and continue to take slower deep breaths.  A dose of albuterol makes this much easier and allows regular deep breathing automatic again.  The first few times this occured, anxiety played a big roll, but I’ve become more used to it now and get it under control sooner. In asthma and occasionally COPD , we often see further problems from mucus plugging which can be severe. This also may affect the "pump" The real clincher is that anxiety often accompanies an exacerbation and this further drives up the respiratory rate and increases air trapping. Although I am a strong advocate of evidence-based medicine and in no way endorse buteyko, I think that this belief may have a basis in reducing hyperinflation/anxiety through slowed controlled breathing. I know patients who use Yoga breathing techniques to reduce anxiety and slow their breathing to good effect. It should be noted however this is a manual "reliever" and does not from my observations or evidence from the literature treat inflammation. These patients still administer rescue medications and follow a strict protocol action plan. There was little clarity in this post, I am afraid Sorry, I don’t really understand it all myself.  My asthma diagnosis was made 2 months ago and I am trying to understand all this.  Thanks very much for this information. Think about your symptoms and relate them with someone who can answer your questions face to face. Deol says… Hi All – Is a chest that aches virtually constantly ‘normal’ for asthma ? Albuterol will relieve it, but only for a couple of hours.  During a flare, the chest pain intensifies to a burning sensation and feels like I’m being squeezed in half.  Breathing is extremly difficult and a trip to the Dr/ER is required. My GP (specialist initial visit isn’t until next month) brushes off my questions – tells me I’m fine.  Of course I’m fine – I’m still breathing, but maybe the asthma diagnosis isn’t correct ? TiA Kathy R.

Response:

I have had severe chronic chest pain for about a year which is worst when I have just had a severe asthma attack. My hospital consultants have diagnosed everything from pleurisy to blood clots but the most likely explanation is from my GP who has suggested that it may be Tetse’s Syndrome. Basically this is when the cartilage at the end of the ribs becomes rough due to over working when the asthma is badly controlled, so when you breathe it ‘grates’ against the nerve endings in your chest.  Apparently the best treatment is non-steroidal anti-inflammatory drugs although unfortunately I, and many other asthmatics, am allergic to them. Obviously your chest pain may have a different cause but if the end of your ribs hurt when you press on them this diagnosis may be worth discussing with your Dr. Hope this helps. Regards, Lucy

Response:

Thanks for the info. Kathy R.

– Hide quoted text — Show quoted text – I have had severe chronic chest pain for about a year which is worst when I have just had a severe asthma attack. My hospital consultants have diagnosed everything from pleurisy to blood clots but the most likely explanation is from my GP who has suggested that it may be Tetse’s Syndrome. Basically this is when the cartilage at the end of the ribs becomes rough due to over working when the asthma is badly controlled, so when you breathe it ‘grates’ against the nerve endings in your chest.  Apparently the best treatment is non-steroidal anti-inflammatory drugs although unfortunately I, and many other asthmatics, am allergic to them. Obviously your chest pain may have a different cause but if the end of your ribs hurt when you press on them this diagnosis may be worth discussing with your Dr. Hope this helps. Regards, Lucy

Response:

When that happens to me, I often find a 2nd capsule of Theo24 (i.e., 12 hours after the first one in the evening) will stop it.  Takes about an hour to work  Also sometimes Benadryl works, and when I’m taking atropine for another purpose, I find I don’t get it at all.  And then other sometimes, if I look for an irritant I’ll find a hidden trigger—such as a newly printed color magazine or newspaper, which can be put in a plastic bag.  So, you may find a variety of solutions to try. http://community.webtv.net/CARRYNATION/ChristmasPoetry

Response:

You left out joint pain from your ribs. I have a problem with my arthritis causing inflammation in the lung sack. I  also learned about the joints in your throat and asthma and as usual THE HARD WAY.

– Hide quoted text — Show quoted text – I am always amazed at the variety of sensations patients experience during exacerbation of asthma and other conditions such as COPD. Hopefully your doctor examined your chest with IPPA and other diagonostic tests such as a chest x-ray. ( IPPA = Inspection,percussion,palpation and auscultation) Chest x-ray was normal.  Don’t know about the rest of that. Non-cardiac  chest pain can be from the muscles, connective tissue , chest wall /pleura and through messages sent to various neuro receptors within the lungs. Do you cough a lot and have you strained connective tissue or respiratory accessory muscles in the past? I do cough – a dry hack, sometimes a lot.  The tightness does make me use every muscle available to pull air in and force it out. A widely accepted phenomenon in COPD medicine is the concept of dynamic hyperinflation. That is during an exacerbation the patient increases their respiratory frequency and this reduces the time per breath cycle for them patient to exhale. As you know asthma and COPD are obstructive respiratory disorders and reduced expiratory time may lead to air trapping and hyperinflation of the chest cavity. A hyperinflated chest is very inefficient and the normally rounded diaphragm is flattened and the rib box bows outwards and the combined effect is a very inefficient respiratory pump.  This leads to shortness of breath as the "pump" cannot keep up with the demands sent to it from the brain. In COPD medicine, our goal in therapy is to bronchodilate the patient. and often ( in some centers) to slow their breathing down and thus increases the potential expiratory time to allow the chest to "deflate"  The methods used to slow their respirations down are variable, controversial and beyond the scope of this discussion. When patients are hyperinflated, they often describe sensations such as you mentioned and I am unsure of the exact physiology, although theories are plentiful. I find that when my chest gets tight and I’m not paying attention to my breathing (ie: working, sleeping), my breathing does get shallow and probably quicker – although not panting.  When I notice this happening, I cannot take a deep breath – probably because of the trapped air from not exhaling completly.  So I take the time to force a complete exhale – using as many accessory muscles as necessary and continue to take slower deep breaths.  A dose of albuterol makes this much easier and allows regular deep breathing automatic again.  The first few times this occured, anxiety played a big roll, but I’ve become more used to it now and get it under control sooner. In asthma and occasionally COPD , we often see further problems from mucus plugging which can be severe. This also may affect the "pump" The real clincher is that anxiety often accompanies an exacerbation and this further drives up the respiratory rate and increases air trapping. Although I am a strong advocate of evidence-based medicine and in no way endorse buteyko, I think that this belief may have a basis in reducing hyperinflation/anxiety through slowed controlled breathing. I know patients who use Yoga breathing techniques to reduce anxiety and slow their breathing to good effect. It should be noted however this is a manual "reliever" and does not from my observations or evidence from the literature treat inflammation. These patients still administer rescue medications and follow a strict protocol action plan. There was little clarity in this post, I am afraid Sorry, I don’t really understand it all myself.  My asthma diagnosis was made 2 months ago and I am trying to understand all this.  Thanks very much for this information. Think about your symptoms and relate them with someone who can answer your questions face to face. Deol says… Hi All – Is a chest that aches virtually constantly ‘normal’ for asthma ? Albuterol will relieve it, but only for a couple of hours.  During a flare, the chest pain intensifies to a burning sensation and feels like I’m being squeezed in half.  Breathing is extremly difficult and a trip to the Dr/ER is required. My GP (specialist initial visit isn’t until next month) brushes off my questions – tells me I’m fine.  Of course I’m fine – I’m still breathing, but maybe the asthma diagnosis isn’t correct ? TiA Kathy R.

Response:

– Hide quoted text — Show quoted text – As I stated earlier, asthma is new to me.  My hat is off to any and all who have lived with this disease for many years.  I am still learning what asthma is, how it behaves – differently for all, it seems.  I have to keep a positive attitude mainly because I don’t want to let this disease get to me. All the information and advice from this ng helps me to understand what is happening and I greatly appreciate it.  The hurried visits to my GP when the asthma flares leaves little time for much more than basic questions and answers and my initial visit to a pulmonary (?) specialist is still 3 wks away.  The info gathered here and at indicated links has been great and I have been taking notes for that initial visit. Regards, Kathy R.  - now suffering through my first cold with still out of control asthma     I’ve been suffering with a chest cold for about a month, and   the muscles in my chest and back are killing me with all that coughing.  I’ve gotten used to having these spells over the years with asthma.  I guess kathy you have to keep a positive a Before you buy.     I have to apologize, i did’nt realize you where new to this

problem.  I developed it ten years ago when i was twenty two.. I have some good news for you, which might help.  I’ve just read that a new drug that causes few or none of the side effects commonly associated with standard steroid treatment, according to a study in today’s issue of the New England Journal of Medicine.  RhuMab-E25, an intravenous drug was shown to decrease or eliminate the need for oral or inhaled steroids in patients with moderate to severe asthma by removing the allergy-causing antibody IgE from the body’s circulation. It’s supposed to be out in the next few months, i Know i’m going to give it Before you buy.

Response:

- Hide quoted text — Show quoted text – As I stated earlier, asthma is new to me.  My hat is off to any and all who have lived with this disease for many years.  I am still learning what asthma is, how it behaves – differently for all, it seems.  I have to keep a positive attitude mainly because I don’t want to let this disease get to me. All the information and advice from this ng helps me to understand what is happening and I greatly appreciate it.  The hurried visits to my GP when the asthma flares leaves little time for much more than basic questions and answers and my initial visit to a pulmonary (?) specialist is still 3 wks away.  The info gathered here and at indicated links has been great and I have been taking notes for that initial visit. Regards, Kathy R.  - now suffering through my first cold with still out of control asthma     I’ve been suffering with a chest cold for about a month, and   the muscles in my chest and back are killing me with all that coughing.  I’ve gotten used to having these spells over the years with asthma.  I guess kathy you have to keep a positive a Before you buy.     I have to apologize, i did’nt realize you where new to this problem.  I developed it ten years ago when i was twenty two.. I have some good news for you, which might help.  I’ve just read that a new drug that causes few or none of the side effects commonly associated with standard steroid treatment, according to a study in today’s issue of the New England Journal of Medicine.  RhuMab-E25, an intravenous drug was shown to decrease or eliminate the need for oral or inhaled steroids in patients with moderate to severe asthma by removing the allergy-causing antibody IgE from the body’s circulation. It’s supposed to be out in the next few months, i Know i’m going to give it Before you buy. As I stated earlier, asthma is new to me.  My hat is off to any and all who have lived with this disease for many years.  I am still learning what asthma is, how it behaves – differently for all, it seems.  I have to keep a positive attitude mainly because I don’t want to let this disease get to me. All the information and advice from this ng helps me to understand what is happening and I greatly appreciate it.  The hurried visits to my GP when the asthma flares leaves little time for much more than basic questions and answers and my initial visit to a pulmonary (?) specialist is still 3 wks away.  The info gathered here and at indicated links has been great and I have been taking notes for that initial visit. Regards, Kathy R.  - now suffering through my first cold with still out of control asthma     I’ve been suffering with a chest cold for about a month, and   the muscles in my chest and back are killing me with all that coughing.  I’ve gotten used to having these spells over the years with asthma.  I guess kathy you have to keep a positive a Before you buy.     I have to apologize, i did’nt realize you where new to this problem.  I developed it ten years ago when i was twenty two.. I have some good news for you, which might help.  I’ve just read that a new drug that causes few or none of the side effects commonly associated with standard steroid treatment, according to a study in today’s issue of the New England Journal of Medicine.  RhuMab-E25, an intravenous drug was shown to decrease or eliminate the need for oral or inhaled steroids in patients with moderate to severe asthma by removing the allergy-causing antibody IgE from the body’s circulation. It’s supposed to be out in the next few months, i Know i’m going to give it Before you buy.

Response:

As I stated earlier, asthma is new to me.  My hat is off to any and all who have lived with this disease for many years.  I am still learning what asthma is, how it behaves – differently for all, it seems.  I have to keep a positive attitude mainly because I don’t want to let this disease get to me. All the information and advice from this ng helps me to understand what is happening and I greatly appreciate it.  The hurried visits to my GP when the asthma flares leaves little time for much more than basic questions and answers and my initial visit to a pulmonary (?) specialist is still 3 wks away.  The info gathered here and at indicated links has been great and I have been taking notes for that initial visit. Regards, Kathy R.  - now suffering through my first cold with still out of control asthma – Hide quoted text — Show quoted text –     I’ve been suffering with a chest cold for about a month, and   the muscles in my chest and back are killing me with all that coughing.  I’ve gotten used to having these spells over the years with asthma.  I guess kathy you have to keep a positive a Before you buy.

Response:

I have been very "lucky" in this department.  I have has the "chest pain"…been on the treadmill…have had advanced Nuclear Imaging studies done…at the time I was having the pain…..The answer was that it was non cardiac involved…at the time. Then I have had 3 mi’s with no chest pain….go figure it out…I guess that we are all wired differently; BOB

Response:

– Hide quoted text — Show quoted text – Guess one more reply won’t hurt.  Unless an attack is more then a few moments or so, I generally get chest pains.  I think this is a result of what Colin describes as using muscles that aren’t normally used to breathe with.  Also, the area around the lungs itself most likely suffers from the ongoing inflammation of the attack. This use to scare me to the point I thought the asthma was more of a heart related problem and not so much asthma itself.  Then I discovered it was atypical for me to experience the discomfort of chest tightness, especially when experiencing a lung infection. For me, the chest tightness is the absolute worst.  It’s very painful and makes breathing very laborous. If there is concern it may be heart related then you should by all means take the tests needed to interpret this.  I was offered but have reconciled my experiences of chest pain to be asthma related as this is the only time they occur. As a precaution, my GP ordered an EKG and $ECG$.  I assume that no news is good news on those tests as I haven’t heard anything about the results. Thank you for the input. Kathy R. Best Wishes, pam     I’ve been suffering with a chest cold for about a month, and

  the muscles in my chest and back are killing me with all that coughing.  I’ve gotten used to having these spells over the years with asthma.  I guess kathy you have to keep a positive a Before you buy.

Response:

Kevin – Thanks for the reply.  I also don’t have audible wheezing – although my GP says it’s there on the inside.

If you ask your doctor he will probably tell you that you have ‘cough variant’ asthma.  This is where the primary presenting symptom is a cough rather than a wheeze. No electrons were harmed in the posting of this message.

Response:

Hi All – Is a chest that aches virtually constantly ‘normal’ for asthma ?  Albuterol will relieve it, but only for a couple of hours.  During a flare, the chest pain intensifies to a burning sensation and feels like I’m being squeezed in half.  Breathing is extremly difficult and a trip to the Dr/ER is required. My GP (specialist initial visit isn’t until next month) brushes off my questions – tells me I’m fine.  Of course I’m fine – I’m still breathing, but maybe the asthma diagnosis isn’t correct ? TiA Kathy R.

Guess one more reply won’t hurt.  Unless an attack is more then a few moments or so, I generally get chest pains.  I think this is a result of what Colin describes as using muscles that aren’t normally used to breathe with.  Also, the area around the lungs itself most likely suffers from the ongoing inflammation of the attack.   This use to scare me to the point I thought the asthma was more of a heart related problem and not so much asthma itself.  Then I discovered it was atypical for me to experience the discomfort of chest tightness, especially when experiencing a lung infection.   If there is concern it may be heart related then you should by all means take the tests needed to interpret this.  I was offered but have reconciled my experiences of chest pain to be asthma related as this is the only time they occur. Best Wishes, pam

Response:

Guess one more reply won’t hurt.  Unless an attack is more then a few moments or so, I generally get chest pains.  I think this is a result of what Colin describes as using muscles that aren’t normally used to breathe with.  Also, the area around the lungs itself most likely suffers from the ongoing inflammation of the attack. This use to scare me to the point I thought the asthma was more of a heart related problem and not so much asthma itself.  Then I discovered it was atypical for me to experience the discomfort of chest tightness, especially when experiencing a lung infection.

For me, the chest tightness is the absolute worst.  It’s very painful and makes breathing very laborous. If there is concern it may be heart related then you should by all means take the tests needed to interpret this.  I was offered but have reconciled my experiences of chest pain to be asthma related as this is the only time they occur.

As a precaution, my GP ordered an EKG and $ECG$.  I assume that no news is good news on those tests as I haven’t heard anything about the results. Thank you for the input. Kathy R. – Hide quoted text — Show quoted text – Best Wishes, pam

Response:

Linda – Thanks!  Will do, although the specialist visit is still 3 wks away. Kathy R.

– Hide quoted text — Show quoted text – Kathy, I’ve been reading a little about acid reflux. It says it can cause coughing and pain in the chest. Just a thought. You might want to ask your specialist about this. Linda

Response:

Kevin – Thanks for the reply.  I also don’t have audible wheezing – although my GP says it’s there on the inside. Kathy R.

– Hide quoted text — Show quoted text – Well I have asthma, and I get lots of chest pain, burning, cramps,etc… during flare ups (never wheezing).  I guess just another wonderful manifestation of this disease  :) -Kevin

Response:

AB- Thanks for the reply. Kathy R.

– Hide quoted text — Show quoted text – Kathy I have the same problem. I don’t have it all the time, but when I get flare ups or am having a hard day, I get the chest pain too. I don’t know if it is normal, mine has never called for a trip to the ER, but it isn’t harmful that I am aware of. HTH!!! -AB- — You can’t change the laws of physics just because they’re inconvient!! Before you buy.

Response:

Kathy, I’ve been reading a little about acid reflux. It says it can cause coughing and pain in the chest. Just a thought. You might want to ask your specialist about this. Linda – Hide quoted text — Show quoted text – I am always amazed at the variety of sensations patients experience during exacerbation of asthma and other conditions such as COPD. Hopefully your doctor examined your chest with IPPA and other diagonostic tests such as a chest x-ray. ( IPPA = Inspection,percussion,palpation and auscultation) Chest x-ray was normal.  Don’t know about the rest of that. Non-cardiac  chest pain can be from the muscles, connective tissue , chest wall /pleura and through messages sent to various neuro receptors within the lungs. Do you cough a lot and have you strained connective tissue or respiratory accessory muscles in the past? I do cough – a dry hack, sometimes a lot.  The tightness does make me use every muscle available to pull air in and force it out. A widely accepted phenomenon in COPD medicine is the concept of dynamic hyperinflation. That is during an exacerbation the patient increases their respiratory frequency and this reduces the time per breath cycle for them patient to exhale. As you know asthma and COPD are obstructive respiratory disorders and reduced expiratory time may lead to air trapping and hyperinflation of the chest cavity. A hyperinflated chest is very inefficient and the normally rounded diaphragm is flattened and the rib box bows outwards and the combined effect is a very inefficient respiratory pump.  This leads to shortness of breath as the "pump" cannot keep up with the demands sent to it from the brain. In COPD medicine, our goal in therapy is to bronchodilate the patient. and often ( in some centers) to slow their breathing down and thus increases the potential expiratory time to allow the chest to "deflate"  The methods used to slow their respirations down are variable, controversial and beyond the scope of this discussion. When patients are hyperinflated, they often describe sensations such as you mentioned and I am unsure of the exact physiology, although theories are plentiful. I find that when my chest gets tight and I’m not paying attention to my breathing (ie: working, sleeping), my breathing does get shallow and probably quicker – although not panting.  When I notice this happening, I cannot take a deep breath – probably because of the trapped air from not exhaling completly.  So I take the time to force a complete exhale – using as many accessory muscles as necessary and continue to take slower deep breaths.  A dose of albuterol makes this much easier and allows regular deep breathing automatic again.  The first few times this occured, anxiety played a big roll, but I’ve become more used to it now and get it under control sooner. In asthma and occasionally COPD , we often see further problems from mucus plugging which can be severe. This also may affect the "pump" The real clincher is that anxiety often accompanies an exacerbation and this further drives up the respiratory rate and increases air trapping. Although I am a strong advocate of evidence-based medicine and in no way endorse buteyko, I think that this belief may have a basis in reducing hyperinflation/anxiety through slowed controlled breathing. I know patients who use Yoga breathing techniques to reduce anxiety and slow their breathing to good effect. It should be noted however this is a manual "reliever" and does not from my observations or evidence from the literature treat inflammation. These patients still administer rescue medications and follow a strict protocol action plan. There was little clarity in this post, I am afraid Sorry, I don’t really understand it all myself.  My asthma diagnosis was made 2 months ago and I am trying to understand all this.  Thanks very much for this information. Think about your symptoms and relate them with someone who can answer your questions face to face. Deol says… Hi All – Is a chest that aches virtually constantly ‘normal’ for asthma ? Albuterol will relieve it, but only for a couple of hours.  During a flare, the chest pain intensifies to a burning sensation and feels like I’m being squeezed in half.  Breathing is extremly difficult and a trip to the Dr/ER is required. My GP (specialist initial visit isn’t until next month) brushes off my questions – tells me I’m fine.  Of course I’m fine – I’m still breathing, but maybe the asthma diagnosis isn’t correct ? TiA Kathy R.

Response:

Colin – Thanks for the info.  Definately looking forward to control! Kathy R.

– Hide quoted text — Show quoted text – The most likely cause is sore muscles caused by the use of ‘accessory’ muscles to assist your breathing.  Since these muscles are not designed to do this, they become sore. This is something that should go away once your asthma is brought under control. No electrons were harmed in the posting of this message.

Response:

I am always amazed at the variety of sensations patients experience during exacerbation of asthma and other conditions such as COPD. Hopefully your doctor examined your chest with IPPA and other diagonostic tests such as a chest x-ray. ( IPPA = Inspection,percussion,palpation and auscultation)

Chest x-ray was normal.  Don’t know about the rest of that. Non-cardiac  chest pain can be from the muscles, connective tissue , chest wall /pleura and through messages sent to various neuro receptors within the lungs. Do you cough a lot and have you strained connective tissue or respiratory accessory muscles in the past?

I do cough – a dry hack, sometimes a lot.  The tightness does make me use every muscle available to pull air in and force it out. – Hide quoted text — Show quoted text – A widely accepted phenomenon in COPD medicine is the concept of dynamic hyperinflation. That is during an exacerbation the patient increases their respiratory frequency and this reduces the time per breath cycle for them patient to exhale. As you know asthma and COPD are obstructive respiratory disorders and reduced expiratory time may lead to air trapping and hyperinflation of the chest cavity. A hyperinflated chest is very inefficient and the normally rounded diaphragm is flattened and the rib box bows outwards and the combined effect is a very inefficient respiratory pump.  This leads to shortness of breath as the "pump" cannot keep up with the demands sent to it from the brain. In COPD medicine, our goal in therapy is to bronchodilate the patient. and often ( in some centers) to slow their breathing down and thus increases the potential expiratory time to allow the chest to "deflate"  The methods used to slow their respirations down are variable, controversial and beyond the scope of this discussion. When patients are hyperinflated, they often describe sensations such as you mentioned and I am unsure of the exact physiology, although theories are plentiful.

I find that when my chest gets tight and I’m not paying attention to my breathing (ie: working, sleeping), my breathing does get shallow and probably quicker – although not panting.  When I notice this happening, I cannot take a deep breath – probably because of the trapped air from not exhaling completly.  So I take the time to force a complete exhale – using as many accessory muscles as necessary and continue to take slower deep breaths.  A dose of albuterol makes this much easier and allows regular deep breathing automatic again.  The first few times this occured, anxiety played a big roll, but I’ve become more used to it now and get it under control sooner. – Hide quoted text — Show quoted text – In asthma and occasionally COPD , we often see further problems from mucus plugging which can be severe. This also may affect the "pump" The real clincher is that anxiety often accompanies an exacerbation and this further drives up the respiratory rate and increases air trapping. Although I am a strong advocate of evidence-based medicine and in no way endorse buteyko, I think that this belief may have a basis in reducing hyperinflation/anxiety through slowed controlled breathing. I know patients who use Yoga breathing techniques to reduce anxiety and slow their breathing to good effect. It should be noted however this is a manual "reliever" and does not from my observations or evidence from the literature treat inflammation. These patients still administer rescue medications and follow a strict protocol action plan. There was little clarity in this post, I am afraid

Sorry, I don’t really understand it all myself.  My asthma diagnosis was made 2 months ago and I am trying to understand all this.  Thanks very much for this information. – Hide quoted text — Show quoted text – Think about your symptoms and relate them with someone who can answer your questions face to face. Deol

– Hide quoted text — Show quoted text – says… Hi All – Is a chest that aches virtually constantly ‘normal’ for asthma ? Albuterol will relieve it, but only for a couple of hours.  During a flare, the chest pain intensifies to a burning sensation and feels like I’m being squeezed in half.  Breathing is extremly difficult and a trip to the Dr/ER is required. My GP (specialist initial visit isn’t until next month) brushes off my questions – tells me I’m fine.  Of course I’m fine – I’m still breathing, but maybe the asthma diagnosis isn’t correct ? TiA Kathy R.

Response:

Well I have asthma, and I get lots of chest pain, burning, cramps,etc… during flare ups (never wheezing).  I guess just another wonderful manifestation of this disease  :) -Kevin

– Hide quoted text — Show quoted text – Hi All – Is a chest that aches virtually constantly ‘normal’ for asthma ? Albuterol will relieve it, but only for a couple of hours.  During a flare, the chest pain intensifies to a burning sensation and feels like I’m being squeezed in half.  Breathing is extremly difficult and a trip to the Dr/ER is required. My GP (specialist initial visit isn’t until next month) brushes off my questions – tells me I’m fine.  Of course I’m fine – I’m still breathing, but maybe the asthma diagnosis isn’t correct ? TiA Kathy R.

Response:

I am always amazed at the variety of sensations patients experience during exacerbation of asthma and other conditions such as COPD. Hopefully your doctor examined your chest with IPPA and other diagonostic tests such as a chest x-ray. ( IPPA = Inspection,percussion,palpation and auscultation) Non-cardiac  chest pain can be from the muscles, connective tissue , chest wall /pleura and through messages sent to various neuro receptors within the lungs. Do you cough a lot and have you strained connective tissue or respiratory accessory muscles in the past? A widely accepted phenomenon in COPD medicine is the concept of dynamic hyperinflation. That is during an exacerbation the patient increases their respiratory frequency and this reduces the time per breath cycle for them patient to exhale. As you know asthma and COPD are obstructive respiratory disorders and reduced expiratory time may lead to air trapping and hyperinflation of the chest cavity. A hyperinflated chest is very inefficient and the normally rounded diaphragm is flattened and the rib box bows outwards and the combined effect is a very inefficient respiratory pump.  This leads to shortness of breath as the "pump" cannot keep up with the demands sent to it from the brain. In COPD medicine, our goal in therapy is to bronchodilate the patient. and often ( in some centers) to slow their breathing down and thus increases the potential expiratory time to allow the chest to "deflate"  The methods used to slow their respirations down are variable, controversial and beyond the scope of this discussion. When patients are hyperinflated, they often describe sensations such as you mentioned and I am unsure of the exact physiology, although theories are plentiful. In asthma and occasionally COPD , we often see further problems from mucus plugging which can be severe. This also may affect the "pump" The real clincher is that anxiety often accompanies an exacerbation and this further drives up the respiratory rate and increases air trapping. Although I am a strong advocate of evidence-based medicine and in no way endorse buteyko, I think that this belief may have a basis in reducing hyperinflation/anxiety through slowed controlled breathing. I know patients who use Yoga breathing techniques to reduce anxiety and slow their breathing to good effect. It should be noted however this is a manual "reliever" and does not from my observations or evidence from the literature treat inflammation. These patients still administer rescue medications and follow a strict protocol action plan. There was little clarity in this post, I am afraid Think about your symptoms and relate them with someone who can answer your questions face to face. Deol says… – Hide quoted text — Show quoted text -Hi All – Is a chest that aches virtually constantly ‘normal’ for asthma ?  Albuterol will relieve it, but only for a couple of hours.  During a flare, the chest pain intensifies to a burning sensation and feels like I’m being squeezed in half.  Breathing is extremly difficult and a trip to the Dr/ER is required. My GP (specialist initial visit isn’t until next month) brushes off my questions – tells me I’m fine.  Of course I’m fine – I’m still breathing, but maybe the asthma diagnosis isn’t correct ? TiA Kathy R.

Response:

Hi All – Is a chest that aches virtually constantly ‘normal’ for asthma ?  Albuterol will relieve it, but only for a couple of hours.  During a flare, the chest pain intensifies to a burning sensation and feels like I’m being squeezed in half.  Breathing is extremly difficult and a trip to the Dr/ER is required. My GP (specialist initial visit isn’t until next month) brushes off my questions – tells me I’m fine.  Of course I’m fine – I’m still breathing, but maybe the asthma diagnosis isn’t correct ? TiA Kathy R.

Response:

Hi All – Is a chest that aches virtually constantly ‘normal’ for asthma ?  Albuterol will relieve it, but only for a couple of hours.  During a flare, the chest pain intensifies to a burning sensation and feels like I’m being squeezed in half.  Breathing is extremly difficult and a trip to the Dr/ER is required. My GP (specialist initial visit isn’t until next month) brushes off my questions – tells me I’m fine.  Of course I’m fine – I’m still breathing, but maybe the asthma diagnosis isn’t correct ?

The most likely cause is sore muscles caused by the use of ‘accessory’ muscles to assist your breathing.  Since these muscles are not designed to do this, they become sore. This is something that should go away once your asthma is brought under control. No electrons were harmed in the posting of this message.

Response:

– Hide quoted text — Show quoted text – Hi All – Is a chest that aches virtually constantly ‘normal’ for asthma ? Albuterol will relieve it, but only for a couple of hours.  During a flare, the chest pain intensifies to a burning sensation and feels like I’m being squeezed in half.  Breathing is extremly difficult and a trip to the Dr/ER is required. My GP (specialist initial visit isn’t until next month) brushes off my questions – tells me I’m fine.  Of course I’m fine – I’m still breathing, but maybe the asthma diagnosis isn’t correct ? TiA Kathy R.

Kathy I have the same problem. I don’t have it all the time, but when I get flare ups or am having a hard day, I get the chest pain too. I don’t know if it is normal, mine has never called for a trip to the ER, but it isn’t harmful that I am aware of. HTH!!! -AB- — You can’t change the laws of physics just because they’re inconvient!! Before you buy.

Response:

Epi pen

Question:

Can anyone give me information about the use of an EPI Pen?   I am moving to a remote area on the northern coast of California (near Mendocino) and hospitals are not close by….when threatened with a severe asthma attack I understand this make keep me going till I get medical help in a hospital…how viable is this idea? Julie

Response:

Can anyone give me information about the use of an EPI Pen?   I am moving to a remote area on the northern coast of California (near Mendocino) and hospitals are not close by….when threatened with a severe asthma attack I understand this make keep me going till I get medical help in a hospital…how viable is this idea?

It is viable, and actually is part of or about to be part of various wilderness medicine protocols used by trained medical personnel. OTOH, using Epi in such a manner [or even at all, really] does require training/guidance. You may wish to discuss it with your MD. SW. THIS IS NOT MEDICAL ADVICE.

Response:

Hi!    There have been a recall on some of the epi pens, please be careful.   Allergy Kits Recalled With Eprinephrine Wyeth Ayest Lab. dba American Home Products Corp. 1-800-999-9384 are recalling specific lots of Eprinephrine injection: USP 1:1000 in ML Tubex Syringe. These are used in emergency allergy kits. Some were found to be discolored and sub-potent. This can pose a health hazard for those with allergies to insect stings or certain foods. Derm/Buro Insect-Sting Treatment Kits Lot #’s: 0397, 0497, 0597, 8141, 8139, 11464, 13239. These products were distributed between June 1997 through February 1999.      I have used Epi Pens in the past and usually thereafter I go to the emergency room.  The Epi Pen for me is a life saver, usually I inject myself in the upper portion of my arm (in the middle).  Sometimes it hurts and other times it doesn’t.  Moving to a remote area is not a good idea when it comes to a person suffering from severe Asthma.  Do you have Oxygen at home?  Or if not I would suggest in getting a tank or so.  Just be careful that no one smokes cause you may have a explosion.  In order to have Oxygen where I reside ones pulsesox has to be below 80 (just don’t quote be on this number).  Insurance companies are tricky this way.  Yet if one has a different circumstance, rules can be bended.  The hospitals in the Mendocino area are: Redbud Community Hospital:      Mendocino Coast   18th Avenue & Highway 53     Clearlake, CA                   (707-994-6483)   District 700 River Drive Fort Bragg, CA (707-961-1234) Ukiah Valley Medical Center Beds:  116 1120 South Dora Street Ukiah, CA  95482 (707-462-3111) Good luck.

Response:

Can anyone give me information about the use of an EPI Pen?   I am moving to a remote area on the northern coast of California (near Mendocino) and hospitals are not close by….when threatened with a severe asthma attack I understand this make keep me going till I get medical help in a hospital…how viable is this idea? Julie

This is not a great idea unless your doctor suggested in your case. Epinephrine is a nonselective bronchodilator. Asthma is normally treated with selective beta2-agonists, like inhaled albuterol and terbutaline; these work on the beta2 receptors in the bronchial tubes to expand them. Epinephrine affects both beta-1 (heart) and beta-2 receptors (bronchial tubes). Your best bet is to follow the protocol in the Expert Panel Report 2 from the NIH, for severe exacerbations [Fig 3-8]. This is the home treatment when peak flows drop below 50% PB. Initial Treatment–Inhaled beta2 agonist: up to 3 treatments of 2-4 puffs by MDI at 20-minute intervals or single nebulizer treatment. Depending on the outcome, inhaled steroids will be increased, or/and oral steroids added or/and emergency treatment sought. Link: http://www.vh.org/Providers/ClinGuide/AsthmaIM/comp3/3-8.html  Asthma Education: Interactive Guidelines: Component 3:  Pharmacologic Therapy  Figure 3-8: Management of Asthma Exacerbations: Home Treatment* Michael W. Peterson, M.D., Associate Professor of Medicine Department of Internal Medicine The University of Iowa College of Medicine The Epi-Pen can be useful in the treatment of anaphylaxis. See: http://www.aaaai.org/professional/physicianreference/positionstatemen… The Use of Epinephrine in the Treatment of Anaphylaxis http://www.users.globalnet.co.uk/~aair/anaphylaxis.htm Anaphylaxis-Life-threatening allergy http://www.users.globalnet.co.uk/~aair/anaphylaxis.htm#EPIPEN_RECALL Ellis

Response:

latest ignorant paramedic story

Question:

A quick little good paramedic story…….a few weeks ago, my husband and I were out to a movie with friends.  These friends live in a VERY small town in Western Mass, where it is a very hard to find your way around if you don’t already know where you are going.  Well, about 1/2 way through the movie my cell phone rang (shook, actually), it was my friends mother, who was baby-sitting their little 1 1/2 year old boy.  The little guy, who is prone to croup, was having difficulty breathing.  I told her to beat feet to the hospital and went and got everyone and we met there.  The reason I didn’t tell her to call 911 is because there is no real ambulance service there…..the local police call the state police, who call a private ambulance service, who go out there……average response time is anywhere from 30 minutes to an hour.  Too long with a baby who cant breathe.  Anyway, we all got to the hospital at about the same time (we all made 40 minute drives into 15 minute drives, but that’s a whole other thread) and fortunately there was a nice woman paramedic in an ambulance by the ER entrance.  I think she was restocking. She heard the baby gasping and came flying out the back of that truck like she had been shot from a cannon :-)  "Who’s the mom?", I pointed to my friend, she grabbed the baby and shooed Lynn and her husband to the ambulance entrance.  A nurse tried to send Lynn and her husband back out to check in!  The paramedic snapped "Why don’t we get some oxygen on this baby before we worry about paperwork, eh?"  The nurse turned colors :-) .  We all retreated to the waiting room, so I didn’t see the rest, but Lynn told me later that the paramedic stayed until the baby was stable, and even brought him a teddy bear the next day!  Now that’s a caring person! Jennifer, who hopes I get that paramedic if I ever have to call an ambulance! —   http://radio.bicnet.net/users/dlandry JennyB and Bandit http://radio.bicnet.net/users/dlandry/jbandb.html

Response:

- Hide quoted text — Show quoted text – Everything in life involves compromise. Not to belittle your experiences but I believe that EMTs are well-trained and have a high degree of professionalism. Ideally every emergency should be cared for in the field by a physician trained to treat emergencies but this is impossible for many reasons. It would be even better if a specialist (pulmonologist) could be quickly directed to the site of an emergency (asthma attack). EMTs and the 911 system represent the system that our society has decided is workable, affordable and "effective-enough". Granted some docs and EMTs are not the best in their respective disciplines but we are not living in Lake Wobegon where everyone is above average. Again, you may have actually had a poor experience but the system in general works well.

Since my message was the one that originally set off this surprisingly long-lasting thread, I feel the need to begin by stating that, in general, I couldn’t agree with you more. There have probably been a dozen occasions over the past decade when I have been promptly and efficiently treated by emergency rescue crews — both EMTs and paramedics — and delivered safely (and alive) to the admitting hospital. I should probably point out, for those who may not have followed the whole thread, that I had recently moved from a city where I had received exemplary service for a number of years. Also, in that location, there was a choice of resuce services, among whom my care-giver selected and *called* the service to come to my home. Apparently, in my new location, things operate somewhat differently. My doctor’s office directed *me* to call 911 and told me that they would notify the hospital I was on the way. I do not believe that the person in charge of the crew that came represents the "above average" paraprofessional, either in general or among the local rescue squads. And I think that his behavior here indicated some problems in his attitude toward patients and his preparation for his job. I think that the first problem was that he felt he was required  to decide whether or not I *needed* to go to the emergency room. My pulmonologist had already made that decision, which had been communicated to the service when the call was placed. His second problem was that his understanding of asthma is not really sufficient to enable him to make that assessment. His third problem was that his manner toward clients is confrontational and arrogant. His question to me (after listening to my back waistline, where I wasn’t wheezing) was "What makes you think you have asthma?" This was said in a sarcastic tone. He was definitely not from Lake Wobegon. Having said this, I believe that if the system is to work the way it should, patients and doctors need to make it clear to rescue services and to their clients when things do not go well, and why. And the responses here on this forum seem to indicate that too often things do not go as well as they should. I really don’t want to continue to discuss the incident here. I have communicated with the people responsible for the training and monitoring of this individual, and am satisfied that I was heard and my opinion respected. (Probably reinforced by the fact that several weeks later and home from the hospital, I am still wearing an IV.) But I *do* want to encourage other asthmatics to insist on their right to be respected and listened to and treated with dignity by *all* medical providers — especially by those who sometimes can hold their very survival at stake. Emily Knit a hug, crochet a cuddle, sew a smile. http://www.newbornsinneed.org

Response:

Not only am I asthmatic but also a medical assistant.  My horror story about paramedics has me baffled as to their assessment and classifications of emergencies. On one ocassion I had blacked out and hit my head, resulting in severe brusing of the face, especially around the eye in a matter of a few minutes.  I was slightly confused and 911 was called.  On that trip to the ER I was transported under emergency, lights sereins and all. My next experience with the same paramedics was during a severe asthma attack that was not responding to albuterol mdi.  I could barely breathe at all, there was almost no air movement and I was cyanotic.  The paramedics started an IV, put me on O2, and transported me to the ER as a code green which is not "emergency" conditions…my husband could have driven me to the hospital faster than the paramedics did.

 I’ve run into the same thing.  They just don’t seem to take it as seriously as other injuries.  I have, however, found that if you go in with the squad instead of having your mate take you in, you get faster attention.  Our local ER has been going downhill for several years.  A while back, I was taken in by my husband with severe abdominal pains.  He took me directly in the ER entrance.  The nurse there actually put me in a wheel chair, SHOVED me back OUTSIDE and told my husband to take me around to the main entrance so I could ’sign’ in.  I was in incredible pain, he had to drag me around in this wheel chair over rough concrete to the sign-in window.  I just wish it wasn’t so far to the next hospital! Sue Smoke Often Die Young

Response:

Hi All,           I am sorry so many of you have had such bad experience with BLS and ALS help. I for one have had a great experience with both my local volunteer fire dept. EMT’s and the local paramedics. About 2 years ago I awoke in the " astmatic time frame " about 3 AM. I coughed a couple of times and went right to the worse asthma attack of my life. Now I have had asthma for about 48 years at that time. I struggled to get to the phone and dial 911, at this time where I live it went straight to the State Police. I gasped out my name and address and told them what was happening. In about 5 minutes the Firemen arrived and in about 10 minutes the Paramedics. The Fire EMT’s did all they could to reassure me, that other help was on the way. The tried to give me o2 but I was very scared to let them put a mask over my face. So they just used the hose to spray o2 in my face. When the Paramedics arrived the also assured me that I was going to be ok and started to administer meds…….Then off to the ER. At no time was I treated with anything other then concern and kindness. They all acted in a very professional manner. I just wanted to offer another side to the coin. Regards, — " I always do what the voices in my head tell me."

– Hide quoted text — Show quoted text – Not only am I asthmatic but also a medical assistant.  My horror story about paramedics has me baffled as to their assessment and classifications of emergencies. …my husband could have driven me to the hospital faster than the paramedics did.  I’ve run into the same thing. Sue Everything in life involves compromise. Not to belittle your experiences but I believe that EMTs are well-trained and have a high degree of professionalism. Ideally every emergency should be cared for in the field by a physician trained to treat emergencies but this is impossible for many reasons. It would be even better if a specialist (pulmonologist) could be quickly directed to the site of an emergency (asthma attack). EMTs and the 911 system represent the system that our society has decided is workable, affordable and "effective-enough". Granted some docs and EMTs are not the best in their respective disciplines but we are not living in Lake Wobegon where everyone is above average. Again, you may have actually had a poor experience but the system in general works well.

Response:

Not only am I asthmatic but also a medical assistant.  My horror story about paramedics has me baffled as to their assessment and classifications of emergencies. On one ocassion I had blacked out and hit my head, resulting in severe brusing of the face, especially around the eye in a matter of a few minutes.  I was slightly confused and 911 was called.  On that trip to the ER I was transported under emergency, lights sereins and all. My next experience with the same paramedics was during a severe asthma attack that was not responding to albuterol mdi.  I could barely breathe at all, there was almost no air movement and I was cyanotic.  The paramedics started an IV, put me on O2, and transported me to the ER as a code green which is not "emergency" conditions…my husband could have driven me to the hospital faster than the paramedics did.

Response:

I’d tend to agree with what Emily just said. Although I am dealing with infant asthma (in my son). His condition is quite severe and he does NOT wheeze. In fact if I hear wheezing usually it is way tooo late to do anything at home and it is time to head off to ther ER. He generally pants and although I hear no wheezing when I press my head to his chest I do sometimes hear a sort of scraping sound which when amplified may be a wheeze….though usually when we go down to the ER it is the O2 sap that tells them he is in trouble. (As he usually pants when he has attacks.) I hope this helps…I really don’t know what it is with the wheeze bit, I think it is how you feel which should be the deciding factor…not the wheeze. Vicky – Hide quoted text — Show quoted text – Lisa, medical professionals and paraprofessionals *should* know that it can still be asthma if it don’t wheeze. Some asthmatics hardly ever wheeze. In fact, the lack of wheezing can indicate a very serious condition, as you suggest.Most asthmatics don’t wheeze way down below the beltline, which is where my paramedic was listening. I don’t think my lungs go all the way to my coccyx. However, some people *think* they know and need to be better educated. Emily I have one question to the ignorant medical professionals.  When I have a severe asthma attack and put a stethoscope to my lungs, depnding on the severity of the attack, I either hear air passing through my lungs or don’t hear air passing through the different sections of my lungs. Whether a wheeze is present or not, air flow in the lungs should be the decicing factor, along with the other medical factors, correct?  One can sometimes fake out peak flows and PFT’s, but, I’m not too sure about breathe sounds in the lungs.  The lower base of my right lung, from the costophrenic (spelling) angle to the strenum area is always the first to stop passing air.  The more of the lung that stops the flow of air the less of a wheeze I get.  This is quite easy to hear or not hear as the case maybe (through a stethoscope).  And stopping breathe sounds is something I feel can’t be faked.  So why all the focus on the wheeze of the patient and not the patient’s overall situation, symptoms, and signs?  O.K. 2 questions. — Lisa M. DeSavage Hinsbar Laboratories, Inc. www.hinsbarlabs.com — Knit a hug, crochet a cuddle, sew a smile. http://www.newbornsinneed.org

Response:

Sorry to reply to my own message, but I just discovered an attribution error. I am the one who wrote about the "jackbooted" paramedics. I inadvertently left R. Bishop’s name at the beginning instead of moving it down to precede R. Bishop’s quoted remarks. I have now moved it where it belonged. Sorry for any misunderstandings that may have occurred. By the way, we had the rescue people back this morning for a resident who had fallen. Different crew. I was sent to direct them to the victim. Wearing my fanny pack and IV, I spoke to the team leader about my experience with his co-worker who was convinced that I didn’t have asthma + pneumonia and didn’t really need to go the the emergency room. Interesting. As soon as I described the incident, he knew exactly who the person was. Seems there is a little attitude problem there. This team encouraged me to write a letter to the supervisor. I intend to do so. Emily   – Hide quoted text — Show quoted text – A similar thing happened to me just a few months ago. It was my first encounter with the local jackbooted paramedics I described in an earlier message. I was loaded into the ambulance (wide awake) and they were told several times by several people which hospital I was headed for. A few minutes later, I realized that they were going in exactly the opposite direction and asked them what route they were taking to my hospital. They said, "Oh, we just assumed that you were going to Hospital X." Then they had to do some backtracking, which didn’t make them happy at all. Furthermore, they seemed not to know the easiest way to go to *my* hospital. I made a suggestion based on my 46 years’ experience of the neighborhood, and it was *not* a tactful thing to have done. So I left them alone to do it their way, and it took almost half an hour longer than it needed to. Worse than cab drivers. Fortunately, I wasn’t dead when we got there. Emily  Many years ago, a friend was injured in a farm accident.  He was from out of the area, the local hospital was just not equipped to deal with his injuries so he was to be transported to the hospital in the city where he lived.  Just by chance I decided he needed a familiar face along for the ride since he was semi-conscious and climbed in the ambulance. We started out down the road and I immediately noticed they were heading SOUTH instead of north toward the city where he lived.  I asked where we were going and they said to X hospital.  I responded in Y city?  They said NO, in Z city!  They were taking him to a hospital in a city in the wrong direction!  He would have ended up in a hospital over 100 miles from where he was supposed to go!!!! They hadn’t even verified WHERE they were taking him! Sue Smoke Often Die Young — Knit a hug, crochet a cuddle, sew a smile. http://www.newbornsinneed.org

– Knit a hug, crochet a cuddle, sew a smile. http://www.newbornsinneed.org

Response:

<snip The term jackbooted is offensive, no matter how ignorant they were……

<snip But, scooby, that’s what he was actually wearing! And he stood with that swagger in the middle of the room in those big black boots and lectured us. I didn’t make that up. And HE was offensive to me and to the apartment manager who was with me, and he made derisory remarks about how doctors always tell their patients to call 911 when they really shouldn’t. I have learned since then from the regular crew that this fellow was only sent on the call because they wereout on another call and that they have had problems with him all along. Some people just have a bad attitude. And they probably shouldn’t be picking up patients. I don’t think he is in any way typical of paramedics. I think he is in the wrong job. But it is scary when you are at the mercy of someone like that. Emily Knit a hug, crochet a cuddle, sew a smile. http://www.newbornsinneed.org

Response:

Well I have to wade into this one as I am not only a Respiratory Therapist, I am a Paramedic.  I have been teaching in both professions for 15 years.   The term jackbooted is offensive, no matter how ignorant they were……that being aside, The education that both professions receive (not unlike medical or nursing school) is only as good as the quality of the instructor and the clinical surroundings in which to integrate the didactic knowlege. The rule of thumb here is that as the attack progresses, airflow diminishes and therefore a decrease in total lung sounds and wheezing in particular will be present.  The best indicator is the patient themselves, a good pulse-oximeter reading and capnography which may well show an elevated CO2 level.  At this point it doesn’t matter whether or not you hear wheezes, the administration of nebulizer treatments is warranted (along with toher drugs).  An improvement in clinical status will result in increased airflow, and wheezing will again become audible. To those uninformed pre-hospital care providers I would suggest a little time being spent on reviewing available literature and further clinical experience. Scooby RCP, EMT-P Perinatal-Pediatric Respiratory Specialist This mail is a natural product.  The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

Response:

Scooby, What a breath of fresh air!  So, can we call you when we need emergency medical assistance??  <smile Couldn’t resist… Ash http://www.angelfire.com/tn/Ashleigh1976/index.html Try smiling, it won’t kill you and might even brighten your day.

Response:

– Hide quoted text — Show quoted text – <snip The term jackbooted is offensive, no matter how ignorant they were…… <snip But, scooby, that’s what he was actually wearing! And he stood with that swagger in the middle of the room in those big black boots and lectured us. I didn’t make that up. And HE was offensive to me and to the apartment manager who was with me, and he made derisory remarks about how doctors always tell their patients to call 911 when they really shouldn’t. I have learned since then from the regular crew that this fellow was only sent on the call because they wereout on another call and that they have had problems with him all along. Some people just have a bad attitude. And they probably shouldn’t be picking up patients.

No ‘probably’ about it.  He should be outa there.  And I hope this happens very soon.  Eventually, someone is going to be badly neglected. I don’t think he is in any way typical of paramedics. I think he is in the wrong job.

I totally agree.  A couple of years ago, I had very serious abdominal surgery. I had extremely bad nursing care while I was in the local hospital.  The elderly woman who was in the other bed in the room was neglected and I complained, trying to get the nurses to DO something.  The woman was being fed through a stomach tube and the nurse would be hours late with her feeding, hours late with her medications.  The woman’s family was afraid to complain because they were afraid the circumstances would get worse. I was unable to get out of my bed and I tried making verbal complaints.  The only response I received was to have a nurse come raging into the room, shake her finger at me, thump her fist on my pillow and tell me to keep my nose out of the care given to my roommate.  I was totally enfuriated but when at the mercy of these kind of people who control the pain medications, I decided the only sensible thing to do was keep my mouth shut and concentrate on getting better so I could Get Out Of There. I also kept being given the wrong food tray, and I had to keep a very close eye on my own medication schedule so I could make sure *I* got the right meds at the right intervals. But it is scary when you are at the mercy of someone like that.

It’s TERRIFYING.  And I know it will be a cold day in Hell before ANYONE gets me back to the local surgical ward ever again. Emily Knit a hug, crochet a cuddle, sew a smile. http://www.newbornsinneed.org

Sue Smoke Often Die Young

Response:

– Hide quoted text — Show quoted text – I have had my share of incompetent medical personnel (not) treating me.  My biggest problem is that I basically don’t wheeze during an asthma attack — if I wheeze at all it is on the way *out* of the attack, and it is minimal, maybe lasting only a couple of minutes if even that. The "you’re not wheezing so you aren’t too bad/don’t have asthma" mentality is rather common, I have found, whether on the street on the part of an EMT/paramedic, or in the ER on the part of a nurse or PA or MD…  Though a PulseOx reading usually cures them of their stupidity [at least enough for them to TREAT me], it shouldn’t have to come to that to make them clue in.  Some serious educaiton is obviously needed… I acutally had an allergist tell me this once.  When I protested and told him that 2 other asthma/allergy specialists had diagnosed my astma, that I very rarely wheeze, and since I wasn’t currently in any distress didn’t expect to be wheezing anyhow,  he allowed me to take a puff of ventolin & take the breathing test again–but said that since there wasn’t a significant change I obviously didn’t have asthma.  Needless to say that was the first & last appointment with him.  4 weeks later at my appointment with the next allergist to check out  (after our insurance changed & we had to find new drs w/in the plan) I got a lecutre for not taking bettercare of myself since her readings indicated that my small airway capacity was only at 85%. Lesa

I went to an allergist for years, no change in the repeated attacks.  Finally, I went to a pulmonary specialist and was prescribed the proper medications. Seems the allergist hadn’t prescribed ANY theophyllyn (which helped me greatly) and the inhaler I was using wasn’t effective for me so I needed a different one.  The pulmonary specialist was a partner of the allergist and he was appalled that his partner had not transferred me over to him sooner.   They broke up the partnership soon afterwards. Sue Smoke Often Die Young

Response:

A similar thing happened to me just a few months ago. It was my first encounter with the local jackbooted paramedics I described in an earlier message. I was loaded into the ambulance (wide awake) and they were told several times by several people which hospital I was headed for. A few minutes later, I realized that they were going in exactly the opposite direction and asked them what route they were taking to my hospital. They said, "Oh, we just assumed that you were going to Hospital X." Then they had to do some backtracking, which didn’t make them happy at all. Furthermore, they seemed not to know the easiest way to go to *my* hospital. I made a suggestion based on my 46 years’ experience of the neighborhood, and it was *not* a tactful thing to have done. So I left them alone to do it their way, and it took almost half an hour longer than it needed to. Worse than cab drivers. Fortunately, I wasn’t dead when we got there. Emily – Hide quoted text — Show quoted text –  Many years ago, a friend was injured in a farm accident.  He was from out of the area, the local hospital was just not equipped to deal with his injuries so he was to be transported to the hospital in the city where he lived.  Just by chance I decided he needed a familiar face along for the ride since he was semi-conscious and climbed in the ambulance. We started out down the road and I immediately noticed they were heading SOUTH instead of north toward the city where he lived.  I asked where we were going and they said to X hospital.  I responded in Y city?  They said NO, in Z city!  They were taking him to a hospital in a city in the wrong direction!  He would have ended up in a hospital over 100 miles from where he was supposed to go!!!! They hadn’t even verified WHERE they were taking him! Sue Smoke Often Die Young

– Knit a hug, crochet a cuddle, sew a smile. http://www.newbornsinneed.org

Response:

Fellow asthmatics:  I am an RN and have no idea how paramedics are trained but I do remember being taught "the asthmatic personality"  I was and still am livid at this classification.  I have been an asthmatic for the last 22 years of my 47 years of my life.  There have been times when I have driven myself to the ER when the wheezing had subsided and I was moving almost no air AND my pulse oximetry reading would still be 93% . I would be told just t calm down. and that I was just making it worse.  Bull shit-  This is not a personality trait but a biological function that throws our body’s response to an allergen or evironmental stressor into Overdrive and calming down is not the problem.  I know what happens to me when I suffer an attack  and even tho it was terrifying the first serious attack it takes medication and knowing that it is available in an ambulance or ER will register in our brains but not affect the bronchial lining.  Any paramedicic that doubts a patient is not professional and is putting a life in danger and needs to have an incident report written-he needs inservive and or sesitivity training. Hey- it’s not like we’re asking for morphine just a little epi or susprine or aersol rx maybe a aminophylline drip.  I had a heated discusson with one of my hospital’s respiratory therapists concerning the "anxiety induced " attack in a newly diagnosed 22 year old pregnant woman–I made my point and hopefully changed his oppinion. Peace, Mary

Response:

– Hide quoted text — Show quoted text – A couple of weeks ago, I was in severe respiratory distress and running a temp of 102 — relapse of pneumonia. My pulmonologist told me to call 911 NOW and he would alert the emergency room that I was on the way. Well, the jackbooted paramedics came swaggering in, and one put his stethescope on the back of my waistline and declared that I was clear as a bell. Then he said to me "Whoever told you that you have asthma???" <snip I have two stories that I’m not sure can beat that, but here goes: Many years ago, I was involved in a somewhat serious bicycle accident — since I could not transport myself and was pretty banged up, an ambulance was called.  I was badly shaken up and in pretty bad pain, having slid down the road, bare legged, for quite a distance, and had pieces of road embedded in my left knee and calf. The ambulance arrived and got me settled in for the ride.  I had a friend with me.  My father had been called to meet us at the hospital (approximately one mile away).  As I lay in the back, still a little hysterical, all of sudden I looked up and out the window, and said, "Where hospital?"  (I don’t know which hospital HE thought he was going to, but it wasn’t the one he was instructed to go to, and where my father was waiting. And, it sure wasn’t the closest hospital.) My uninjured, nonhysterical friend, alerted to the problem, then instructed the driver on how to proceed to the hospital, where my father was waiting when we arrived. Story two:  Fast forward quite a few years.  I was home, fairly out a ways in the country, with my 14-month-old child.  My husband was in an all-day seminar away from his office.  I had been planning another pregnancy, and thought I was pregnant, but it was still too soon to tell. Rather suddenly, I doubled over in severe abdominal pains.  With no one close by to drive me to the hospital and my husband unreachable, I called an ambulance, and then a friend of mine in town to meet me at the hospital to care for my small son. The ambulance arrived, bundled me and my small child up, and headed toward the hospital.  I was in pretty severe pain, and (suspecting I was pregnant) had a lot of fear and worry. Yet, in my pain and fear, I somehow noticed that the ambulance driver had taken the wrong fork in the road.  I put my head up and mentioned to the driver that he had taken a wrong turn.  He insisted that the way we were going was quicker.  No amount of argument would persuade him — even tho I knew both routes like the back of my hand. To make a long story short (and I am NOT exaggerating), he took a route which was 17 MILES LONGER than the other one to get me to the hospital! SEVENTEEN MILES!!!!! There were other irregularities in the ride, but when I got the bill, I called up the ambulance service and gave them a piece of my mind and said I wasn’t paying. BTW, I was pregnant, and everything turned out well in the end.

 Many years ago, a friend was injured in a farm accident.  He was from out of the area, the local hospital was just not equipped to deal with his injuries so he was to be transported to the hospital in the city where he lived.  Just by chance I decided he needed a familiar face along for the ride since he was semi-conscious and climbed in the ambulance.   We started out down the road and I immediately noticed they were heading SOUTH instead of north toward the city where he lived.  I asked where we were going and they said to X hospital.  I responded in Y city?  They said NO, in Z city!  They were taking him to a hospital in a city in the wrong direction!  He would have ended up in a hospital over 100 miles from where he was supposed to go!!!! They hadn’t even verified WHERE they were taking him! Sue Smoke Often Die Young

Response:

– Hide quoted text — Show quoted text – I have had my share of incompetent medical personnel (not) treating me.  My biggest problem is that I basically don’t wheeze during an asthma attack — if I wheeze at all it is on the way *out* of the attack, and it is minimal, maybe lasting only a couple of minutes if even that. The "you’re not wheezing so you aren’t too bad/don’t have asthma" mentality is rather common, I have found, whether on the street on the part of an EMT/paramedic, or in the ER on the part of a nurse or PA or MD…  Though a PulseOx reading usually cures them of their stupidity [at least enough for them to TREAT me], it shouldn’t have to come to that to make them clue in.  Some serious educaiton is obviously needed… I acutally had an allergist tell me this once.  When I protested and told

him that 2 other asthma/allergy specialists had diagnosed my astma, that I very rarely wheeze, and since I wasn’t currently in any distress didn’t expect to be wheezing anyhow,  he allowed me to take a puff of ventolin & take the breathing test again–but said that since there wasn’t a significant change I obviously didn’t have asthma.  Needless to say that was the first & last appointment with him.  4 weeks later at my appointment with the next allergist to check out  (after our insurance changed & we had to find new drs w/in the plan) I got a lecutre for not taking bettercare of myself since her readings indicated that my small airway capacity was only at 85%. Lesa

Response:

A couple of weeks ago, I was in severe respiratory distress and running a temp of 102 — relapse of pneumonia. My pulmonologist told me to call 911 NOW and he would alert the emergency room that I was on the way. Well, the jackbooted paramedics came swaggering in, and one put his stethescope on the back of my waistline and declared that I was clear as a bell. Then he said to me "Whoever told you that you have asthma???"

<snip I have two stories that I’m not sure can beat that, but here goes: Many years ago, I was involved in a somewhat serious bicycle accident — since I could not transport myself and was pretty banged up, an ambulance was called.  I was badly shaken up and in pretty bad pain, having slid down the road, bare legged, for quite a distance, and had pieces of road embedded in my left knee and calf. The ambulance arrived and got me settled in for the ride.  I had a friend with me.  My father had been called to meet us at the hospital (approximately one mile away).  As I lay in the back, still a little hysterical, all of sudden I looked up and out the window, and said, "Where hospital?"  (I don’t know which hospital HE thought he was going to, but it wasn’t the one he was instructed to go to, and where my father was waiting. And, it sure wasn’t the closest hospital.) My uninjured, nonhysterical friend, alerted to the problem, then instructed the driver on how to proceed to the hospital, where my father was waiting when we arrived. Story two:  Fast forward quite a few years.  I was home, fairly out a ways in the country, with my 14-month-old child.  My husband was in an all-day seminar away from his office.  I had been planning another pregnancy, and thought I was pregnant, but it was still too soon to tell. Rather suddenly, I doubled over in severe abdominal pains.  With no one close by to drive me to the hospital and my husband unreachable, I called an ambulance, and then a friend of mine in town to meet me at the hospital to care for my small son. The ambulance arrived, bundled me and my small child up, and headed toward the hospital.  I was in pretty severe pain, and (suspecting I was pregnant) had a lot of fear and worry. Yet, in my pain and fear, I somehow noticed that the ambulance driver had taken the wrong fork in the road.  I put my head up and mentioned to the driver that he had taken a wrong turn.  He insisted that the way we were going was quicker.  No amount of argument would persuade him — even tho I knew both routes like the back of my hand. To make a long story short (and I am NOT exaggerating), he took a route which was 17 MILES LONGER than the other one to get me to the hospital! SEVENTEEN MILES!!!!! There were other irregularities in the ride, but when I got the bill, I called up the ambulance service and gave them a piece of my mind and said I wasn’t paying. BTW, I was pregnant, and everything turned out well in the end.

Response:

– Hide quoted text — Show quoted text – I have one question to the ignorant medical professionals.  When I have a severe asthma attack and put a stethoscope to my lungs, depnding on the severity of the attack, I either hear air passing through my lungs or don’t hear air passing through the different sections of my lungs. Whether a wheeze is present or not, air flow in the lungs should be the decicing factor, along with the other medical factors, correct?  One can sometimes fake out peak flows and PFT’s, but, I’m not too sure about breathe sounds in the lungs.  The lower base of my right lung, from the costophrenic (spelling) angle to the strenum area is always the first to stop passing air.  The more of the lung that stops the flow of air the less of a wheeze I get.  This is quite easy to hear or not hear as the case maybe (through a stethoscope).  And stopping breathe sounds is something I feel can’t be faked.  So why all the focus on the wheeze of the patient and not the patient’s overall situation, symptoms, and signs?  

Because most physicians aren’t properly trained in treatment of asthma.  Even ER specialists get only a brief training module.  And, both of those types of training emphasize wheezing. Chris Owens

Response:

Lisa, medical professionals and paraprofessionals *should* know that it can still be asthma if it don’t wheeze. Some asthmatics hardly ever wheeze. In fact, the lack of wheezing can indicate a very serious condition, as you suggest.Most asthmatics don’t wheeze way down below the beltline, which is where my paramedic was listening. I don’t think my lungs go all the way to my coccyx. However, some people *think* they know and need to be better educated.

I also generally don’t wheeze.  But I get Very Tight and the EMTs around here know what to listen for.  I’d suggest that the EMT in question needs a bit more training. Sue – Hide quoted text — Show quoted text -Emily I have one question to the ignorant medical professionals.  When I have a severe asthma attack and put a stethoscope to my lungs, depnding on the severity of the attack, I either hear air passing through my lungs or don’t hear air passing through the different sections of my lungs. Whether a wheeze is present or not, air flow in the lungs should be the decicing factor, along with the other medical factors, correct?  One can sometimes fake out peak flows and PFT’s, but, I’m not too sure about breathe sounds in the lungs.  The lower base of my right lung, from the costophrenic (spelling) angle to the strenum area is always the first to stop passing air.  The more of the lung that stops the flow of air the less of a wheeze I get.  This is quite easy to hear or not hear as the case maybe (through a stethoscope).  And stopping breathe sounds is something I feel can’t be faked.  So why all the focus on the wheeze of the patient and not the patient’s overall situation, symptoms, and signs?  O.K. 2 questions. — Lisa M. DeSavage Hinsbar Laboratories, Inc. www.hinsbarlabs.com — Knit a hug, crochet a cuddle, sew a smile. http://www.newbornsinneed.org

Smoke Often Die Young

Response:

I have one question to the ignorant medical professionals.  When I have a severe asthma attack and put a stethoscope to my lungs, depnding on the severity of the attack, I either hear air passing through my lungs or don’t hear air passing through the different sections of my lungs. Whether a wheeze is present or not, air flow in the lungs should be the decicing factor, along with the other medical factors, correct?  One can sometimes fake out peak flows and PFT’s, but, I’m not too sure about breathe sounds in the lungs.  The lower base of my right lung, from the costophrenic (spelling) angle to the strenum area is always the first to stop passing air.  The more of the lung that stops the flow of air the less of a wheeze I get.  This is quite easy to hear or not hear as the case maybe (through a stethoscope).  And stopping breathe sounds is something I feel can’t be faked.  So why all the focus on the wheeze of the patient and not the patient’s overall situation, symptoms, and signs?  O.K. 2 questions. — Lisa M. DeSavage Hinsbar Laboratories, Inc. www.hinsbarlabs.com

Response:

Lisa, medical professionals and paraprofessionals *should* know that it can still be asthma if it don’t wheeze. Some asthmatics hardly ever wheeze. In fact, the lack of wheezing can indicate a very serious condition, as you suggest.Most asthmatics don’t wheeze way down below the beltline, which is where my paramedic was listening. I don’t think my lungs go all the way to my coccyx. However, some people *think* they know and need to be better educated. Emily – Hide quoted text — Show quoted text – I have one question to the ignorant medical professionals.  When I have a severe asthma attack and put a stethoscope to my lungs, depnding on the severity of the attack, I either hear air passing through my lungs or don’t hear air passing through the different sections of my lungs. Whether a wheeze is present or not, air flow in the lungs should be the decicing factor, along with the other medical factors, correct?  One can sometimes fake out peak flows and PFT’s, but, I’m not too sure about breathe sounds in the lungs.  The lower base of my right lung, from the costophrenic (spelling) angle to the strenum area is always the first to stop passing air.  The more of the lung that stops the flow of air the less of a wheeze I get.  This is quite easy to hear or not hear as the case maybe (through a stethoscope).  And stopping breathe sounds is something I feel can’t be faked.  So why all the focus on the wheeze of the patient and not the patient’s overall situation, symptoms, and signs?  O.K. 2 questions. — Lisa M. DeSavage Hinsbar Laboratories, Inc. www.hinsbarlabs.com

– Knit a hug, crochet a cuddle, sew a smile. http://www.newbornsinneed.org

Response:

– Hide quoted text — Show quoted text – I have had my share of incompetent medical personnel (not) treating me.   <snip  Some serious educaiton is obviously needed… That said, I have also had some truely awesome care by some REALLY GOOD medical personnel, from EMTs to MDs. <snip, again So have I. But the thing that makes this sort of scary is that I have now moved in retirement to a different part of the country, and based on my two experiences since coming here, this is typical of the particular emergency service that I will now have to deal with. There is not, unfortunately, a choice of emergency ambulance services — we get the city Fire Dept. rescue or nothing. And they really ARE jerks. However, my friends who live just across the line in the next town have had nothing but good experiences with their crews. I think it’s an attitude problem here. And, in all fairness, I’ll have to say that many years ago in this same city members of the same fire department put in heroic efforts to save my mother’s life in a similar situation. There ARE good people out there.  And for those who aren’t good, a letter in the very least is well-deserved, and even needed — one day it might just save someone’s life… SW. I thoroughly agree, and that is why I plan to write a well-thought-out letter to the heads of the service. I may even see to what extent I can get my wonderful pulmonological group involved to raise consciousness a bit.

You could also ask the service head to consider updating the squad’s knowledge on asthma.  Unfortunate experience on your part.  I’ve generally had great luck with my local squad, but then I live in an area where asthma is quite common.  Sometimes our local ER will have several of us in there at the same time! When you are on first name basis with the ER nurses, you know you are there too often! Sue Emily Knit a hug, crochet a cuddle, sew a smile. http://www.newbornsinneed.org

"It was said she held a grudge until it died of old age and then had it stuffed and mounted."                              David Weber (ten points to anyone who remembers the title of the book)

Response:

I have had my share of incompetent medical personnel (not) treating me.  

<snip   Some serious educaiton is obviously needed… That said, I have also had some truely awesome care by some REALLY GOOD medical personnel, from EMTs to MDs.

<snip, again So have I. But the thing that makes this sort of scary is that I have now moved in retirement to a different part of the country, and based on my two experiences since coming here, this is typical of the particular emergency service that I will now have to deal with. There is not, unfortunately, a choice of emergency ambulance services — we get the city Fire Dept. rescue or nothing. And they really ARE jerks. However, my friends who live just across the line in the next town have had nothing but good experiences with their crews. I think it’s an attitude problem here. And, in all fairness, I’ll have to say that many years ago in this same city members of the same fire department put in heroic efforts to save my mother’s life in a similar situation. There ARE good people out there.  And for those who aren’t good, a letter in the very least is well-deserved, and even needed — one day it might just save someone’s life… SW.

I thoroughly agree, and that is why I plan to write a well-thought-out letter to the heads of the service. I may even see to what extent I can get my wonderful pulmonological group involved to raise consciousness a bit. Emily Knit a hug, crochet a cuddle, sew a smile. http://www.newbornsinneed.org

Response:

I have had my share of incompetent medical personnel (not) treating me.  My biggest problem is that I basically don’t wheeze during an asthma attack — if I wheeze at all it is on the way *out* of the attack, and it is minimal, maybe lasting only a couple of minutes if even that. The "you’re not wheezing so you aren’t too bad/don’t have asthma" mentality is rather common, I have found, whether on the street on the part of an EMT/paramedic, or in the ER on the part of a nurse or PA or MD…  Though a PulseOx reading usually cures them of their stupidity [at least enough for them to TREAT me], it shouldn’t have to come to that to make them clue in.  Some serious educaiton is obviously needed… That said, I have also had some truely awesome care by some REALLY GOOD medical personnel, from EMTs to MDs.  From my current MD who actually *listens* to me and fully acknowledges that I know what is going on with my body better than anyone else, to the paramedic [who was also my instructor for the course I was taking at the time] that came to my assistance last week during a stubborn asthma attack, and who began with "I know you don’t wheeze, but I want to listen to your lungs anyway"… There ARE good people out there.  And for those who aren’t good, a letter in the very least is well-deserved, and even needed — one day it might just save someone’s life… SW.

Response:

A couple of weeks ago, I was in severe respiratory distress and running a temp of 102 — relapse of pneumonia. My pulmonologist told me to call 911 NOW and he would alert the emergency room that I was on the way. Well, the jackbooted paramedics came swaggering in, and one put his stethescope on the back of my waistline and declared that I was clear as a bell. Then he said to me "Whoever told you that you have asthma???" I was tempted to ask him who told him he was a paramedic, but I was afraid he’d just take longer to get me where I needed to go. Fortunately, my apartment manager, who had more breath than I did at the time, called his boss and put a flea in his ear. This is the second bad experience I’ve had with this group. I think they believe all gray-haired patients to be suffering from senile dementia. Anyhow, now that I am finally home again, they are going to get a really scathing letter. There’s no excuse for this. Knit a hug, crochet a cuddle, sew a smile. http://www.newbornsinneed.org

Response:

HELP

Question:

Does anyone know anything about weight loss for people with heart problems and poor digestion? apl

Response:

Does anyone know anything about weight loss for people with heart problems and poor digestion? apl

Moses here: Give us little more info and maybe I’ll answer. Do you still have your gall bladder? How over weight? Your approximate age? Gender(this likely matters least)? Nature of heart condition? Nature of digestion problem? Sincerely Moses Clarke Share what you know. Learn what you don’t.

Response:

In article Does anyone know anything about weight loss for

people with heart problems and poor digestion? apl

I suppose the first thing to do would be to take care of the poor digestion.  There are supplements out there for just that.  What kind of heart problems? Eating less calories than you consume will definitely let you lose weight.  You won’t want to try to do it fast if you health is at risk. baj Share what you know. Learn what you don’t.

Response:

J would like to get some information about windy power-station for one family house.J am interested in: – any construction plans, – what sort of materials has to be used , – and how much power the station can produce Thank you very much in advance for any information about it.

Response:

See the attachment – Happy99. It puts this attachment on every email you send!. Go to the McAffee virus site to see how to clean your system. Its a simple procedure. Warn you friends.

Response:

Hello, You can visit here to more about happy99 http://www.pspl.com/trojan_info/win32/happy99.htm Thanks Naveen J would like to get some information about windy power-station for one family house.J am interested in: – any construction plans, – what sort of materials has to be used , – and how much power the station can produce Thank you very much in advance for any information about it.

Before you buy.

Response:

Just a friendly reminder not to warn them via the email system – at least until after your virus problem is cleared up:-). Mark – Hide quoted text — Show quoted text – See the attachment – Happy99. It puts this attachment on every email you send!. Go to the McAffee virus site to see how to clean your system. Its a simple procedure. Warn you friends.

Response:

Not if you don’t open the attachment. The happy virus is not yours if you didn’t open the attachment. FK – Hide quoted text — Show quoted text – See the attachment – Happy99. It puts this attachment on every email you send!. Go to the McAffee virus site to see how to clean your system. Its a simple procedure. Warn you friends.

Response:

If you have a 3 ft propeller and a 10 knot wind around the clock you just might be able to run a 60 watt lightbulb — a bit less than what an American family is accustomed to have in its home…

Response:

I am trying to think of a science fair project involving hyperspace, black holes, and/or realitivity. I am an 8th grader beginning algebra I. Please note that my school requires us to do an invention or to think of a "problem" and apply the scientific method. Thank you, JClay

Response:

I am trying to think of a science fair project involving hyperspace, black holes, and/or realitivity. I am an 8th grader beginning algebra I. Please note that my school requires us to do an invention or to think of a "problem" and apply the scientific method.

Gee, a couple university degrees come to mind. What’s your time limit? You need tensor calculus to do any of the problems involving those things.  You start beginner calculus maybe in final year or two of high school, possibly only in university. If you want to make a papier mache cone and pretend it’s a black hole, you could maybe fool your teachers… — The preceding are my opinions alone and have nothing whatever to do with my employer.  I don’t even know what my employer thinks. I’m not even real sure who the CEO is. Dan Evens

Response:

Two weeks ago I went through radical morphine withdrawals.(I have been on morphine skin patches as a last resort before surgery #7) The symptoms started one Sat.(with the arrival of my unsaved mother in law visiting from back east-no joke intended). I was having some unexplainable symptoms that were very severe so I called the doctor and was told that the morphine has builtup in my system in toxic levels and that I am being poisoned. I was told to remove the skin patch and do nothing else.This doctor was very confident and said it was a "textbook case" and I was told it would get better rather than worse. Well, as we found out within 12hrs. it was not better but that I was in the middle of cold-turkey withdrawals. It was one of the worst experiences I’ve ever been through…..10years, 6spine operations, and so so many treatments and drugs. The pain clinic I went to later on an emergency basis gave me yet 3 more meds to help with the withdrawal symptoms but after taking them  I had to stop. They made me even worse in my mind. Panic, Anxiety,hot/cold, shakes, suicidal thoughts, depression, hopelessness, feeling far from God- praying against all these things, please, in Jesus’ name. I have not had a time in my walk with the Lord where I have prayed more fervently, more passionately for a healing-for relief. I ‘ve been literally begging him.That part is so good. I was reminding myself and God over and over what I know of God’s Word and that this would end…I was mostly at home waiting for all the meds to leave my body-praying,crying,listening to praise music over and over-ANYWAY, though several "experts" told me that there is no way I could go through this alone at home I did! It is over now but now my problem is what to do with the pain. I have been cutting pain pills in half and taking half only when I just can’t bear the burning nerve pain in my legs-but I am so paranoid now about ANY drugs. I am on all kinds of herbs and cleansing/detox natural remedies and mega vitamins BUT what do I do when the pain gets so bad. I bought a bunch of books on managing chronic pain without drugs but aside from the 50 pounds I need to lose and trying to adjust my lifestyle in a variety of ways-there seems to be little I can do other than wait for the Lord to take me home to heaven! HELP-if anyone knows if one pain pill a day will be "addictive" after all I have been through or any other suggestions you can give me so I can get on with my life would be appreciated. I can’t commit suicide(tho’ the thought is so sweet)because my son is only 10! I couldn’t leave him that legacy. No more surgery(morphine pump was next)and no more traditional docs. I am dog tired. But open to suggestions. God bless, April * Sent from RemarQ http://www.remarq.com The Internet’s Discussion Network * The fastest and easiest way to search and participate in Usenet – Free!

Response:

Two weeks ago I went through radical morphine withdrawals.(I have been on morphine skin patches as a last resort before surgery #7)

Morphine patches? I have been cutting pain pills in half and taking half only when I just can’t bear the burning nerve pain in my legs-but I am so paranoid now about ANY drugs.

Just don’t break any time released pills like Oxycontin, or MS Contin. If the pill hass a score mark Iindented line through the pill, it is OK to break in half. If not, it is not OK to break pills that do not have a score in them. This would be the case with the majority of medical pills, not all, but the general rule. ~alex      

Response:

Sorry you are not in Alaska  – I would know where to refer you to here. Can’t help with Ala though.  PS is one of my primary problems too.   This is serious pain folks — most of you know what I’ve been through.  It is better now  – it took me 23 years to finally get even as much as you have now so I understand. I had it all planed out when I found my doc here.  Hang in there a bit and maybe someone will have something to help you.

– Hide quoted text — Show quoted text – I have SEVERE CRONIC PAIN CAUSED BY PSORIATIC ARTHRITIS (which is very similar to rhuematoid arthritis). I can`t find a doctor who will give me enough pain medicine, They are all afraid of the damn government. HELP. I am going to kill myself if I don`t get some relief very soon. I am on Social Security Disability and only have Medicare, so can`t afford Remicaid or Enbrel. And I draw too much for Medicaid and those medcines are not availible under Patient Assistance programs (for psoriatic arthritis). HELP No doctor here will give me more than five lortabs a day and won`t add anything to that. I live in Decatur, Alabama. HELP. Rick, voodoochile, bamabluesdog Link to my picture, to excellent blues information sites and to the best SRV memorial tribute site on the web. Voodoochile`s Blues Roadhouse http://www.geocities.com/BourbonStreet/4737/ In the CD player now. Robin Trower, Caravan To Midnight, Steely Dan, Goucho, Deep Purple, Burn, Alan Parsons Project, Turn Of A Friendly Card, The Band, The Last Waltz

Response:

I am going to kill myself if I don`t get some relief very soon.

I have tried and failed too many times.  The last time I tried, I really saw my life flash before my eyes.  It was not a pretty sight.  I thought people were coming in to attack me.  I was so scared.  I could not talk.  All I could hear was the voices going on inside my head.  I never heard voices before.  I have found now suicide is a permanent solution to a temporary problem.  You really need think about the ones who are left behind.  Some never get over the lost of a loved one.  If you have children, you are saying to your child it is okay daddy did or mommy did it. Social Security Disability and only have Medicare, so can`t afford Remicaid or Enbrel. And I draw too much for Medicaid and those medcines are not available under Patient Assistance programs (for psoriatic arthritis).

I find myself in similar situation.  Making too much money for Medicaid and not enough money for meds.  Sometimes your doc can give you samples.  Do not know if they make samples or not. All I can say is get help don’t do what I have done.  They almost did not save me.  Bad part is my husband found me 12 hours later. They told me I am lucky that I do not have some kind of permanent damage. Still wonder if I got diabetes 2 from it.  Cause my sugar was real high afterwards and now a year later.  I am just now starting to fight it again. I hope things get better. One of my quirks is why does the government grant us Medicare and not Medicaid.  What good is it to be able to go to the doctor if you cannot afford the meds.  Just another way the government is screwed up.  Don’t get me wrong I am thankful for what they do give me.  I just do not understand it.   You have to be poverty level and I am just above poverty level with my husband without a job.  Makes me thankful that I am not in worse shape. I know I am going to be having pain again if my doc will not switch me. Bonner

Response:

I have SEVERE CRONIC PAIN CAUSED BY PSORIATIC ARTHRITIS (which is very similar to rhuematoid arthritis). I can`t find a doctor who will give me enough pain medicine, They are all afraid of the damn government. HELP. I am going to kill myself if I don`t get some relief very soon. I am on Social Security Disability and only have Medicare, so can`t afford Remicaid or Enbrel. And I draw too much for Medicaid and those medcines are not availible under Patient Assistance programs (for psoriatic arthritis). HELP No doctor here will give me more than five lortabs a day and won`t add anything to that. I live in Decatur, Alabama. HELP. Rick, voodoochile, bamabluesdog Link to my picture, to excellent blues information sites and to the best SRV memorial tribute site on the web. Voodoochile`s Blues Roadhouse http://www.geocities.com/BourbonStreet/4737/ In the CD player now. Robin Trower, Caravan To Midnight, Steely Dan, Goucho, Deep Purple, Burn, Alan Parsons Project, Turn Of A Friendly Card, The Band, The Last Waltz

Response:

Rick, My sister also has Psoriatic Arthritis, and her Dr. doesn’t like to give opiates either. Have you tried Methotrexate?  It did wonders for her. I am *not* a Medical Doctor (MD) or *any* type of Medical Professional. PLEASE consult your own Dr. for medical advice.  The information posted is what I have learned from researching or personal experiences. Remove "NOSPAM" from addy to email me.

Response:

Absolutely not, it is not Usenet convention and makes for very untidy and hard to follow threads. Remember cleanliness is next to Godliness! Crafty

The above quote on cleanliness does not appear in the Bible. It was made up by my Mother and seemed to spread like wildfire across the country ! <g If cleanliness were next to Godliness, we would have churches built for Howard Hughes<gg  ! Peace, Richard

Response:

Welcome "K" to the Pumpsters.  Yes, everyone in the group can understand the frustrations of trying to find a doctor who will treat our pain properly so we can lead "somewhat normal" lives.  26 is so young to have to begin to deal with the pain monster!  Mine didn’t begin until I was 36; so, I thank the Lord for those extra 10 years!  "K", please go back to the Pumpsters main page and read thru the archives of emails and some of the links listed there.  I am sure you will relate with much of what you read.  Most of us have been thru doctor after doctor, getting one surgery and procedure after another — and still can’t seem to make some of the medical profession understand how we suffer.   Sadly, all we can do is sympathize with you and share our experiences; but, you have certainly found the right site for just that.  Once again, welcome, and I hope this caring group can be of some help to you, and that you find an answer for your pain. Norma

Response:

Absolutely not, it is not Usenet convention and makes for very untidy and hard to follow threads. Remember cleanliness is next to Godliness! Crafty The above quote on cleanliness does not appear in the Bible. It was made up by my Mother and seemed to spread like wildfire across the country ! <g If cleanliness were next to Godliness, we would have churches built for Howard Hughes<gg  ! Peace, Richard

Dang, Scoop, I thought *my* mother (z"l) made that one up!  Maybe they knew each other and one told the other, who knows?  She was an OR nurse, and we were ALWAYS on germ patrol! mary

Response:

– Hide quoted text — Show quoted text – YOU READ ALL THIS I THANKYOU FROM THE BOTTOM OF MY HEART.  I LOOK FORWARD TO SEEING SOME OF YOUR POSTED RESPONSES…IN FACT I CAN’T WAIT. BLESS YOU ALL. FUNNY NICK NAME OF MY BEAUTIFUL 9 MONTH OLD SON, HA HA) BLESS YOU ALL   "K" Could you speak up a little. Crafty   Could you post at the top Crafty? Diane Absolutely not, it is not Usenet convention and makes for very untidy and hard to follow threads. Remember cleanliness is next to Godliness! Crafty

Response:

Could you speak up a little. Crafty

Could you snip a little. — Katharine Shade Maxwell spamblock in action. Work it out!

Response:

Diane, Were you here for the Crafty top wars recently?  LOL! Sue

– Hide quoted text — Show quoted text – HELLO TO YOU ALL I JUST WROTE THIS MAIL NOT REALIZING HOW CANDID AND PERSONAL I BECAME…EVEN DISCUSSING MEDICATION AND MY FRUSTRATIONS , I THANKYOU NOW FOR CARING ENOUGH TO READ THIS., I’M NEW AND I GUESS THIS IS MY DISCOVERED THIS WONDERFUL NEWS GROUP, AND JUST SITTING HERE READING THE DIFFERENT POSTS AND MESSAGES I AM SO IMPRESSED WITH THE "OPENNESS" AND INCREDIBLE SUPPORT THAT HAS BEEN GIVEN BACK AND FORTH AMONG SO MANY OF YOU!  THIS IS JUST EXACTLY WHAT I NEEDED …I SIT HERE NOW TEARY EYED…WOW! THERES OTHERS OUT THERE JUST LIKE ME IN PAIN AND NOT GETTING THE HELP THEY NEED. I WISH I HAD LOOKED INTO THIS OR OTHER POSSIBILITIES WITH SUPPORT AND ADVICE BEFORE. I’M ACTUALLY AT THE  POINT OF "FEELING GUILTY" FOR MY OWN PAIN AND THE INJURIES I HAVE THAT CAUSE IT.  I’M JUST 26 YEARS OLD BUT AFTER A CAR ACCIDENT IN 94′ HAVE HAD SEVERE CHRONIC BACK PAIN (AND THEREFORE-CHRONIC "TRIGGERED" MIGRAINES EVER SINCE) SOMETIMES I FEEL MORE LIKE AN OLD WORN OUT LADY, THEN THE 26 YEAR OLD YOUNG LADY I REALLY AM.  I FEEL LIKE I’VE BEEN THROUGH IT ALL…STARTING OUT WITH CHIROPRACTORS, PHYSICAL THERAPY, EVEN A SPECIAL PAIN CLINIC.  I LEARNED ALOT FROM THESE THERAPIES…BUT HERE I AM SIX YEARS LATER AND THE INJURIES (NOW CAUSING ARTHRITIS AND DETERIORATION) HURT SO MUCH I SOMETIMES CAN’T SIMPLY FUNCTION WITH MY REGULAR ACTIVITIES FOR DAILY LIVING. THE DOCTORS I HAD INITIALLY WERE ASSIGNED TO ME FOR THE ACUTE COURSE OF MY CARE (JUST AFTER THE ACCIDENT)LIKE MY SURGEON PAIN REHABILITATION DOC ETC. , BUT NOW I’M ON MY OWN. I’VE FOUND  OUT NOW THAT GENERAL PRACTICE PHYSICIANS ARE SO VERY STRICT,,CONSERVATIVE AND EVEN JUDGMENTAL WHEN HELPING YOU TREAT THE PAIN.  I ONCE HAD A DOCTOR SAY TO ME,"YOU ARE MUCH TOO BEAUTIFUL,SMART AND STRONGWILLED TO NEED ANY PAIN PILL" NOT ONLY DID IT ANGER ME, BUT WATCHING HIM JUST GRIN SINCERELY WITH WHAT HE THOUGHT WAS A COMPLIMENT AND SORTA’ PEP TALK, MADE ME WANT TO JUST FALL APART WITH FRUSTRATION. HE WAS JUDGING ME TELLING ME THAT THE WAY I LOOK AND MY ATTITUDE/CHARACTER EXEMPTED ME FROM SEVERE PAIN…THAT I OBVIOUSLY HAD THE POTENTIAL TO FIGHT THE PAIN. YOU KNOW I DO FIGHT THE PAIN BUT I SUFFER JUST THE SAME AND JUST CAN’T DO IT ANYMORE.  I WISHED THEN, IF FOR ONLY A MOMENT THAT DOCTOR COULD TRADE PLACES WITH ME AND FEEL WHAT I WAS FEELING…HE’D THEN HAVE TO EAT ALOT OF CROW! I BET HE WOULD BE AMAZED AT MY "ACTUAL" STRENGTH.   I NEVER RETURNED TO SEE HIM AGAIN.       I SWEAR FOR A GIRL MY AGE I HAVE TRIED A PHARMACEUTICAL WONDERLAND OF SO CALLED PAIN MEDICINES/REMEDIES OR PREVENTATIVE "PAIN"PILLS. ASIDE FROM ALLERGIC REACTIONS AND YUCKY SIDE EFFECTS OR JUST PLAIN FEELING HORRIBLE…I’VE SO LEARNED TO HATE MOST EVERYTHING OUT THERE…EVEN LOSING FAITH IN SOME OF THE BEST PREVENTATIVE ALTERNATIVES.  AND OF COURSE,OFCOURSE…AS LUCK WOULD HAVE IT WHAT DOES WORK….ALWAYS SEEMS TO BE A NO,NO…OF SORTS WITH PROBABLE HABIT FORMING WARNINGS…SOME OF THESE…THE SCHEDULED NARCOTICS FOR PAIN.  EVEN WITH SOME OF THESE "LIKE I SAID BEFORE" SOME WORK AND SOME DO NOT OR AGAIN THE SIDE EFFECTS ARE JUST TOO MUCH.  AT ONE POINT YEARS AGO WHEN THINGS WERE REALLY BAD THEY GAVE ME HYDROCODONE 5MG…I HAD TO TAKE TWO OF THESE PILLS EVERY SINGLE 4 HOURS TO JUST STAY COMFORTABLE, I’D FEEL GUILTY WANTING TO CHEAT AND TAKE IT AGA IN BEFORE MY 4 HOURS WERE UP….AFTER A DAYS WORTH OF TAKING THEM THOUGH I’D BECOME SICK FROM THE TOXIC EFFECTS OF THE ACETOMETAFIN. FINALLY MY PAIN MGMT DOCTOR INTRODUCED ME TO LORTAB 10′S-HYDROCODONE 10MG.  WOW PROBLEM SOLVED NO MORE OVER DOSING AND THESE WORKED WONDERFUL AND STILL TO THIS DAY ARE WHAT WORK BEST FOR ME. THEY’RE NOT THE BIG SCHEDULE 2 NARCOTIC LIKE ITS SIMILAR OXYCODONE. THAT WORKS REALLY WELL BUT GETTING A RX FOR IT IS NEARLY IMPOSSIBLE PLUS YOU CAN’T HAVE REFILLS CALLED IN FOR IT. HYDROCODNE DOESN’T HAVE EXAGGERATED SIDE EFFECTS W/ THE EXCEPTION OF SOME CONSTIPATION. I’M SURE MANY OF YOU OUT THERE ALREADY HAVE LEARNED AND KNOW ABOUT THAT. SO WHY IS IT SO BAD TO HELP PEOPLE WITH THIS GREAT MEDICINE AND FOR ME PERSONALLY WORKS WELL ENOUGH – TAKING AWAY THE HELL I LIVE IN, MAKING LIFE A BIT EASIER TO LIVE, AND ALLOWING YOU (ME) TO BE MORE ACTIVE AND THEREFORE HAPPY!!!! PROBLEM IS THE DEPENDENCY RISK FACTORS…SO MY CURRENT DOCTOR AND EVEN SOME OTHERS IN THE PAST DO NOT WANT TO PRESCRIBE THEM, ESPECIALLY THE HIGHER MG’S I REQUIRE. FUNNY THING IS THOUGH…I DO NOT FEAR THAT AT ALL…I JUST WANT TO FEEL BETTER, IF ANYTHING AT LEAST ON THE REALLY BAD DAYS.   I KNOW DEPENDENCY HAPPENS…BEFORE MY SURGERY I TOOK NARCOTICS GRADUATING TO HIGHER AND HIGHER STRENGTHS EVERY DAY FOR MONTHS AND MONTHS…THEN THE SURGEON SLOWLY REDUCED THEM FOR ME, IT WAS A SLOW BUT TOLERABLE PROCESS.  MY WORST PROBLEM WAS DIARRHEA, SORRY TO BE SO CANDID BUT I GUESS THAT WAS NORMAL. I THEN WAS ALLOWED A MAINTENANCE PRESCRIPTION FOR "WHEN NEEDED" BUT AFTER RETURNING HOME TO MY OWN FAMILY PHYSICIAN HE TOOK EVEN THAT SMALL ACCESS TO RELIEF FROM ME.  I DON’T KNOW WHAT TO DO WHERE TO GO OR WHERE TO FIND THE HELP I SO BADLY NEED AND BEG FOR.  LIKE MY HEADING STATES HELP!!!SORRY I WROTE SO MUCH, IT IS MY PERSONAL STORY/FEELINGS… I CAN’T BELIEVE I’VE WRITTEN –  - BUT I WAS SO INSPIRED BY ALL OF YOU AND THE HOPE THAT I MAY FIND LINKS FOR HELP – THAT I PUT IT ALL OUT THERE…REAL AND HONEST. IF YOU READ ALL THIS I THANKYOU FROM THE BOTTOM OF MY HEART.  I LOOK FORWARD TO SEEING SOME OF YOUR POSTED RESPONSES…IN FACT I CAN’T WAIT. BLESS YOU ALL. FUNNY NICK NAME OF MY BEAUTIFUL 9 MONTH OLD SON, HA HA) BLESS YOU ALL   "K" Could you speak up a little. Crafty   Could you post at the top Crafty? Diane

Response:

Hi, Yes I was.  Just thought I’d open up a new can of worms. Couldn’t resist. You know we all have to be wary of the NG Police.  Wait…….I can’t seem Much love,,,,,,,,,,, Dianeee

– Hide quoted text — Show quoted text – Diane, Were you here for the Crafty top wars recently?  LOL! Sue HELLO TO YOU ALL I JUST WROTE THIS MAIL NOT REALIZING HOW CANDID AND PERSONAL I BECAME…EVEN DISCUSSING MEDICATION AND MY FRUSTRATIONS , I THANKYOU NOW FOR CARING ENOUGH TO READ THIS., I’M NEW AND I GUESS THIS IS MY DISCOVERED THIS WONDERFUL NEWS GROUP, AND JUST SITTING HERE READING THE DIFFERENT POSTS AND MESSAGES I AM SO IMPRESSED WITH THE "OPENNESS" AND INCREDIBLE SUPPORT THAT HAS BEEN GIVEN BACK AND FORTH AMONG SO MANY OF YOU!  THIS IS JUST EXACTLY WHAT I NEEDED …I SIT HERE NOW TEARY EYED…WOW! THERES OTHERS OUT THERE JUST LIKE ME IN PAIN AND NOT GETTING THE HELP THEY NEED. I WISH I HAD LOOKED INTO THIS OR OTHER POSSIBILITIES WITH SUPPORT AND ADVICE BEFORE. I’M ACTUALLY AT THE  POINT OF "FEELING GUILTY" FOR MY OWN PAIN AND THE INJURIES I HAVE THAT CAUSE IT.  I’M JUST 26 YEARS OLD BUT AFTER A CAR ACCIDENT IN 94′ HAVE HAD SEVERE CHRONIC BACK PAIN (AND THEREFORE-CHRONIC "TRIGGERED" MIGRAINES EVER SINCE) SOMETIMES I FEEL MORE LIKE AN OLD WORN OUT LADY, THEN THE 26 YEAR OLD YOUNG LADY I REALLY AM.  I FEEL LIKE I’VE BEEN THROUGH IT ALL…STARTING OUT WITH CHIROPRACTORS, PHYSICAL THERAPY, EVEN A SPECIAL PAIN CLINIC.  I LEARNED ALOT FROM THESE THERAPIES…BUT HERE I AM SIX YEARS LATER AND THE INJURIES (NOW CAUSING ARTHRITIS AND DETERIORATION) HURT SO MUCH I SOMETIMES CAN’T SIMPLY FUNCTION WITH MY REGULAR ACTIVITIES FOR DAILY LIVING. THE DOCTORS I HAD INITIALLY WERE ASSIGNED TO ME FOR THE ACUTE COURSE OF MY CARE (JUST AFTER THE ACCIDENT)LIKE MY SURGEON PAIN REHABILITATION DOC ETC. , BUT NOW I’M ON MY OWN. I’VE FOUND  OUT NOW THAT GENERAL PRACTICE PHYSICIANS ARE SO VERY STRICT,,CONSERVATIVE AND EVEN JUDGMENTAL WHEN HELPING YOU TREAT THE PAIN.  I ONCE HAD A DOCTOR SAY TO ME,"YOU ARE MUCH TOO BEAUTIFUL,SMART AND STRONGWILLED TO NEED ANY PAIN PILL" NOT ONLY DID IT ANGER ME, BUT WATCHING HIM JUST GRIN SINCERELY WITH WHAT HE THOUGHT WAS A COMPLIMENT AND SORTA’ PEP TALK, MADE ME WANT TO JUST FALL APART WITH FRUSTRATION. HE WAS JUDGING ME TELLING ME THAT THE WAY I LOOK AND MY ATTITUDE/CHARACTER EXEMPTED ME FROM SEVERE PAIN…THAT I OBVIOUSLY HAD THE POTENTIAL TO FIGHT THE PAIN. YOU KNOW I DO FIGHT THE PAIN BUT I SUFFER JUST THE SAME AND JUST CAN’T DO IT ANYMORE.  I WISHED THEN, IF FOR ONLY A MOMENT THAT DOCTOR COULD TRADE PLACES WITH ME AND FEEL WHAT I WAS FEELING…HE’D THEN HAVE TO EAT ALOT OF CROW! I BET HE WOULD BE AMAZED AT MY "ACTUAL" STRENGTH.   I NEVER RETURNED TO SEE HIM AGAIN.       I SWEAR FOR A GIRL MY AGE I HAVE TRIED A PHARMACEUTICAL WONDERLAND OF SO CALLED PAIN MEDICINES/REMEDIES OR PREVENTATIVE "PAIN"PILLS. ASIDE FROM ALLERGIC REACTIONS AND YUCKY SIDE EFFECTS OR JUST PLAIN FEELING HORRIBLE…I’VE SO LEARNED TO HATE MOST EVERYTHING OUT THERE…EVEN LOSING FAITH IN SOME OF THE BEST PREVENTATIVE ALTERNATIVES.  AND OF COURSE,OFCOURSE…AS LUCK WOULD HAVE IT WHAT DOES WORK….ALWAYS SEEMS TO BE A NO,NO…OF SORTS WITH PROBABLE HABIT FORMING WARNINGS…SOME OF THESE…THE SCHEDULED NARCOTICS FOR PAIN.  EVEN WITH SOME OF THESE "LIKE I SAID BEFORE" SOME WORK AND SOME DO NOT OR AGAIN THE SIDE EFFECTS ARE JUST TOO MUCH.  AT ONE POINT YEARS AGO WHEN THINGS WERE REALLY BAD THEY GAVE ME HYDROCODONE 5MG…I HAD TO TAKE TWO OF THESE PILLS EVERY SINGLE 4 HOURS TO JUST STAY COMFORTABLE, I’D FEEL GUILTY WANTING TO CHEAT AND TAKE IT AGA IN BEFORE MY 4 HOURS WERE UP….AFTER A DAYS WORTH OF TAKING THEM THOUGH I’D BECOME SICK FROM THE TOXIC EFFECTS OF THE ACETOMETAFIN. FINALLY MY PAIN MGMT DOCTOR INTRODUCED ME TO LORTAB 10′S-HYDROCODONE 10MG.  WOW PROBLEM SOLVED NO MORE OVER DOSING AND THESE WORKED WONDERFUL AND STILL TO THIS DAY ARE WHAT WORK BEST FOR ME. THEY’RE NOT THE BIG SCHEDULE 2 NARCOTIC LIKE ITS SIMILAR OXYCODONE. THAT WORKS REALLY WELL BUT GETTING A RX FOR IT IS NEARLY IMPOSSIBLE PLUS YOU CAN’T HAVE REFILLS CALLED IN FOR IT. HYDROCODNE DOESN’T HAVE EXAGGERATED SIDE EFFECTS W/ THE EXCEPTION OF SOME CONSTIPATION. I’M SURE MANY OF YOU OUT THERE ALREADY HAVE LEARNED AND KNOW ABOUT THAT. SO WHY IS IT SO BAD TO HELP PEOPLE WITH THIS GREAT MEDICINE AND FOR ME PERSONALLY WORKS WELL ENOUGH – TAKING AWAY THE HELL I LIVE IN, MAKING LIFE A BIT EASIER TO LIVE, AND ALLOWING YOU (ME) TO BE MORE ACTIVE AND THEREFORE HAPPY!!!! PROBLEM IS THE DEPENDENCY RISK FACTORS…SO MY CURRENT DOCTOR AND EVEN SOME OTHERS IN THE PAST DO NOT WANT TO PRESCRIBE THEM, ESPECIALLY THE HIGHER MG’S I REQUIRE. FUNNY THING IS THOUGH…I DO NOT FEAR THAT AT ALL…I JUST WANT TO FEEL BETTER, IF ANYTHING AT LEAST ON THE REALLY BAD DAYS.   I KNOW DEPENDENCY HAPPENS…BEFORE MY SURGERY I TOOK NARCOTICS GRADUATING TO HIGHER AND HIGHER STRENGTHS EVERY DAY FOR MONTHS AND MONTHS…THEN THE SURGEON SLOWLY REDUCED THEM FOR ME, IT WAS A SLOW BUT TOLERABLE PROCESS.  MY WORST PROBLEM WAS DIARRHEA, SORRY TO BE SO CANDID BUT I GUESS THAT WAS NORMAL. I THEN WAS ALLOWED A MAINTENANCE PRESCRIPTION FOR "WHEN NEEDED" BUT AFTER RETURNING HOME TO MY OWN FAMILY PHYSICIAN HE TOOK EVEN THAT SMALL ACCESS TO RELIEF FROM ME.  I DON’T KNOW WHAT TO DO WHERE TO GO OR WHERE TO FIND THE HELP I SO BADLY NEED AND BEG FOR.  LIKE MY HEADING STATES HELP!!!SORRY I WROTE SO MUCH, IT IS MY PERSONAL STORY/FEELINGS… I CAN’T BELIEVE I’VE WRITTEN –  - BUT I WAS SO INSPIRED BY ALL OF YOU AND THE HOPE THAT I MAY FIND LINKS FOR HELP – THAT I PUT IT ALL OUT THERE…REAL AND HONEST. IF YOU READ ALL THIS I THANKYOU FROM THE BOTTOM OF MY HEART.  I LOOK FORWARD TO SEEING SOME OF YOUR POSTED RESPONSES…IN FACT I CAN’T WAIT. BLESS YOU ALL. THE FUNNY NICK NAME OF MY BEAUTIFUL 9 MONTH OLD SON, HA HA) BLESS YOU ALL   "K" Could you speak up a little. Crafty   Could you post at the top Crafty? Diane

Response:

I realize that you have helped many people on this newsgroup. However, could it be that this person was posting in all caps because of the agony she was in? Hey, if the all cap thing nauseates you why don’t you just skip it and go on to reading another post? Where is your compassion here?

Response:

Nice to hear from you and welcome. John

Response:

welcome to the news group! I was unable to read your post in caps so it was really nice of  the unknown armadilo to post for you in reg type..Please ignore the rude blasts made to you..you obviously didn’t know not to use caps and I would hate to see you not use the group because you were blasted…Don’t take it to heart..we are all in pain here and tend to get a little uppity at times..or just not have the patience we need to with others..lol..   :-) Cheryl

Response:

I realize that you have helped many people on this newsgroup. However, could it be that this person was posting in all caps because of the agony she was in? Hey, if the all cap thing nauseates you why don’t you just skip it and go on to reading another post? Where is your compassion here?

It’s good netiquette (internet etiquette) to post as Ruada asked.  I didn’t read it all either as all caps makes my head hurt.  It absolutely is the internet equivalent of shouting, and Ruada just pointed that out.  Where’s YOUR compassion here? mary

Response:

I would like to read the post — I cannot when it is in all caps. What has compassion to do with not being able to read and objecting to being shouted at? I’ve never heard of you so why are you trying to tell me what I should do?

– Hide quoted text — Show quoted text – I realize that you have helped many people on this newsgroup. However, could it be that this person was posting in all caps because of the agony she was in? Hey, if the all cap thing nauseates you why don’t you just skip it and go on to reading another post? Where is your compassion here?

Response:

If that was a rude blast I don’t know where you’ve been.   Explained the problem I have with the message posted like that and said try again.   Lord have mercy if that was rude you’d better go find somewhere else to read and post.

– Hide quoted text — Show quoted text – welcome to the news group! I was unable to read your post in caps so it was really nice of  the unknown armadilo to post for you in reg type..Please ignore the rude blasts made to you..you obviously didn’t know not to use caps and I would hate to see you not use the group because you were blasted…Don’t take it to heart..we are all in pain here and tend to get a little uppity at times..or just not have the patience we need to with others..lol..   :-) Cheryl

Response:

– Hide quoted text — Show quoted text – HELLO TO YOU ALL I JUST WROTE THIS MAIL NOT REALIZING HOW CANDID AND PERSONAL I BECAME…EVEN DISCUSSING MEDICATION AND MY FRUSTRATIONS , I THANKYOU NOW FOR CARING ENOUGH TO READ THIS., I’M NEW AND I GUESS THIS IS MY DISCOVERED THIS WONDERFUL NEWS GROUP, AND JUST SITTING HERE READING THE DIFFERENT POSTS AND MESSAGES I AM SO IMPRESSED WITH THE "OPENNESS" AND INCREDIBLE SUPPORT THAT HAS BEEN GIVEN BACK AND FORTH AMONG SO MANY OF YOU!  THIS IS JUST EXACTLY WHAT I NEEDED …I SIT HERE NOW TEARY EYED…WOW! THERES OTHERS OUT THERE JUST LIKE ME IN PAIN AND NOT GETTING THE HELP THEY NEED. I WISH I HAD LOOKED INTO THIS OR OTHER POSSIBILITIES WITH SUPPORT AND ADVICE BEFORE. I’M ACTUALLY AT THE  POINT OF "FEELING GUILTY" FOR MY OWN PAIN AND THE INJURIES I HAVE THAT CAUSE IT.  I’M JUST 26 YEARS OLD BUT AFTER A CAR ACCIDENT IN 94′ HAVE HAD SEVERE CHRONIC BACK PAIN (AND THEREFORE-CHRONIC "TRIGGERED" MIGRAINES EVER SINCE) SOMETIMES I FEEL MORE LIKE AN OLD WORN OUT LADY, THEN THE 26 YEAR OLD YOUNG LADY I REALLY AM.  I FEEL LIKE I’VE BEEN THROUGH IT ALL…STARTING OUT WITH CHIROPRACTORS, PHYSICAL THERAPY, EVEN A SPECIAL PAIN CLINIC.  I LEARNED ALOT FROM THESE THERAPIES…BUT HERE I AM SIX YEARS LATER AND THE INJURIES (NOW CAUSING ARTHRITIS AND DETERIORATION) HURT SO MUCH I SOMETIMES CAN’T SIMPLY FUNCTION WITH MY REGULAR ACTIVITIES FOR DAILY LIVING. THE DOCTORS I HAD INITIALLY WERE ASSIGNED TO ME FOR THE ACUTE COURSE OF MY CARE (JUST AFTER THE ACCIDENT)LIKE MY SURGEON PAIN REHABILITATION DOC ETC. , BUT NOW I’M ON MY OWN. I’VE FOUND  OUT NOW THAT GENERAL PRACTICE PHYSICIANS ARE SO VERY STRICT,,CONSERVATIVE AND EVEN JUDGMENTAL WHEN HELPING YOU TREAT THE PAIN.  I ONCE HAD A DOCTOR SAY TO ME,"YOU ARE MUCH TOO BEAUTIFUL,SMART AND STRONGWILLED TO NEED ANY PAIN PILL" NOT ONLY DID IT ANGER ME, BUT WATCHING HIM JUST GRIN SINCERELY WITH WHAT HE THOUGHT WAS A COMPLIMENT AND SORTA’ PEP TALK, MADE ME WANT TO JUST FALL APART WITH FRUSTRATION. HE WAS JUDGING ME TELLING ME THAT THE WAY I LOOK AND MY ATTITUDE/CHARACTER EXEMPTED ME FROM SEVERE PAIN…THAT I OBVIOUSLY HAD THE POTENTIAL TO FIGHT THE PAIN. YOU KNOW I DO FIGHT THE PAIN BUT I SUFFER JUST THE SAME AND JUST CAN’T DO IT ANYMORE.  I WISHED THEN, IF FOR ONLY A MOMENT THAT DOCTOR COULD TRADE PLACES WITH ME AND FEEL WHAT I WAS FEELING…HE’D THEN HAVE TO EAT ALOT OF CROW! I BET HE WOULD BE AMAZED AT MY "ACTUAL" STRENGTH.   I NEVER RETURNED TO SEE HIM AGAIN.       I SWEAR FOR A GIRL MY AGE I HAVE TRIED A PHARMACEUTICAL WONDERLAND OF SO CALLED PAIN MEDICINES/REMEDIES OR PREVENTATIVE "PAIN"PILLS. ASIDE FROM ALLERGIC REACTIONS AND YUCKY SIDE EFFECTS OR JUST PLAIN FEELING HORRIBLE…I’VE SO LEARNED TO HATE MOST EVERYTHING OUT THERE…EVEN LOSING FAITH IN SOME OF THE BEST PREVENTATIVE ALTERNATIVES.  AND OF COURSE,OFCOURSE…AS LUCK WOULD HAVE IT WHAT DOES WORK….ALWAYS SEEMS TO BE A NO,NO…OF SORTS WITH PROBABLE HABIT FORMING WARNINGS…SOME OF THESE…THE SCHEDULED NARCOTICS FOR PAIN.  EVEN WITH SOME OF THESE "LIKE I SAID BEFORE" SOME WORK AND SOME DO NOT OR AGAIN THE SIDE EFFECTS ARE JUST TOO MUCH.  AT ONE POINT YEARS AGO WHEN THINGS WERE REALLY BAD THEY GAVE ME HYDROCODONE 5MG…I HAD TO TAKE TWO OF THESE PILLS EVERY SINGLE 4 HOURS TO JUST STAY COMFORTABLE, I’D FEEL GUILTY WANTING TO CHEAT AND TAKE IT AGAIN BEFORE MY 4 HOURS WERE UP….AFTER A DAYS WORTH OF TAKING THEM THOUGH I’D BECOME SICK FROM THE TOXIC EFFECTS OF THE ACETOMETAFIN. FINALLY MY PAIN MGMT DOCTOR INTRODUCED ME TO LORTAB 10′S-HYDROCODONE 10MG.  WOW PROBLEM SOLVED NO MORE OVER DOSING AND THESE WORKED WONDERFUL AND STILL TO THIS DAY ARE WHAT WORK BEST FOR ME. THEY’RE NOT THE BIG SCHEDULE 2 NARCOTIC LIKE ITS SIMILAR OXYCODONE. THAT WORKS REALLY WELL BUT GETTING A RX FOR IT IS NEARLY IMPOSSIBLE PLUS YOU CAN’T HAVE REFILLS CALLED IN FOR IT. HYDROCODNE DOESN’T HAVE EXAGGERATED SIDE EFFECTS W/ THE EXCEPTION OF SOME CONSTIPATION.  I’M SURE MANY OF YOU OUT THERE ALREADY HAVE LEARNED AND KNOW ABOUT THAT.  SO WHY IS IT SO BAD TO HELP PEOPLE WITH THIS GREAT MEDICINE AND FOR ME PERSONALLY WORKS WELL ENOUGH – TAKING AWAY THE HELL I LIVE IN, MAKING LIFE A BIT EASIER TO LIVE, AND ALLOWING YOU (ME) TO BE MORE ACTIVE AND THEREFORE HAPPY!!!! PROBLEM IS THE DEPENDENCY RISK FACTORS…SO MY CURRENT DOCTOR AND EVEN SOME OTHERS IN THE PAST DO NOT WANT TO PRESCRIBE THEM, ESPECIALLY THE HIGHER MG’S I REQUIRE. FUNNY THING IS THOUGH…I DO NOT FEAR THAT AT ALL…I JUST WANT TO FEEL BETTER, IF ANYTHING AT LEAST ON THE REALLY BAD DAYS.   I KNOW DEPENDENCY HAPPENS…BEFORE MY SURGERY I TOOK NARCOTICS GRADUATING TO HIGHER AND HIGHER STRENGTHS EVERY DAY FOR MONTHS AND MONTHS…THEN THE SURGEON SLOWLY REDUCED THEM FOR ME, IT WAS A SLOW BUT TOLERABLE PROCESS.  MY WORST PROBLEM WAS DIARRHEA, SORRY TO BE SO CANDID BUT I GUESS THAT WAS NORMAL. I THEN WAS ALLOWED A MAINTENANCE PRESCRIPTION FOR "WHEN NEEDED" BUT AFTER RETURNING HOME TO MY OWN FAMILY PHYSICIAN HE TOOK EVEN THAT SMALL ACCESS TO RELIEF FROM ME.  I DON’T KNOW WHAT TO DO WHERE TO GO OR WHERE TO FIND THE HELP I SO BADLY NEED AND BEG FOR.  LIKE MY HEADING STATES HELP!!!SORRY I WROTE SO MUCH, IT IS MY PERSONAL STORY/FEELINGS… I CAN’T BELIEVE I’VE WRITTEN –  - BUT I WAS SO INSPIRED BY ALL OF YOU AND THE HOPE THAT I MAY FIND LINKS FOR HELP – THAT I PUT IT ALL OUT THERE…REAL AND HONEST.   IF YOU READ ALL THIS I THANKYOU FROM THE BOTTOM OF MY HEART.  I LOOK FORWARD TO SEEING SOME OF YOUR POSTED RESPONSES…IN FACT I CAN’T WAIT. BLESS YOU ALL. FUNNY NICK NAME OF MY BEAUTIFUL 9 MONTH OLD SON, HA HA) BLESS YOU ALL   "K" Could you speak up a little. Crafty   Could you post at the top Crafty?

Diane

Response:

Hi "K"  Tell us what city you live in and maybe someone will know a good Dr. for you.Also don’t worry about addiction or dependency,as long as you have pain,it’s O K to take pain medicine.It’s only wrong ,when you have no pain,and take it to feel good.    I ‘v had pain for more than 40 years,and with out pain medicines,I would have ended it a long time ago. I took morphine for 10 years,and now have an implanted morphine pump.    The goal is not to relieve all pain,but to reduce the level enough,so you can function in daily life. Good Luck Lem – Hide quoted text — Show quoted text -HELLO TO YOU ALL I JUST WROTE THIS MAIL NOT REALIZING HOW CANDID AND PERSONAL I BECAME…EVEN DISCUSSING MEDICATION AND MY FRUSTRATIONS , I THANKYOU NOW FOR CARING ENOUGH TO READ THIS., I’M NEW AND I GUESS THIS IS MY THIS WONDERFUL NEWS GROUP, AND JUST SITTING HERE READING THE DIFFERENT POSTS AND MESSAGES I AM SO IMPRESSED WITH THE "OPENNESS" AND INCREDIBLE SUPPORT THAT HAS BEEN GIVEN BACK AND FORTH AMONG SO MANY OF YOU!  THIS IS JUST EXACTLY WHAT I NEEDED …I SIT HERE NOW TEARY EYED…WOW! THERES OTHERS OUT THERE JUST LIKE ME IN PAIN AND NOT GETTING THE HELP THEY NEED. I WISH I HAD LOOKED INTO THIS OR OTHER POSSIBILITIES WITH SUPPORT AND ADVICE BEFORE. I’M ACTUALLY AT THE  POINT OF "FEELING GUILTY" FOR MY OWN PAIN AND THE INJURIES I HAVE THAT CAUSE IT.  I’M JUST 26 YEARS OLD BUT AFTER A CAR ACCIDENT IN 94′ HAVE HAD SEVERE CHRONIC BACK PAIN (AND THEREFORE-CHRONIC "TRIGGERED" MIGRAINES EVER SINCE) SOMETIMES I FEEL MORE LIKE AN OLD WORN OUT LADY, THEN THE 26 YEAR OLD YOUNG LADY I REALLY AM.  I FEEL LIKE I’VE BEEN THROUGH IT ALL…STARTING OUT WITH CHIROPRACTORS, PHYSICAL THERAPY, EVEN A SPECIAL PAIN CLINIC.  I LEARNED ALOT FROM THESE THERAPIES…BUT HERE I AM SIX YEARS LATER AND THE INJURIES (NOW CAUSING ARTHRITIS AND DETERIORATION) HURT SO MUCH I SOMETIMES CAN’T SIMPLY FUNCTION WITH MY REGULAR ACTIVITIES FOR DAILY LIVING. THE DOCTORS I HAD INITIALLY WERE ASSIGNED TO ME FOR THE ACUTE COURSE OF MY CARE (JUST AFTER THE ACCIDENT)LIKE MY SURGEON PAIN REHABILITATION DOC ETC. , BUT NOW I’M ON MY OWN. I’VE FOUND  OUT NOW THAT GENERAL PRACTICE PHYSICIANS ARE SO VERY STRICT,,CONSERVATIVE AND EVEN JUDGMENTAL WHEN HELPING YOU TREAT THE PAIN.  I ONCE HAD A DOCTOR SAY TO ME,"YOU ARE MUCH TOO BEAUTIFUL,SMART AND STRONGWILLED TO NEED ANY PAIN PILL" NOT ONLY DID IT ANGER ME, BUT WATCHING HIM JUST GRIN SINCERELY WITH WHAT HE THOUGHT WAS A COMPLIMENT AND SORTA’ PEP TALK, MADE ME WANT TO JUST FALL APART WITH FRUSTRATION. HE WAS JUDGING ME TELLING ME THAT THE WAY I LOOK AND MY ATTITUDE/CHARACTER EXEMPTED ME FROM SEVERE PAIN…THAT I OBVIOUSLY HAD THE POTENTIAL TO FIGHT THE PAIN. YOU KNOW I DO FIGHT THE PAIN BUT I SUFFER JUST THE SAME AND JUST CAN’T DO IT ANYMORE.  I WISHED THEN, IF FOR ONLY A MOMENT THAT DOCTOR COULD TRADE PLACES WITH ME AND FEEL WHAT I WAS FEELING…HE’D THEN HAVE TO EAT ALOT OF CROW! I BET HE WOULD BE AMAZED AT MY "ACTUAL" STRENGTH.   I NEVER RETURNED TO SEE HIM AGAIN.       I SWEAR FOR A GIRL MY AGE I HAVE TRIED A PHARMACEUTICAL WONDERLAND OF SO CALLED PAIN MEDICINES/REMEDIES OR PREVENTATIVE "PAIN"PILLS. ASIDE FROM ALLERGIC REACTIONS AND YUCKY SIDE EFFECTS OR JUST PLAIN FEELING HORRIBLE…I’VE SO LEARNED TO HATE MOST EVERYTHING OUT THERE…EVEN LOSING FAITH IN SOME OF THE BEST PREVENTATIVE ALTERNATIVES.  AND OF COURSE,OFCOURSE…AS LUCK WOULD HAVE IT WHAT DOES WORK….ALWAYS SEEMS TO BE A NO,NO…OF SORTS WITH PROBABLE HABIT FORMING WARNINGS…SOME OF THESE…THE SCHEDULED NARCOTICS FOR PAIN.  EVEN WITH SOME OF THESE "LIKE I SAID BEFORE" SOME WORK AND SOME DO NOT OR AGAIN THE SIDE EFFECTS ARE JUST TOO MUCH.  AT ONE POINT YEARS AGO WHEN THINGS WERE REALLY BAD THEY GAVE ME HYDROCODONE 5MG…I HAD TO TAKE TWO OF THESE PILLS EVERY SINGLE 4 HOURS TO JUST STAY COMFORTABLE, I’D FEEL GUILTY WANTING TO CHEAT AND TAKE IT AGAIN BEFORE MY 4 HOURS WERE UP….AFTER A DAYS WORTH OF TAKING THEM THOUGH I’D BECOME SICK FROM THE TOXIC EFFECTS OF THE ACETOMETAFIN. FINALLY MY PAIN MGMT DOCTOR INTRODUCED ME TO LORTAB 10′S-HYDROCODONE 10MG.  WOW PROBLEM SOLVED NO MORE OVER DOSING AND THESE WORKED WONDERFUL AND STILL TO THIS DAY ARE WHAT WORK BEST FOR ME. THEY’RE NOT THE BIG SCHEDULE 2 NARCOTIC LIKE ITS SIMILAR OXYCODONE. THAT WORKS REALLY WELL BUT GETTING A RX FOR IT IS NEARLY IMPOSSIBLE PLUS YOU CAN’T HAVE REFILLS CALLED IN FOR IT. HYDROCODNE DOESN’T HAVE EXAGGERATED SIDE EFFECTS W/ THE EXCEPTION OF SOME CONSTIPATION.  I’M SURE MANY OF YOU OUT THERE ALREADY HAVE LEARNED AND KNOW ABOUT THAT.  SO WHY IS IT SO BAD TO HELP PEOPLE WITH THIS GREAT MEDICINE AND FOR ME PERSONALLY WORKS WELL ENOUGH – TAKING AWAY THE HELL I LIVE IN, MAKING LIFE A BIT EASIER TO LIVE, AND ALLOWING YOU (ME) TO BE MORE ACTIVE AND THEREFORE HAPPY!!!! PROBLEM IS THE DEPENDENCY RISK FACTORS…SO MY CURRENT DOCTOR AND EVEN SOME OTHERS IN THE PAST DO NOT WANT TO PRESCRIBE THEM, ESPECIALLY THE HIGHER MG’S I REQUIRE. FUNNY THING IS THOUGH…I DO NOT FEAR THAT AT ALL…I JUST WANT TO FEEL BETTER, IF ANYTHING AT LEAST ON THE REALLY BAD DAYS.   I KNOW DEPENDENCY HAPPENS…BEFORE MY SURGERY I TOOK NARCOTICS GRADUATING TO HIGHER AND HIGHER STRENGTHS EVERY DAY FOR MONTHS AND MONTHS…THEN THE SURGEON SLOWLY REDUCED THEM FOR ME, IT WAS A SLOW BUT TOLERABLE PROCESS.  MY WORST PROBLEM WAS DIARRHEA, SORRY TO BE SO CANDID BUT I GUESS THAT WAS NORMAL.   I THEN WAS ALLOWED A MAINTENANCE PRESCRIPTION FOR "WHEN NEEDED" BUT AFTER RETURNING HOME TO MY OWN FAMILY PHYSICIAN HE TOOK EVEN THAT SMALL ACCESS TO RELIEF FROM ME.  I DON’T KNOW WHAT TO DO WHERE TO GO OR WHERE TO FIND THE HELP I SO BADLY NEED AND BEG FOR.  LIKE MY HEADING STATES HELP!!!SORRY I WROTE SO MUCH, IT IS MY PERSONAL STORY/FEELINGS… I CAN’T BELIEVE I’VE WRITTEN –  - BUT I WAS SO INSPIRED BY ALL OF YOU AND THE HOPE THAT I MAY FIND LINKS FOR HELP – THAT I PUT IT ALL OUT THERE…REAL AND HONEST.   IF YOU READ ALL THIS I THANKYOU FROM THE BOTTOM OF MY HEART.  I LOOK FORWARD TO SEEING SOME OF YOUR POSTED RESPONSES…IN FACT I CAN’T WAIT. BLESS YOU ALL. NICK NAME OF MY BEAUTIFUL 9 MONTH OLD SON, HA HA) BLESS YOU ALL   "K"

Response:

I cannot even read this — it is in all caps which nauseate me and I can make no sense of.   It is also the internet equal of shouting. Try again.

– Hide quoted text — Show quoted text – HELLO TO YOU ALL I JUST WROTE THIS MAIL NOT REALIZING HOW CANDID AND PERSONAL I BECAME…EVEN DISCUSSING MEDICATION AND MY FRUSTRATIONS , I THANKYOU NOW FOR CARING ENOUGH TO READ THIS., I’M NEW AND I GUESS THIS IS MY DISCOVERED THIS WONDERFUL NEWS GROUP, AND JUST SITTING HERE READING THE DIFFERENT POSTS AND MESSAGES I AM SO IMPRESSED WITH THE "OPENNESS" AND INCREDIBLE SUPPORT THAT HAS BEEN GIVEN BACK AND FORTH AMONG SO MANY OF YOU!  THIS IS JUST EXACTLY WHAT I NEEDED …I SIT HERE NOW TEARY EYED…WOW! THERES OTHERS OUT THERE JUST LIKE ME IN PAIN AND NOT GETTING THE HELP THEY NEED. I WISH I HAD LOOKED INTO THIS OR OTHER POSSIBILITIES WITH SUPPORT AND ADVICE BEFORE. I’M ACTUALLY AT THE  POINT OF "FEELING GUILTY" FOR MY OWN PAIN AND THE INJURIES I HAVE THAT CAUSE IT.  I’M JUST 26 YEARS OLD BUT AFTER A CAR ACCIDENT IN 94′ HAVE HAD SEVERE CHRONIC BACK PAIN (AND THEREFORE-CHRONIC "TRIGGERED" MIGRAINES EVER SINCE) SOMETIMES I FEEL MORE LIKE AN OLD WORN OUT LADY, THEN THE 26 YEAR OLD YOUNG LADY I REALLY AM.  I FEEL LIKE I’VE BEEN THROUGH IT ALL…STARTING OUT WITH CHIROPRACTORS, PHYSICAL THERAPY, EVEN A SPECIAL PAIN CLINIC.  I LEARNED ALOT FROM THESE THERAPIES…BUT HERE I AM SIX YEARS LATER AND THE INJURIES (NOW CAUSING ARTHRITIS AND DETERIORATION) HURT SO MUCH I SOMETIMES CAN’T SIMPLY FUNCTION WITH MY REGULAR ACTIVITIES FOR DAILY LIVING. THE DOCTORS I HAD INITIALLY WERE ASSIGNED TO ME FOR THE ACUTE COURSE OF MY CARE (JUST AFTER THE ACCIDENT)LIKE MY SURGEON PAIN REHABILITATION DOC ETC. , BUT NOW I’M ON MY OWN. I’VE FOUND  OUT NOW THAT GENERAL PRACTICE PHYSICIANS ARE SO VERY STRICT,,CONSERVATIVE AND EVEN JUDGMENTAL WHEN HELPING YOU TREAT THE PAIN.  I ONCE HAD A DOCTOR SAY TO ME,"YOU ARE MUCH TOO BEAUTIFUL,SMART AND STRONGWILLED TO NEED ANY PAIN PILL" NOT ONLY DID IT ANGER ME, BUT WATCHING HIM JUST GRIN SINCERELY WITH WHAT HE THOUGHT WAS A COMPLIMENT AND SORTA’ PEP TALK, MADE ME WANT TO JUST FALL APART WITH FRUSTRATION. HE WAS JUDGING ME TELLING ME THAT THE WAY I LOOK AND MY ATTITUDE/CHARACTER EXEMPTED ME FROM SEVERE PAIN…THAT I OBVIOUSLY HAD THE POTENTIAL TO FIGHT THE PAIN. YOU KNOW I DO FIGHT THE PAIN BUT I SUFFER JUST THE SAME AND JUST CAN’T DO IT ANYMORE.  I WISHED THEN, IF FOR ONLY A MOMENT THAT DOCTOR COULD TRADE PLACES WITH ME AND FEEL WHAT I WAS FEELING…HE’D THEN HAVE TO EAT ALOT OF CROW! I BET HE WOULD BE AMAZED AT MY "ACTUAL" STRENGTH.   I NEVER RETURNED TO SEE HIM AGAIN.       I SWEAR FOR A GIRL MY AGE I HAVE TRIED A PHARMACEUTICAL WONDERLAND OF SO CALLED PAIN MEDICINES/REMEDIES OR PREVENTATIVE "PAIN"PILLS. ASIDE FROM ALLERGIC REACTIONS AND YUCKY SIDE EFFECTS OR JUST PLAIN FEELING HORRIBLE…I’VE SO LEARNED TO HATE MOST EVERYTHING OUT THERE…EVEN LOSING FAITH IN SOME OF THE BEST PREVENTATIVE ALTERNATIVES.  AND OF COURSE,OFCOURSE…AS LUCK WOULD HAVE IT WHAT DOES WORK….ALWAYS SEEMS TO BE A NO,NO…OF SORTS WITH PROBABLE HABIT FORMING WARNINGS…SOME OF THESE…THE SCHEDULED NARCOTICS FOR PAIN.  EVEN WITH SOME OF THESE "LIKE I SAID BEFORE" SOME WORK AND SOME DO NOT OR AGAIN THE SIDE EFFECTS ARE JUST TOO MUCH.  AT ONE POINT YEARS AGO WHEN THINGS WERE REALLY BAD THEY GAVE ME HYDROCODONE 5MG…I HAD TO TAKE TWO OF THESE PILLS EVERY SINGLE 4 HOURS TO JUST STAY COMFORTABLE, I’D FEEL GUILTY WANTING TO CHEAT AND TAKE IT AGAIN BEFORE MY 4 HOURS WERE UP….AFTER A DAYS WORTH OF TAKING THEM THOUGH I’D BECOME SICK FROM THE TOXIC EFFECTS OF THE ACETOMETAFIN. FINALLY MY PAIN MGMT DOCTOR INTRODUCED ME TO LORTAB 10′S-HYDROCODONE 10MG.  WOW PROBLEM SOLVED NO MORE OVER DOSING AND THESE WORKED WONDERFUL AND STILL TO THIS DAY ARE WHAT WORK BEST FOR ME. THEY’RE NOT THE BIG SCHEDULE 2 NARCOTIC LIKE ITS SIMILAR OXYCODONE. THAT WORKS REALLY WELL BUT GETTING A RX FOR IT IS NEARLY IMPOSSIBLE PLUS YOU CAN’T HAVE REFILLS CALLED IN FOR IT. HYDROCODNE DOESN’T HAVE EXAGGERATED SIDE EFFECTS W/ THE EXCEPTION OF SOME CONSTIPATION. I’M SURE MANY OF YOU OUT THERE ALREADY HAVE LEARNED AND KNOW ABOUT THAT. SO WHY IS IT SO BAD TO HELP PEOPLE WITH THIS GREAT MEDICINE AND FOR ME PERSONALLY WORKS WELL ENOUGH – TAKING AWAY THE HELL I LIVE IN, MAKING LIFE A BIT EASIER TO LIVE, AND ALLOWING YOU (ME) TO BE MORE ACTIVE AND THEREFORE HAPPY!!!! PROBLEM IS THE DEPENDENCY RISK FACTORS…SO MY CURRENT DOCTOR AND EVEN SOME OTHERS IN THE PAST DO NOT WANT TO PRESCRIBE THEM, ESPECIALLY THE HIGHER MG’S I REQUIRE. FUNNY THING IS THOUGH…I DO NOT FEAR THAT AT ALL…I JUST WANT TO FEEL BETTER, IF ANYTHING AT LEAST ON THE REALLY BAD DAYS.   I KNOW DEPENDENCY HAPPENS…BEFORE MY SURGERY I TOOK NARCOTICS GRADUATING TO HIGHER AND HIGHER STRENGTHS EVERY DAY FOR MONTHS AND MONTHS…THEN THE SURGEON SLOWLY REDUCED THEM FOR ME, IT WAS A SLOW BUT TOLERABLE PROCESS.  MY WORST PROBLEM WAS DIARRHEA, SORRY TO BE SO CANDID BUT I GUESS THAT WAS NORMAL.   I THEN WAS ALLOWED A MAINTENANCE PRESCRIPTION FOR "WHEN NEEDED" BUT AFTER RETURNING HOME TO MY OWN FAMILY PHYSICIAN HE TOOK EVEN THAT SMALL ACCESS TO RELIEF FROM ME.  I DON’T KNOW WHAT TO DO WHERE TO GO OR WHERE TO FIND THE HELP I SO BADLY NEED AND BEG FOR.  LIKE MY HEADING STATES HELP!!!SORRY I WROTE SO MUCH, IT IS MY PERSONAL STORY/FEELINGS… I CAN’T BELIEVE I’VE WRITTEN –  - BUT I WAS SO INSPIRED BY ALL OF YOU AND THE HOPE THAT I MAY FIND LINKS FOR HELP – THAT I PUT IT ALL OUT THERE…REAL AND HONEST. IF YOU READ ALL THIS I THANKYOU FROM THE BOTTOM OF MY HEART.  I LOOK FORWARD TO SEEING SOME OF YOUR POSTED RESPONSES…IN FACT I CAN’T WAIT. BLESS YOU ALL. THE FUNNY NICK NAME OF MY BEAUTIFUL 9 MONTH OLD SON, HA HA) BLESS YOU ALL "K"

Response:

Hi "K" Since you are looking forward to responses to your first post here, and I have a feeling that many people are going to skip your article because it is too hard to read in all caps, and since I already had WordPerfect open, and since I am feeling so generous this morning, I thought I would repost this for you.  It’s not a perfect "translation" and the format gets really screwed, but it is easier to read. As you seem new to usenet, I was going to give you an url for your edification, but a recent reformat seems to have lost most of my bookmarks ("Backups?  We don’t need no stinkin’ backups").  If you want some extra reading to avoid the flames, I’m sure someone can supply you with the information (or I will look them up again). <aside Wow.  Top posting, run-on sentences, kindly gestures, and advice from me on a Saturday morning.  I must be ill. </aside Begin Repost: spouted: Hello to you all I just wrote this mail not realizing how candid and Personal I became…even discussing medication and my frustrations , I Thankyou now for caring enough to read this., I’m new and I guess this is my discovered This wonderful news group, and just sitting here reading the different posts And messages I am so impressed with the "openness" and incredible support That has been given back and forth among so many of you!  This is just Exactly what I needed …i sit here now teary eyed…wow! Theres others out There just like me in pain and not getting the help they need. I wish I had Looked into this or other possibilities with support and advice before. I’m Actually at the  point of "feeling guilty" for my own pain and the injuries I have that cause it.  I’m just 26 years old but after a car accident in 94′ Have had severe chronic back pain (and therefore-chronic "triggered" Migraines ever since) sometimes I feel more like an old worn out lady, then The 26 year old young lady I really am.  I feel like I’ve been through it All…starting out with chiropractors, physical therapy, even a special pain Clinic.  I learned alot from these therapies…but here I am six years later And the injuries (now causing arthritis and deterioration) hurt so much I Sometimes can’t simply function with my regular activities for daily living. The doctors I had initially were assigned to me for the acute course of my Care (just after the accident)like my surgeon pain rehabilitation doc etc. , But now I’m on my own. I’ve found  out now that general practice physicians Are so very strict,,conservative and even judgmental when helping you treat The pain.  I once had a doctor say to me,"you are much too beautiful,smart And strongwilled to need any pain pill" not only did it anger me, but Watching him just grin sincerely with what he thought was a compliment and Sorta’ pep talk, made me want to just fall apart with frustration. He was Judging me telling me that the way I look and my attitude/character exempted Me from severe pain…that I obviously had the potential to fight the pain. You know I do fight the pain but I suffer just the same and just can’t do it Anymore.  I wished then, if for only a moment that doctor could trade places With me and feel what I was feeling…he’d then have to eat alot of crow! I Bet he would be amazed at my "actual" strength.   I never returned to see Him again.       I swear for a girl my age I have tried a pharmaceutical Wonderland of so called pain medicines/remedies or preventative "pain"pills. Aside from allergic reactions and yucky side effects or just plain feeling Horrible…i’ve so learned to hate most everything out there…even losing Faith in some of the best preventative alternatives.  And of Course,ofcourse…as luck would have it what does work….always seems to be A no,no…of sorts with probable habit forming warnings…some of These…the scheduled narcotics for pain.  Even with some of these "like I Said before" some work and some do not or again the side effects are just Too much.  At one point years ago when things were really bad they gave me Hydrocodone 5mg…i had to take two of these pills every single 4 hours to Just stay comfortable, I’d feel guilty wanting to cheat and take it again Before my 4 hours were up….after a days worth of taking them though I’d Become sick from the toxic effects of the acetometafin. Finally my pain mgmt Doctor introduced me to lortab 10’s-hydrocodone 10mg.  Wow problem solved no More over dosing and these worked wonderful and still to this day are what Work best for me. they’re not the big schedule 2 narcotic like its similar Oxycodone. That works really well but getting a rx for it is nearly Impossible plus you can’t have refills called in for it. Hydrocodne doesn’t Have exaggerated side effects w/ the exception of some constipation. I’m Sure many of you out there already have learned and know about that. So why Is it so bad to help people with this great medicine and for me personally Works well enough – taking away the hell I live in, making life a bit easier To live, and allowing you (me) to be more active and therefore happy!!!! Problem is the dependency risk factors…so my current doctor and even some Others in the past do not want to prescribe them, especially the higher mg’s I require. Funny thing is though…i do not fear that at all…i just want To feel better, if anything at least on the really bad days.   I know Dependency happens…before my surgery I took narcotics graduating to higher And higher strengths every day for months and months…then the surgeon Slowly reduced them for me, it was a slow but tolerable process.  My worst Problem was diarrhea, sorry to be so candid but I guess that was normal.   I Then was allowed a maintenance prescription for "when needed" but after Returning home to my own family physician he took even that small access to Relief from me.  I don’t know what to do where to go or where to find the Help I so badly need and beg for.  Like my heading states help!!!sorry I Wrote so much, it is my personal story/feelings… I can’t believe I’ve Written –  - but I was so inspired by all of you and the hope that I may Find links for help – that I put it all out there…real and honest. If You read all this I thankyou from the bottom of my heart.  I look forward to Seeing some of your posted responses…in fact I can’t wait. Bless you all. funny Nick name of my beautiful 9 month old son, ha ha) bless you all   "k" — The Armadillo

Response:

HELLO TO YOU ALL I JUST WROTE THIS MAIL NOT REALIZING HOW CANDID AND PERSONAL I BECAME…EVEN DISCUSSING MEDICATION AND MY FRUSTRATIONS , I THANKYOU NOW FOR CARING ENOUGH TO READ THIS., I’M NEW AND I GUESS THIS IS MY THIS WONDERFUL NEWS GROUP, AND JUST SITTING HERE READING THE DIFFERENT POSTS AND MESSAGES I AM SO IMPRESSED WITH THE "OPENNESS" AND INCREDIBLE SUPPORT THAT HAS BEEN GIVEN BACK AND FORTH AMONG SO MANY OF YOU!  THIS IS JUST EXACTLY WHAT I NEEDED …I SIT HERE NOW TEARY EYED…WOW! THERES OTHERS OUT THERE JUST LIKE ME IN PAIN AND NOT GETTING THE HELP THEY NEED. I WISH I HAD LOOKED INTO THIS OR OTHER POSSIBILITIES WITH SUPPORT AND ADVICE BEFORE. I’M ACTUALLY AT THE  POINT OF "FEELING GUILTY" FOR MY OWN PAIN AND THE INJURIES I HAVE THAT CAUSE IT.  I’M JUST 26 YEARS OLD BUT AFTER A CAR ACCIDENT IN 94′ HAVE HAD SEVERE CHRONIC BACK PAIN (AND THEREFORE-CHRONIC "TRIGGERED" MIGRAINES EVER SINCE) SOMETIMES I FEEL MORE LIKE AN OLD WORN OUT LADY, THEN THE 26 YEAR OLD YOUNG LADY I REALLY AM.  I FEEL LIKE I’VE BEEN THROUGH IT ALL…STARTING OUT WITH CHIROPRACTORS, PHYSICAL THERAPY, EVEN A SPECIAL PAIN CLINIC.  I LEARNED ALOT FROM THESE THERAPIES…BUT HERE I AM SIX YEARS LATER AND THE INJURIES (NOW CAUSING ARTHRITIS AND DETERIORATION) HURT SO MUCH I SOMETIMES CAN’T SIMPLY FUNCTION WITH MY REGULAR ACTIVITIES FOR DAILY LIVING. THE DOCTORS I HAD INITIALLY WERE ASSIGNED TO ME FOR THE ACUTE COURSE OF MY CARE (JUST AFTER THE ACCIDENT)LIKE MY SURGEON PAIN REHABILITATION DOC ETC. , BUT NOW I’M ON MY OWN. I’VE FOUND  OUT NOW THAT GENERAL PRACTICE PHYSICIANS ARE SO VERY STRICT,,CONSERVATIVE AND EVEN JUDGMENTAL WHEN HELPING YOU TREAT THE PAIN.  I ONCE HAD A DOCTOR SAY TO ME,"YOU ARE MUCH TOO BEAUTIFUL,SMART AND STRONGWILLED TO NEED ANY PAIN PILL" NOT ONLY DID IT ANGER ME, BUT WATCHING HIM JUST GRIN SINCERELY WITH WHAT HE THOUGHT WAS A COMPLIMENT AND SORTA’ PEP TALK, MADE ME WANT TO JUST FALL APART WITH FRUSTRATION. HE WAS JUDGING ME TELLING ME THAT THE WAY I LOOK AND MY ATTITUDE/CHARACTER EXEMPTED ME FROM SEVERE PAIN…THAT I OBVIOUSLY HAD THE POTENTIAL TO FIGHT THE PAIN. YOU KNOW I DO FIGHT THE PAIN BUT I SUFFER JUST THE SAME AND JUST CAN’T DO IT ANYMORE.  I WISHED THEN, IF FOR ONLY A MOMENT THAT DOCTOR COULD TRADE PLACES WITH ME AND FEEL WHAT I WAS FEELING…HE’D THEN HAVE TO EAT ALOT OF CROW! I BET HE WOULD BE AMAZED AT MY "ACTUAL" STRENGTH.   I NEVER RETURNED TO SEE HIM AGAIN.       I SWEAR FOR A GIRL MY AGE I HAVE TRIED A PHARMACEUTICAL WONDERLAND OF SO CALLED PAIN MEDICINES/REMEDIES OR PREVENTATIVE "PAIN"PILLS. ASIDE FROM ALLERGIC REACTIONS AND YUCKY SIDE EFFECTS OR JUST PLAIN FEELING HORRIBLE…I’VE SO LEARNED TO HATE MOST EVERYTHING OUT THERE…EVEN LOSING FAITH IN SOME OF THE BEST PREVENTATIVE ALTERNATIVES.  AND OF COURSE,OFCOURSE…AS LUCK WOULD HAVE IT WHAT DOES WORK….ALWAYS SEEMS TO BE A NO,NO…OF SORTS WITH PROBABLE HABIT FORMING WARNINGS…SOME OF THESE…THE SCHEDULED NARCOTICS FOR PAIN.  EVEN WITH SOME OF THESE "LIKE I SAID BEFORE" SOME WORK AND SOME DO NOT OR AGAIN THE SIDE EFFECTS ARE JUST TOO MUCH.  AT ONE POINT YEARS AGO WHEN THINGS WERE REALLY BAD THEY GAVE ME HYDROCODONE 5MG…I HAD TO TAKE TWO OF THESE PILLS EVERY SINGLE 4 HOURS TO JUST STAY COMFORTABLE, I’D FEEL GUILTY WANTING TO CHEAT AND TAKE IT AGAIN BEFORE MY 4 HOURS WERE UP….AFTER A DAYS WORTH OF TAKING THEM THOUGH I’D BECOME SICK FROM THE TOXIC EFFECTS OF THE ACETOMETAFIN. FINALLY MY PAIN MGMT DOCTOR INTRODUCED ME TO LORTAB 10′S-HYDROCODONE 10MG.  WOW PROBLEM SOLVED NO MORE OVER DOSING AND THESE WORKED WONDERFUL AND STILL TO THIS DAY ARE WHAT WORK BEST FOR ME. THEY’RE NOT THE BIG SCHEDULE 2 NARCOTIC LIKE ITS SIMILAR OXYCODONE. THAT WORKS REALLY WELL BUT GETTING A RX FOR IT IS NEARLY IMPOSSIBLE PLUS YOU CAN’T HAVE REFILLS CALLED IN FOR IT. HYDROCODNE DOESN’T HAVE EXAGGERATED SIDE EFFECTS W/ THE EXCEPTION OF SOME CONSTIPATION.  I’M SURE MANY OF YOU OUT THERE ALREADY HAVE LEARNED AND KNOW ABOUT THAT.  SO WHY IS IT SO BAD TO HELP PEOPLE WITH THIS GREAT MEDICINE AND FOR ME PERSONALLY WORKS WELL ENOUGH – TAKING AWAY THE HELL I LIVE IN, MAKING LIFE A BIT EASIER TO LIVE, AND ALLOWING YOU (ME) TO BE MORE ACTIVE AND THEREFORE HAPPY!!!! PROBLEM IS THE DEPENDENCY RISK FACTORS…SO MY CURRENT DOCTOR AND EVEN SOME OTHERS IN THE PAST DO NOT WANT TO PRESCRIBE THEM, ESPECIALLY THE HIGHER MG’S I REQUIRE. FUNNY THING IS THOUGH…I DO NOT FEAR THAT AT ALL…I JUST WANT TO FEEL BETTER, IF ANYTHING AT LEAST ON THE REALLY BAD DAYS.   I KNOW DEPENDENCY HAPPENS…BEFORE MY SURGERY I TOOK NARCOTICS GRADUATING TO HIGHER AND HIGHER STRENGTHS EVERY DAY FOR MONTHS AND MONTHS…THEN THE SURGEON SLOWLY REDUCED THEM FOR ME, IT WAS A SLOW BUT TOLERABLE PROCESS.  MY WORST PROBLEM WAS DIARRHEA, SORRY TO BE SO CANDID BUT I GUESS THAT WAS NORMAL.   I THEN WAS ALLOWED A MAINTENANCE PRESCRIPTION FOR "WHEN NEEDED" BUT AFTER RETURNING HOME TO MY OWN FAMILY PHYSICIAN HE TOOK EVEN THAT SMALL ACCESS TO RELIEF FROM ME.  I DON’T KNOW WHAT TO DO WHERE TO GO OR WHERE TO FIND THE HELP I SO BADLY NEED AND BEG FOR.  LIKE MY HEADING STATES HELP!!!SORRY I WROTE SO MUCH, IT IS MY PERSONAL STORY/FEELINGS… I CAN’T BELIEVE I’VE WRITTEN –  - BUT I WAS SO INSPIRED BY ALL OF YOU AND THE HOPE THAT I MAY FIND LINKS FOR HELP – THAT I PUT IT ALL OUT THERE…REAL AND HONEST.   IF YOU READ ALL THIS I THANKYOU FROM THE BOTTOM OF MY HEART.  I LOOK FORWARD TO SEEING SOME OF YOUR POSTED RESPONSES…IN FACT I CAN’T WAIT. BLESS YOU ALL. NICK NAME OF MY BEAUTIFUL 9 MONTH OLD SON, HA HA) BLESS YOU ALL   "K"

Response:

Linda, I’m so sorry that you have been having such problems. I also apologize for not getting to you sooner.  I have been in the hospital with two very large DVT’s (Deep Venous Thrombosis) that probably extend to my Superior Vena Cava.  In fact, due to the blood flow not flowing down towards my heart and staying in my head, I have been having some pretty bad headaches.  I also have Migraines from time to time, but have found that Zomig works wonderfully well for me! Please know that you are in my thoughts!  If there is anything at all I can do, let me know….Email me if you’d like, or IM me anytime ;o)….. Big Hugs, Robin – Hide quoted text — Show quoted text -Hi, I have been 100% disabled for about 9 years with various medical (pain) problems. I am in the worst pain ever for me.  I have all kinds of pain meds but nothing is helping my pain.  Sorry I hurt to bad to go into to much  detail.  This is day #7 of intense pain. It started with a migraine and I still have my sunglasses on.    I thought I was strong.  Well not now.  Please anyone who believes in the power of prayer may I please ask you to pray for me.  Thanks. As many of you know me and many do not..  I am so scared this wont go away. I have nerve damage and lots of other stuff going on.  I see my Dr tommorrow and he is great.  I should have gone sooner but could not go.  Please pray for me to be able to get to the Dr. and that this pain in my head goes away.   It feels like I hit it really hard but I did not and then it goes into the nerve pain (trigeminal neuralgia). Angel Bear (linda)

I am in no way a physician or any other type of medical professional.  I am just speaking from personal experience or information gained during my treatment or research ;o). Remove NOSPAM from the above email address to contact me.

Response:

I’m so sorry you’re in such bad pain.  I will pray for you, as I’m sure will the others. There are a lot of different really bad pains, but I have to say that I think a severe migrain to be at the top of the list. You’ve seen the doc by now, and I really hope he was able to help. Lynn :/Hi, I have been 100% disabled for about 9 years with various medical (pain) :/problems. :/I am in the worst pain ever for me.  I have all kinds of pain meds but nothing :/is helping my pain.  Sorry I hurt to bad to go into to much  detail.  This is :/day #7 of intense pain. It started with a migraine and I still have my :/sunglasses on.    I thought I was strong.  Well not now.  Please anyone who :/believes in the power of prayer may I please ask you to pray for me.  Thanks.   :/As many of you know me and many do not..  I am so scared this wont go away.  I :/have nerve damage and lots of other stuff going on.  I see my Dr tommorrow and :/he is great.  I should have gone sooner but could not go.  Please pray for me :/to be able to get to the Dr. and that this pain in my head goes away.   It :/feels like I hit it really hard but I did not and then it goes into the nerve :/pain (trigeminal neuralgia). :/Angel Bear (linda)

To email, remove tail

Response:

Linda,      You want prayers? You got ‘em! I even went one step further and put you on the prayer chain at my Church.      Don’t give up .. a lot of people are pulling for you. It’ll pass. It’s GOT to! Harley –

~ ~ C

Dr. won't prescribe emergency 'kit'

Question:

My significant other has acute asthma and manages it as best she can with two or three different prescribed inhalers. However, regardless of her caution she has been blindsided a few times by unanticipated environments. Once two years ago she virtually stopped breathing and a fast run to the hospital probably saved her life. This has happened to my mother as well. In each case, they were given IV epinephrine, I believe. My mother was finally prescribed a ‘kit’ – a loaded syringe and tourniquet to use in case it happens again, especially if she is not near a hospital ER. However, my SO’s doctors (two of them) each refuse to prescribe a similar kit to her. In my mind, and in her experience, her problem can become a Life or Death situation, and I cannot fathom why they will not prescribe it! So, as it stands now, we cannot travel anywhere without first considering ER facilities. That means no camping, etc.. Before I go ballistic on the MDs, perhaps someone can enlighten me. What rationale can they have to (apparently) put my mate’s life in jeopardy?

Response:

- Hide quoted text — Show quoted text – My significant other has acute asthma and manages it as best she can with two or three different prescribed inhalers. However, regardless of her caution she has been blindsided a few times by unanticipated environments. Once two years ago she virtually stopped breathing and a fast run to the hospital probably saved her life. This has happened to my mother as well. In each case, they were given IV epinephrine, I believe. My mother was finally prescribed a ‘kit’ – a loaded syringe and tourniquet to use in case it happens again, especially if she is not near a hospital ER. However, my SO’s doctors (two of them) each refuse to prescribe a similar kit to her. In my mind, and in her experience, her problem can become a Life or Death situation, and I cannot fathom why they will not prescribe it! So, as it stands now, we cannot travel anywhere without first considering ER facilities. That means no camping, etc.. Before I go ballistic on the MDs, perhaps someone can enlighten me. What rationale can they have to (apparently) put my mate’s life in jeopardy?

This is hard for me to understand, too. No doctor has ever hesitated to prescribe an Epi-Pen for me. Have you considered seeing another doctor? Joan

Response:

- Hide quoted text — Show quoted text – My significant other has acute asthma and manages it as best she can with two or three different prescribed inhalers. However, regardless of her caution she has been blindsided a few times by unanticipated environments. Once two years ago she virtually stopped breathing and a fast run to the hospital probably saved her life. This has happened to my mother as well. In each case, they were given IV epinephrine, I believe. My mother was finally prescribed a ‘kit’ – a loaded syringe and tourniquet to use in case it happens again, especially if she is not near a hospital ER. However, my SO’s doctors (two of them) each refuse to prescribe a similar kit to her. In my mind, and in her experience, her problem can become a Life or Death situation, and I cannot fathom why they will not prescribe it! So, as it stands now, we cannot travel anywhere without first considering ER facilities. That means no camping, etc.. Before I go ballistic on the MDs, perhaps someone can enlighten me. What rationale can they have to (apparently) put my mate’s life in jeopardy?

Epinephrine is no longer prescribed for asthma per 1997 Expert Panel Report 2 (NIH); there are better beta2 selective drugs available– albuterol/salbutamol by inhalation is the most commonly prescribed. However for anaphylaxis epinephrine is the rescue drug of choice. It sounds like your mother has anaphylaxis, perhaps to bee/yellow jacket stings–hence the tourniquet. An Epi-Pen would be used to inject short-acting epinephrine, and a tourniquet to slow blood flow to arm or leg where the sting is, which gives her about 20 minutes to get to ER. It is now recommended that Moderate and Severe asthmatics monitor their lung function daily using a peak flow meter at home. An Action Plan is used to adjust medications. The Green Zone is 80-100% of personal best. When Peak Flows drop into Yellow Zone (50-80% PB), a typical action plan calls for using the rescue med (typically Ventolin inhaler) as needed and doubling the dose of inhaled steroids. In the Red Zone (<50% PB), the doctor should be called and typically oral steroids started. So I suspect your significent other does not have anaphylaxis so should not need an Epi Pen. She does need a Peak Flow Meter and Action Plan. Links: http://www.ama-assn.org/special/asthma/support/educate/action.htm Asthma Action Plan http://www.njc.org/MFhtml/APA_MF.html Action Plan to Manage Asthma